WOW - part 8 - we are something of a real support group! Think we will make it to part 20 :)
Amira - nice to hear from you again... how are things going with you?
Somer - yeah seeing docs isnt fun, but you have been through the worst. An EGD is way easy, no prep involved just an IV! :) Let us know how it goes and what they decide. Dont feel too bad, I have to have an EGD done this summer I think as a following up for the bleeding ulcers.
Lesa - how ya doing?
Sasha - how is that prep coming?
Hi Maura! So good to hear from you again! I second your notion and I just wanted to let you know that you are one person who really gave me strength to do this. Luckily I found this group also, which has been my rock during the pre op and recovery period!
What is new in your life? :)
Welcome to the group Maura!
Emma, congratulations on the date! I know it really starts to seem "real" when you have the date picked.
I feel like my esophagus is on fire! I have never had this feeling in my chest before. It's almost like someone has a fist around my throat. It's awful! My appointment is 1/11 so hopefully I'll get some relief soon. Not really looking forward to the EGD, but I know it won't be that bad.
Welcome Maura, it's always nice to have a seasoned recoveree on board.
Somer, hope you get relief soon. That burning sensation can be awful!
Emma, you must be so excited. I love weddings! Is the group invited That's what you need -- a little more guest-list pressure I'm bad Seriously, check out ourweddingstorybook.com and let me know what you think.
Florida is great. I'm loving the weather and going to the beach almost daily. I'm not bored yet, and don't think I will be any time soon. I also forgot my cookbooks at home (on purpose of course) and I can't tell you enough how I've enjoyed eating out almost everyday and not having to concern myself with my stomach. It's such a new experience still. I see something on the menu and first think how it would be great if I could have it, then I remember that I can Life is good.
Lesa, how's it going? I hope you're home by now and sleeping well.
Well here I am...back from the dead! Sorry to keep you guys hanging a few days. I came home yesterday It's a 3 hr drive, and by the time I got home I felt really bad. I'm having a lot of trouble staying hydrated and keeping my electrolytes balanced. I kept having to have potassium in the hospital, and it really makes you feel bad when it dips. Almost had to go to my ER last nite for IV fluids/potassium. I feel better today, but it's really hard to stay ahead of it! And I remember a couple people talking about their palms peeling (Cathy maybe??) What's the deal with that? My back's bubbling up in all these tiny little blisters and starting to peel. Malnutrition or something I guess. I don't own a scale but I'd say I've already lost around 15 lbs. Crazy. But overall, it's really been much easier than I had feared.
I'm glad to hear that everyone is doing so well. I'll check in again later. To be honest, I haven't been turning on my computer much at all so I won't be tempted to do some work!!
Oh...and has anyone heard from Sasha?
Welcome home Lesa. You sound great, despite the peeling, which I know nothing about because I didn't experience it. I do remember all the potassium they gave me, but no side effects from it that I recall.
Just relax for a while, don't even think about working and take care of yourself for at least the next week.
Take care, Amira
Cath - how nice that you dont have to do a prep. I suppose it is because things move pretty quickly in your system! I have been told that I will never have to have prep again too... and when I need to have a colonoscopy all they have to do is an enema. I am sooo excited for your surgery... and funny I was logging on to remind you about the one month until surgery thing! :) You will be great in surgery.. you have already been through the worst, so it can only get better, right!
Sorry Im relaxed, happy, and freaking merry sunshine lately,
Hmmmm where is everyone?!!
I am off for Vegas at 5am tomorrow morning, so I just wanted to say adios to all and I will check posts when I get home.
Somer - hope your appt with your GI goes well, please let me know how it goes.
Lesa - hope you are recovering well and without any problems... remember TAKE IT EASY and that means for food AND activity!
Sasha - how are you doing?
Cathy - time is getting closer and closer!
Hey guys! It really sounds like a good new year for everyone so far.
Still nothing from Sasha? Well maybe she's just happy in morphine-land! I'm pretty sure I enjoyed it, judging from the stories I've heard. I've never gotten confused in the hospital before, but I went through about 48 hrs there at the beginning when I was a little loopy. Mom said I kept saying "now tell me the truth...this isn't really the same room I was in, now is it??" like it was some big conspiracy or something! But I was on a LOT of drugs initially. Guess that's to be expected.
Most of the time, I feel absolutely fine. Sitting down, I have no pain AT ALL! Amazing! First time in 10 yrs I could say that. The only pain I have is obviously post-op pain and it's just soreness. I'm up and about and fine. No more probs with dehydration. Nothing I've eaten has bothered me at all. I'm still tweeking the number of times I'm going to the bathroom with the lomotil, but I've never gone more than 10 times in a day even since the beginning. I have noticed that some meds I'm taking are coming out undissolved...not sure which ones yet, but that's kinda weird.
So once again, I can't thank all you enough for giving me the courage to go thru with this. It was the best decision I could have made. Oh, and as for the NG tube issue...I was very happy to have it in place when I woke up. I had no nausea at all, and it didn't bother me at all except 2 times...during my "confused" state when I accidentally pulled it half way out (but the nurse came in and put it back and it didn't bother me a bit) and then the 7th day when it suddenly shifted to the other side of my throat and gave me a gagging sensation, so I told the nurse to just go ahead and take it out. I would take that any day over having nausea and/or vomiting in that situation. And same goes for the rectal tube...had it for 3 days (I think) and couldn't even feel it, but if it had anything to do with how smoothly and pain-free I made the transition, then it was worth it, too!
Somer-I had peptic ulcers in the past, and I had similar sensations to what you're having. Good news is they gave me carafate to take, and I was cured within a couple weeks. I take nexium daily, and keep some carafate handy in case I have a flare up...no probs. And like they said, at least no prep!!
Cathy-When they do your next surgery, what exactly will they do? Will you be completely done then? I don't blame you being a little hesitant to go under again, but just think of how great it will be when it's done...
Talk to you guys later.
Emma, have fun in Vegas, sounds like SOOOOO much fun!
Lesa, I'm glad you are feeling better. I think I would have had better luck w/ the NG tube if they had inserted while I was sedated instead of wide awake, sitting in front of a mirror, watching myself. It was horrid.
Cathy, I really do hope that this surgery is much much better than the first, or second. You've been a trooper, I tell ya. I was the one that woke up w/ the Hollister bracelet on. I guess I was sort of prepared for the worst case scenario, but thankfully, everything went according to plan.
Cathy, my husband just started painting and putting up crown moulding in our living room also. Is it just me or does your house look like a tornado touched down inside it? I guess you have to make a mess first, then a masterpiece. Who knows..
Well, my GI appt is tomorrow morning. Not looking forward to seeing them again, but hopefully it's nothing short of a little GERD.
Cathy-Wow...you're my new hero for just living thru all this!
And Somer, I do believe I would have to smack the person that thought watching the NG tube was a good idea... I hope they get you straight tomorrow, and that it's a simple thing for once.
And I have a question for all you experts: I've been having mostly liquid, not formed at all bowel movements 8-10 times/day since the surgery. The doc said for me to shoot for between 3-5, and to use the Lomotil to try and achieve that. I've been tracking everything on my eat/poop/med sheet since I d/c'd, and taking the Lomotil 4 times/day. I've been feeling great, eating getting back to normal, minimal pain. Then yesterday, I started having an increase in what I assume to be post-op pain...certainly nothing like it was before the surgery. Then this morning, I had a large liquid bm at 8, and then at 11, I felt like I needed to go, but at first nothing came out. Then, when it finally did, it was just 3 small rock-hard stools with no liquid at all. I have had no bm's at all since, and my pain is continuing to increase. Now, give it to me straight: is something bad around the corner? I'm starting to get a little nervous...
Cathy, I wish my husband was a little like yours. He is always wanting to fix something or paint something or build something. It gets sort of annoying. I think our master bath has been turned upside down for 2 years now. I don't even use it.
Lesa, I remember a week or so after surgery I got these sharp pains on my rt side. My surgeon told me that it's normal, just the small intestine "moving around". I would stop the Lomotil too, I never had to use it. The most I went per day after surgery was 5-7. Now thankfully, I'm down to 2-3.
Ok, so I saw GI today. They changed me to Nexium bid and scheduled me for an EGD in February. They said they will do biopsies to make sure the H. pylori is gone and check for blockages b/c I'm having early satiety (feeling full after eating a very small amount). I guess it really wasn't too bad after all.
Hi Melissa. I'm the one who just went thru the surgery. I can completely relate to your hesitancy and predicament. I'm through the acute phase and in the recovery, but I'm still not home free. Right now I'm a little nervous because I may have an obstruction from scar tissue on the inside or adhesions causing strictures on the outside. I've completely stopped having bowel movements very suddenly, am having burning/searing pain, and pretty intense nausea. If it's the same tomorrow pm I've gotta go have an xray to see what's up. But if I can just get healed from this and have it like it was last Fri thru this Mon, it will have all been worth it. I'm gonna have a heck of a scar from my open procedure, but if you have a lap you'll hardly be able to see the incisions he'll make. You may have a problem with the wt though...I've already lost about 15 lbs, and I think most of the others had similar losses. Sounds like you don't have much room to play with.
This is a great group...I felt much better about the surgery once I heard from all the people who had been thru it before...
thanks for your reply, it is so nice to know I am not alone! How long do you think I will be off work? Are you able to eat solid food? I don't know how soon after the evaluation on Jan.30th I will get surgery. My hubby wants me to get it done asap, but I am scared!I hope you are okay tomorrow, take care,