please help me

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rbowden
New Member


Date Joined Jan 2006
Total Posts : 12
   Posted 2/1/2006 2:44 AM (GMT -6)   
ok i am new. i have had alot going on. had a few questions. confused irst i have been swollen in the abdomen area for the last 2 years. i look like i am having a baby and about 6 months along. it is only in my tummy. is anyone here familer with the swelling. plus constipation, pain, pain, pain, nausua, fatige, and pick up every cold that i come in contact with. plus i have fibromyalgia to fight with.   every doc i seen told me that i had irritable bowel  mad because
all the test came back normal. i had the colonoscopy, endoscopy, be, acute abdominal series, blood work, had 3 ct scans this yr. i have taking any kind of medicene such as anti-depressants, bowel spasm med, laxitive. i have been in the er twice. and i have had no results. i went to a differnt doc and know i am taking the stiz marker test. he said that it was not irritable bowel. i have had one xray and go back in the morn for another. for some resaon i have a feeling this test will be normal too because every test i have had done does. my bowel movements are terrible. when not on a laxitive i can go 2 weeks with out a bowel movement. i was on miralax for over two months and and i think that has messed up my test. because it is just now getting out of my system. oh well. yall i am about ready to give up. the doc said that i have been swollen for so long, that it has swayed my back and got to have it fixed. can anyone help me and give me hope. i have enjoyed reading all your post and to see that someone can get better. i just do not know what is going to happen.  thank you all, sorry it is so long. sad

Post Edited (rbowden) : 2/1/2006 1:57:37 AM (GMT-7)


Cathy W
Regular Member


Date Joined Aug 2005
Total Posts : 218
   Posted 2/1/2006 12:36 PM (GMT -6)   
The sitz marker test is the gold key standard for diagnosing colonic inertia, which means lazy colon. Constipation! If you have BMs every two weeks then the sitz marker will be abnormal. The study looks at how far rings that you swallowed in a capsule travel through your intestines over a period of 5-7 days. Normal results would be total elimination of the rings within 5 days. No BM, no elimination. Abnormal results.

Surgery is the last option to fix this problem. If laxatives still work, then you're not a real good candidate for this surgery. Constipation tends to get worse as time goes by, when the laxatives don't work anymore, then surgery is considered.

Hope this helps
Cathy

rbowden
New Member


Date Joined Jan 2006
Total Posts : 12
   Posted 2/3/2006 6:40 PM (GMT -6)   
i understand, but i cannot live the abdominal swelling that the laxitives do not fix. i went today and had around 10 markers left. but i will see the doctor monday and go from there. something has got to give with the selling. i cannot take it much more.

Lorilynn
New Member


Date Joined Feb 2006
Total Posts : 2
   Posted 2/17/2006 6:53 PM (GMT -6)   
I am new to this site and this is my first email. I can understand your feelings. I was miserable for many years and I knew my own body yet the doctors I went to seemed to think that constipation was no big deal. Eat more fiber, try Zelnorm, try Miralax and I think the other one was Keralose?  I can't remember the exact name.  It wasn't until I was diagnosed with Gastroparesis and total motility disorders that is when the  doctors started to listen.  I was referred to a colon/rectal surgeon and I don't regret having a total abdominal colectomy.  I no longer look like I am six months pregnant and I don't suffer from the constant pain of constipation which aggrevated my Gastroparesis.
I had my surgery on November 7, 2005 and the recovery took longer than I thought, but after three months I can touch my stomach without pain and I no longer have to wear baggy clothes.
 
 
I am curious to know if anyone has had or developed kidney stones after having a colectomy. 
 
Thanks for letting me participate.
 
L

rbowden
New Member


Date Joined Jan 2006
Total Posts : 12
   Posted 3/14/2006 12:37 PM (GMT -6)   
i am finally getting sent to a surgen.  i think it is about time. i am sooooo glad. the doctor recommended the total abdominal colectomy. the meds do not work, so they are going to take it out.

R.T.
New Member


Date Joined Mar 2006
Total Posts : 1
   Posted 3/29/2006 6:21 PM (GMT -6)   
I would like to throw my own two cents in now.
 
My name is Ryan, and I am eighteen years old. I too, since I was seven years old, have had an intestinal disorder. I had a malformation of the sigmoid colon. When someone talks to me about gastro tests, I can pretty much say, I have had 'em all! Barium (x5), lower GI, SITZ...etc. I am about to have another SITZ done as soon as my doctor orders the capsules. I am at the stage of surgery now. I will probably be having all of the colon, if not all the large intestine removed and the small intestine brought up to its place. The first surgery to remove the sigmoid area that was thought to have been diseased did not do anything. As of the exact moment, it has been a grand total of two-and-a half weeks since my last BM. I am a pretty big guy for being eighteen (6'6''). With this issue, it has brought me up to 279 lbs!
 
When I had the first surgery, things seemed to be going OK, and I was weighing in at 230 lbs, but slowly, I reverted back. When I went to my doctor today, he doesnt even know what would be wrong with me. This imperticular doctor has never done a SITZ test, so he has asked my help in the research process to aide him through the process, but he has done the required surgery.
 
With me being a senior in high school, this is a very difficult time in my life. I had my first surgery at the beginning of the year, and was out of school until December. I have been in and out at doctor appointments and staying home sick since then. I will now be missing the rest of the year, and be lucky to walk across the stage for graduation. I will get my diploma in the mail. I will be on what is called HomeBound, where the teachers come to me instead. I am just getting more scared as the hours go by that too much bowel is going to collect in one spot and it rips open. If so, then I am going to be passing away at a very young age. That is why I try and push my doctor to getting this done ASAP.
 
I just wanted to add that in there....I know what you are going through. 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 3/30/2006 8:49 AM (GMT -6)   

I am not surprised that more doctors don't know about colonic inertia.  I think it's mainly a colo-rectal surgeon specialty.  When I was very ill with Ulcerative Colitis, my very favorite internist gave me emotional support while my GI treated my disease.  After years of being sick and then having a total proctocolectomy with a j-pouch, my internist shared with me her own colon problems which consists of chronic constipation, etc.  It was me who diagnosed her with colonic inertia, a problem that she, the doctor, had never heard of!!!

The benefit we have now that we didn't have ten years ago is the advent of the internet.  Information is much more accessible, meeting others with similar problems is comforting, and sharing knowledge and experience is unparalled.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 

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