Post Edited (earthgirl) : 2/22/2006 3:48:14 PM (GMT-7)
Post Edited (Shaz032) : 2/21/2006 9:36:48 PM (GMT-7)
Oh, Earthgirl, I have shared this before but I think it's so profound. I was frightened about my ileostomy surgery too and a friend knew of a person who had an ileostomy and was willing to share her experiences. She had absolutely no problem at all either. After about an hour on the phone with her, she said that her stoma was located a little lower than mine would be because it interferred with the strap on her artificial leg!!!! Talk about putting things in perspective for me!
I have also been there, done that, and worn the t-shirt as they say. I had UC for 3 years and it was out of control. Last April I had the ileostomy op (Large bowel removed as shaz has explained) and external bag fitted.
Then 3 weeks ago I went back into hosp and had the bag removed. Now my life is back to how it was before I ever had UC, (apart from a few scars which im very proud of). You wouldn't be human if you werent scared (I was petrified). Hang on in there, I promise you its the best thing you will ever do.
Thanks so much for your words of encouragement, they have really helped to ease my fears! I know I am making the right decision and I'm sure adapting to my ileostomy will be a lot easier than coping with UC for the past 8 years! I am excited to have my life back as I am only 24 and am tired of putting my life on hold waiting to get better. I have heard many different stories about the second surgery and pouchitis and the possibility of frequent trips to the washroom again so I'm unsure what my next step will be. I know that I will have the option of a j-pouch 6-12 months down the road, but I am also going to enquire about whether I'd be a candidate for a BCIR because it seems to have the possbility of less complications. Next week I will meet my ET nurse for the first time and hopefully she will be able to answer some of my questions. Then on the 13th I go in for the surgery...I have been so sick the past few weeks that I am just counting down the days!
Dont worry about all the things that could happen after the op. Pouchitus and going to the loo more frequently are only 2 of many possible things that could happen. Im certainly not trying to frighten you, but you will be told of many other complications. This is a conversation that everyone facing the surgery will receive from the hospital nurses. They have to tell you in order to cover their own backs so that you cant say you werent warned. When you ask what are the chances of any problems occuring you will be pleased to hear very little. Most of the problems that can occur are dealt with by antibiotics (nothing nasty).
Your young (I was 28 when I had the first op) and I am sure you will be perfectly fine. I will be thinking of you on the 13th. Please let us all no how you are when you get home.