I have an ileostomy due to Crohn's disease. I've had it for 16 years and it was the best decision I made for myself. It has given me freedom. I travel, swim daily and do just about anything I want with it. I am no longer "chained" to the toilet. It has given me my life back. Yes, you have to make a few adjustments to your life, but that's what life is all about. I've had many things in my life occur that I've had to make adjustments for, but it's amazing how ingeneous we can get and can figure out how to get around a "problem". Also, sites like this are a huge help in getting ideas. The good thing is, if you have this surgery and have ulcerative colitis, this is the cure for you. When they take out the colon, you no longer will have the illness, I believe. Hope this helps.
I no exactly how you feeling. I had UC for 3years and my specialist said it was one of the worst cases he had seen. I went to the loo up to 50 times a day. I had tried everything they gave me but nothing worked, in the end surgery was the only way I would have some quality of life.
I had my large bowel removed and a colostomy bag fitted in April last year. That on its own made a huge change in my life. Then 3 weeks ago on 9th Feb I had the bag removed and was put back together again. I now go to the toilet like anybody else, they told me it takes about 3 months for the body to adjust to going normally again, but already I only go about 3 times a day.You do get a warning something is going to happen but you dont have to rush to the loo.
Ive been home 10 days now and dont regret a single thing. I feel great.
I had UC for 12 years, the last 2 were in a semi constant state of a severe flare. I tried everything western and many eastern practices to induce remission to no avail. I had j-pouch surgery 5 years ago and it was the best health decision I have made to date. The surgery and recovery can be difficult, but it has been worth it. No urgency, no pain, and no more medications. I live on a diet of fresh fruit and vegetables, foods I had to limit when I had UC. I recommend you visit www.j-pouch.org There are over 5000 j-pouchers on that site that can lend support, knowledge, and experience.