Questions about reversal?

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Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 3/19/2006 3:18 PM (GMT -6)   
I have been reading your posts about ileostomy reversals. I want to go talk to my doctor about it. Is it risky? Painful? Do you have the risk of Crohn's disease coming back? I'm really scared but I really want to be normal again. I have a wonderful man in my life who doesn't care that I have the bag on my stomach and my bum sewed shut. I know I should talk to my doctor and I am but I wanted to get the opinion of some people that have had it done. Most of all, is it worth it? I didn't even know it was possible until I started reading your posts. Thank you.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 3/19/2006 5:56 PM (GMT -6)   

It's possible if you have a temp ileo.  If you have a permanent ileo with the entire rectum removed, the j-pouch surgery is no longer an option.  The traditional j-pouch surgery is done in two steps, the first step is the removal of the colon, and the creation of the j-pouch from 6-9" of the small intestine.  The entire rectum is removed leaving a 1-2cm cuff that is connected to the new j-pouch. The anus is not sewn shut and a temp ileostomy is given for an average of 3 months.  The second surgery only involves closing the temporary ileostomy.

This surgery is performed on patients with UC or have Crohn's disease limited to the colon.  It's typically not done in Crohn's regular patients as Crohn's can manifest from the mouth to the anus thus not providing a cure for the disease.

I hope I have answered your question!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 3/20/2006 11:33 AM (GMT -6)   
Thanks Sue. That's kind of a hard blow but I guess I still have my life, my daughter, and a wonderful, supportive man in my life who doesn't seem to mind my condition. So I'll probably cry a little and get on with my life. Thanks again.
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