Sounds like an ocean in my stomach, but wont come out..

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mom23
Regular Member


Date Joined Mar 2006
Total Posts : 82
   Posted 3/23/2006 2:56 PM (GMT -6)   
Hi everyone, Does this happen to any of you? I take soooo many laxatives everyday and I can honestly "hear"  liquid stools in my colon, but nothing will come out!  Its almost like I can "feel" where the colon is dead.  Does that make any sense?  Everything is liquid in the right side and then nothing from the traverse colon on down.  I dont know if I mentioned earlier that I had my sigmoid colon removed a few years ago with my hysterectomy because my surgeon thought this would help the constipation. It seemed to for a while but its worse than ever now.  Is this what colonic inertia is? Nothing will "move things along?"  I'm just soooooo miserable.   Also, do you think its necessary to go to a specialized hospital like Mayo clinic or Cleveland Clinic that I have heard good things about? We have a wonderful University hospital here, but i'm not sure if I needed to go someplace that specializes only in colonic inertia.  Thanks!
 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 3/24/2006 9:03 AM (GMT -6)   
I did not have colonic inertia but my understanding of the condition is that patients of CI just don't have the peristalisis that moves waste along the colon and out the rectum.  I don't know if there is treatment, other than surgery, for difficult cases.  I don't know if you are considering surgical intervention or just continued treatment but the Cleveland Clinic would be ideal for either.  If you are considering surgery there are hundreds of very qualified CR surgeons around the country that would not involve as much travel, that is if you don't live in Ohio.
Many CI patients get a j-pouch (which is what I have due to UC) and again, that surgery can be performed anywhere by a qualified surgeon.  If you choose to go that route, do your homework on the surgeon.  I can give you some tips if you like.
 
Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


mom23
Regular Member


Date Joined Mar 2006
Total Posts : 82
   Posted 3/24/2006 4:35 PM (GMT -6)   
Thanks Sue,  I would love to know how you went about finding a good surgeon.  I have heard nothing but good things about the Dr. here, but i just always wonder how necessary it is to travel to "the best" hospitals and clinics.  It is such an inconvience. Thanks for your help.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 3/24/2006 8:31 PM (GMT -6)   

I recommend that you visit www.j-pouch.org and ask your surgeon question on that board.  There are 5000 j-pouch members on that site who have a vast knowledge of all things surgical.  Let them know what city or state you live in and I guarantee you will get very good surgeon recommendations.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Emmaleigh
Regular Member


Date Joined Jun 2005
Total Posts : 183
   Posted 3/25/2006 9:57 AM (GMT -6)   

Most of us with colonic inertia just had the large intestine removed and had the small intestine hooked up to the rectum. By doing the procedure this way, you eliminated the need to have a J pouch.  Things work pretty naturally after that, I have a normal stool about every day or so.  Although I am the rarity because most people still go about 2-3 times daily.  They think I have some inertia of the small intestine too which is why I still move rather slowly! :)

Hugs,

Emma


mom23
Regular Member


Date Joined Mar 2006
Total Posts : 82
   Posted 3/26/2006 12:00 PM (GMT -6)   
Hi Emma, Did your Dr. do any testing of the small intestine before your surgery?  I have heard some that have had that and others did not. Does this cause you to have reflux or any upper GI problems then?   Thanks

Ald
New Member


Date Joined Mar 2006
Total Posts : 13
   Posted 3/27/2006 12:23 AM (GMT -6)   
Hi.  I have the same problem with the loud girgling and liquid moving around, but nothing will pass.  I have taken laxatives and it seems not to do any good.  I have the Chronic Inertia diagnosed with the slow transit study. 

Annette

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