daughters ostomy

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canadianmom
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/25/2006 8:31 PM (GMT -6)   
  hello everyone I am the mom of a 16 year old girl that has the surgery everything went well and she is feeling so much better she is handling it very well. the only problem we are having is ...that the flange keeps leaking we are using up the supplys left and right and have little coverage. does anyone have any ideas what we can do she is starting to get frusterated and she is doing so well I dont want her to discouraged? thank you  

Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 3/25/2006 10:04 PM (GMT -6)   
Sometimes it takes some experimentation to find the right appliance type for her skin. She doesn't have to stick with the brand and type that she was given in the hospital. Go to the manufacturer's websites and ask for as many free samples as they will give her.

http://www.coloplast.com
http://www.hollister.com
http://www.dansac.com
http://www.convatec.com

They're the main manufacturers.

Also, does your daughter have an ostomy nurse? If she doesn't, ask her doctor to refer you to one. They're an invaluable source of information for new and existing ostomates. She'll be able to look at the way your daughter applies her bags and give her feedback on better ways of doing things (if there are any). She'll also be able to recommend products that may help.

In the meantime, make sure your daughter's skin is DRY before applying the wafer. Have a look at http://www.ostomates.org/leaks.html for some more hints on how to stop leakages.

Good luck to both of you.

Shaz
I have had an ileostomy for 30 years now due to UC.
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


canadianmom
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/27/2006 1:12 PM (GMT -6)   
HEy shaz thanks so much I will look at all the info you gave me and yes she has an ostomy nurse and she is doing what she can but we dont see her that often so its hard thanks again for the infor and I will keep you posted              canadianmom

Medic Frank
Regular Member


Date Joined Oct 2005
Total Posts : 37
   Posted 3/27/2006 4:12 PM (GMT -6)   

I had the same problem when I was first fitted. I had so much frustration! I came here pleading for help and got a lot of good advice that helped me deal with the problem. The Hollister brand that I used would leak at the drop of a hat. I found that if I used a hair dryer to heat the flange after it was applied that it would help the adhesive hold longer. I also used the stoma paste and the eakin seals. I used those when I noticed the flange was starting to pull away. I would jamb a little piece of the eakin seal in the hole or squeeze some of the paste in it to help it hold a few more days. In the end I was getting 4-5 days between changes. I have to say here that I could not have gotten through my frustration if it were not for the wonderful people here on this forum. You will find that these are some of the nicest folks you will ever encounter!

Best of wishes for you and your daughter!

Frank


canadianmom
New Member


Date Joined Mar 2006
Total Posts : 3
   Posted 3/27/2006 11:55 PM (GMT -6)   
thanks so much Frank we are doing all that ......but never thought to but more paste when it starts to lift l have to try that one
Its was so bad this one day she was walking home from the store and the whole thing just fell off as she walked and that is with doing every
thing you said .....she still has the nurse once a day because of this problem so that means a 1/2 day at school. the surgey was Feb 4 2006 I will keep you posted and thanks again canadianmom jacki

Michele16
New Member


Date Joined Mar 2006
Total Posts : 6
   Posted 4/12/2006 3:37 PM (GMT -6)   
Hello "canadianmom".

I wish I had seen your post earlier but hopefully I can give a bit of advice that may help your daughter. I have the same problem with the pouches not sealing. Even now after 6 weeks it's a guessing game everytime we do a change..will it last or won't it. Luckily I have some inventive people around me who really want me to be able to get around and not worry about it falling off. First, I am also in Canada, living in B.C. I don't know your province or income situation but have you looked into social assistance, if you're low income, as they should cover the cost. Also you should check at Mental Health or ask your pharmacist to put your daughter under Mental health so they are covered. I would say the stress alone would qualify her under mental health to get coverage. This is no reflection on her mental condition and I do not mean to insult anyone. It just makes it easier for patients to get their expensive supplies that they must have and aren't able to afford. I work in a pharmacy so am aware of some options for you. It will depend on the province you live in. Also keep all your receipts as you can claim all of the expenses on you income tax.

I had my ileostomy due to a surgery complication so I was totally unexpecting this when I woke up. It was a huge shock and I still have trouble coping. I am 43 years old but quite young in spirit and very active. I have 2 teenage children and we love to keep busy. This totally changed my life style with the pouches not sealing. I am afraid to go anywhere now. So people around me gathered what they could to help me get out. The thing I finds the most handy is a maternity belt that holds up the pouch. The stomach part is curved so if the pouch leaks it holds the stuff in. If I'm really worried I put a heavy menstual pad with a curved edge (not a flat or winged one) over the pouch and with the maternity belt to hold it in place. I also have a undergarment for incontinance with gathered edges so if the pouch leaks it will hold it. But I prefer the maternity belt. You can also use a tensor bandaid with the menstrual pad.

I also don't go anywhere without my bag of goodies. I have 2 hand towels for leaks, a couple curved mentrual pads and tensor bandaid, and my cell phone with at least 6 numbers to call if I get a leak and need help right away. These people know my situation and have said to call anytime for quick help. I don't carry my ostomy supplies as I have only done one change (my husband does all them as I can't see the hole anyway) and it took me 45 minutes to do my own. I live in a small town and it is 10 minutes from anywhere to my house so I can get home way quicker then I can do a change where ever I'm at.

I hope some of this helps. I can sure identify with the problems your having. I hope your daughter recovers quickly. Will she be getting a reversal done? I will keep her in my prayers ands hope everything works out.

michele16

lifebegins
Regular Member


Date Joined Jan 2006
Total Posts : 72
   Posted 4/13/2006 9:57 AM (GMT -6)   

Hi Canadianmum :-)

Although I no longer have the bag it took me 10 months to finally find a way to help stop the bag leaking.

First I stopped changing the bag in the mornings. I had a bath last thing at night before bed then made sure the area was completely clean and dry, (Im sure you do this anyway). I would lay on the bed as flat as I could and do the bag change, always using stoma adhesive paste. I found the less adhesive paste the less likely it would leak, to much held the bag away from my skin. Once I had done the complete change I would go to sleep. I found by doing this I gave the bag a good 8 hours to set while I was sleeping and not moving about. Also by bedtime most food and drink had already passed through into the old bag which meant the new clean bag wasnt having to deal with waste. NEVER drink anything before a bag change or soon after a bag change the liquid will loosen everything. By doing this last thing at night my stomach wasnt bloated from having eatten, so putting a bag on when your stomach is at its flattest sticks better, rather than having a bloated stomach and stretched skin. 

I hope maybe something here helps. Lifebegins :-)


Had UC 2002 - 2005
Meds: Prednisolone, azathiaprine, asacol, fosamax, predsol suppositories, asacol suppositories, predfoam, painkillers, aloe vera juice, special diet ect.
Whole colon diseased, annemia, dhydrated, weight loss ect.
Had 1st operation April 2005, 2nd operation February 2006.
Feel great, aged 29, married,want children now.
Everthing that is crossed out no longer applies to me thanks to the operations.

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