Started transit study today......

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mom23
Regular Member


Date Joined Mar 2006
Total Posts : 82
   Posted 3/26/2006 11:53 AM (GMT -6)   
Hi everyone,   Sorry for having all these questions, but I just dont know where else to go with them. I started my transit study today and will go for an x-ray tomorrow, wed., and fri.  I am so backed up already, I dont know how I'm going to get through this week.  I keep running things through my head like what if all the markers are still in there and they dont suggest a colectomy?  I have honestly taken every laxative, enema, and colonic that I can.   It's like I'm nervous that they will say I have to have one and at the same time nervous that they will say I dont.  I have never felt so scared and vulnerable and alone in all my life. sad   For all of you who have had the surgery  a while ago, are you still glad you did?   Thanks for ANY help you can provide.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5691
   Posted 3/26/2006 4:40 PM (GMT -6)   

One of the biggest reasons to have this surgery is to improve quality of life.  If your quality of life is poor, you are a candidate.  Although we both have different reasons for looking at surgery as an option, I also wondered if I was considered "sick enough" to warrant the surgery.  After years of rationalizing my declining health, giving up the activities I enjoyed, I thought maybe I hadn't suffered enough.  Your feelings and concerns are normal. 

Yes, I am very grateful that this option was available to me.  I would do the surgery over again if it meant having my life back.  I wish now that I had it done sooner, I stayed sick too long and gave up 2 years of my life being sick.  That was 5 years ago.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


dip
Regular Member


Date Joined Mar 2006
Total Posts : 45
   Posted 3/26/2006 4:57 PM (GMT -6)   
I just want to say that I agree that people should get surgery if it would improve their quality of life.  My doctor just told me on Friday that he wants me to go for the J-Pouch surgery.  I am very scared dont get me wrong, it is just that I have been sick for so long, and my whole life was taken from me. 

Diana DiPaolo(DIP)


mom23
Regular Member


Date Joined Mar 2006
Total Posts : 82
   Posted 3/26/2006 7:23 PM (GMT -6)   
Well right now, my quality of life is pretty much at a big fat ZERO, so surgery can only make things better I would hope.  I dont know about the rest of you, but this is just so mentally draining..... all the uncertainty and questions going through you head every minute.  I know I will have my answers on Friday, I just have to be strong to get through this waiting. Thanks.
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