Hemmorrhoids and Excessive Weight Loss after Reversal Ileostomy

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Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 3/28/2006 4:51 PM (GMT -6)   
Hello!  I had my ostomy reversed on Dec 20, 2005; since then I having bowel movements 6 to 8 times daily.  Whatever I eat goes right through me.  I was told to eat whatever I want and to keep my weight up.  I am 5'5 and 112 lbs. I lost 20 lbs since my reversal.  Since my BM's are so frequent, I developed horrific hemmorrhoids.  My doc prescribed me a foam to apply 4x's daily, but it is not working.  Has anyone else experienced something similar and if so, did anything work?  Before I decided to have my large intestine removed in addition to surgery pertaining to my pelvic floor, I had read numerous forums where alot of individuals experienced chronic constipation for years, nothing seemed to relieve the constipation, after having a series of medical tests (colonoscopy, sitz markers, defacography) tests, my large intestine removed and connecting the small intestine to the rectum, one would feel better than before.  My surgeon said it would take a year or two to feel better, but I feel that I am worse now compared to before.  I have no energy, completely exhausted, I miss shopping, the movies, traveling with my daughter. All I do is lie in bed all day and all night.  Just too drained to do anything.  I am taking Lomotil 3x's daily to slow down BM's.  I just feel like I am dying slowly and being punished.  Is there light at the end of the tunnel? 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 3/28/2006 9:44 PM (GMT -6)   

I am sorry you are having a difficult time with your recovery.  I had the surgery for UC and it took me a full year to recover, I took naps every day after work in that year.  But for me, I started putting on weight because I was no longer sick.  Your frequency is not all that abnormal, mine was 20X per day for the first few weeks and slowly over time it dropped.  What are you eating?  Have you tried keeping a food log and measuring transit time?  Are you currently underweight?  Have you had a CBC and checked for anemia or B-12 losses? 

I think whether sick or well, this surgery or any other major surgery, will take a toll on the body.  Fatigue is common in the first year.  Your body has been assaulted and needs time to heal.  It takes a long time for the small intestine to learn how to act as a colon.  Be patient, listen to your body, take good care of yourself and make sure you are eating well.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 3/28/2006 9:58 PM (GMT -6)   
Thank you Suebear for responding to my post. Yes, I do keep a food journal and the transit time after what I eat. At first, I weighed 132 lbs and now I am 112 lbs. Like I said whatever I eat (no meat) just baked, broiled, grilled fish, salmon, tuna fish in water, egg whites, bagels, turkey and cheese sandwiches, weight gain strawberry shakes, they go in one end and out the other. I just want to get better for myself and my family. I drink lots of water Fruit 2 0 with vitamins and minerals, no soda, milk (Lactose intolerant since my surgeries), tea. I just want to be normal again. Be able to eat healthly, have maybe 2 to 3 bowel movements daily compared to before, and definitely no hemmorrhoids.
I want to return to work, but it does not look like anytime soon. My employer won't allow me to just get up and run to the bathroom unexpectedly especially since my BMs are unpredictable right now.
THanks Again! Suebear for your quick reply. It is very much appreciated.
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