Success Stories After Reversal Ileostomy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 3/29/2006 10:56 AM (GMT -6)   
  tongue Hello!  Are there any success stories out there after having a reversal ileostomy?  I suffered for years with chronic constipation, after seeing doctor after doctor, specialist after specialist, I finally found one colectal surgeon that was willing to order a series of tests to determine what is causing this problem.  Unfortunately, I never did a complete research on the pros and cons of having laparoscopic assisted subtotal colectomy with ileal rectoscopy and rectopexy done, especially not knowing the complications that could occur during the surgery or thereafter such as having several blood transfusions and then emergency surgery the next day for abdominal hematoma of the right kidney.  Hospital admission after hospital admission one thing after another for malnutrition and dehydration installation of a PIC Line for a Total Parenteral Nutrition feeding 14 hours a day up to the night before my reversal ileostomy.
 
Is it normal to lose excessive weight, lose your hair, have total exhaustion, BMs 6 to 8 times daily, hemmorrhoids after a reversal ileostomy?  At what point do you start feeling better, like a normal human being?  What are the chances of having additional problems after the reversal such as infection, blockage, or having to get the ostomy bag back?  What is the standard recovery period in which you have normal BMs, eat regularly, have fun with family, have a beer or two no hard liquor, and work?  I feel worse now than I ever felt before.  Is there anyone out there that has had a reversal for more than 15 to 20 years and is doing better than before their surgery?  I am depressed and worried about never feeling better again. 
 
Angel Baby sad
 
 

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5380
   Posted 3/29/2006 12:42 PM (GMT -6)   

Yes, there are thousands of us who are very happy post reversal.  I think you should really post your question on the www.j-pouch.org board.  Although that board consists mainly of j-pouchers, the surgery is similar.  As I mentioned before, this is a very difficult surgery to recover from and you need to be patient with the recovery but continue to research the weight loss especially if you are consuming adequate calories.  If you are limiting your food to limit your freqency that can contribute to the loss.  There is a nurse on the other board who also has a j-pouch and is very knowledgeable with problems.  There are also many people on that site with 10+ years of history. 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 3/30/2006 10:40 PM (GMT -6)   

tongue  Sue Bear, you are a lifesaver!  Thank you for replying to my post.  Thus far, you have been the most informative and supportive person here.  I will follow-up with your information.  And continued happiness and good health to you!

Angel Baby

 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, July 29, 2014 9:42 AM (GMT -6)
There are a total of 2,182,282 posts in 242,690 threads.
View Active Threads


Who's Online
This forum has 153829 registered members. Please welcome our newest member, Natalie569.
455 Guest(s), 28 Registered Member(s) are currently online.  Details
LeftyW, mallardmark, knotreel, DontStealMyBacon, 81GyGuy, Natalie569, PeterDisAbelard., jan1952, Pirouette, ppm guy, Guardian7, Andrina, My Anxiety Life, poplargrove, Nicolas, themiz, PamSmith, lesweet1971, hrpufnstuf, 1stLymester, gavin92, Trapjaw78, laikalr, InTheShop, lmazy1, jacket fan, Myself 09, ElleMM


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer