You might want to switch from lomitil to Imodium. Sometimes one works better than the other. Are you taking Metamucil? It will provide bulk, if you opt for the powder follow the directions on the container but only use about 1/4-1/2 cup of water. Many people like the wafers better but you could experiment.
It took about 6 mos for me to eat fresh fruits and vegetables without them speeding through my system. It takes time for the body to slow down. Some foods work better than others, peanut butter made me worse as did applesauce, however others have had great results with them. Keep a food log. Try new foods, if they don't work, try them again in 2-3 weeks. Log results. Eventually you should be able to have a full and varied diet. I live on fresh fruits and vegetables now but it took a while to achieve this. As for weight loss you can try bulking up by using powders or drinking high calorie shake drinks. They make them dairy-free so you should be able to tolerate them.
Sorry to hear you are having these problems. I had the reversal ileostomy 10 weeks ago just like Cathy and I eat everything.
Certain foods like salad and chinese do go through a bit quicker, and curry and chilli do cause some bottom burning for a day or so, but I still eat them. I take 10ml of immodium syrup before bed but thats all.
Have you seen your doctor about this? Maybe he has a different medicine you could try to stop you going so much. I was told when I left hospital that eatting marshmallows sometimes helps slow things down.
I wish i could be more help. Let us know if you have any luck.
Hi Angel Baby,
I had my ileostomy for 20 years..I am now 20, i also had my surgery 4 months ago. I had the ileostomy since i was a week old so things are taking longer for me to slow down. I still go from 8-15 times a day but that is a lot better than it was when I first got home from the hospital. I'm not really in pain anymore so that's good too. Here's what i do that I think really helps. I take 2 imodium quick disolve tablets with breakfast and two with lunch, then three with dinner and three before bed. It gets expensive since they arent prescription but it helps so thats what I have to do! I tried lomotil but it actually made things worse. My mom read up on it and learned that there is an ingredient in lomotil (cant remember what its called) that for some people causes them to go to the washroom more instead of slowing it down. So please try the imodium it works wonders for me. As for dairy causing you to go more, you should get checked out to see if you are lactose intolorent..i talked to someone who became LI after their reconection..it has something to do with not having the colon anymore.
As someone else stated, marshmellow are really good..they help slow things down with me and they taste good! I stick them on a fork and roast them over a candle haha..it takes a while but they taste better that way!
Also, i'm having problems with weight gain as well but I was resently told to have a slice or two of bread or toast with every meal because thats really fatening. Becuase I can't eat fruits or veggies due to high fibre content, I've been taking 'One a day', its a vitamin suplement for women and i've had a lot more energy since I started them.
Keep me posted on what's going on..I think we're close to in the same boat!!
Hello jman...I'm new here. I had my take down on 1/17/07 due to a tumor on my rectal canal. I have a j-pouch and of course no rectum. Do you also have a j-pouch? I had the same sypmtoms as you did the 1st couple weeks and now I'm ok but I go the bathroom 5-6 times a day and it's been roughly 5 weeks since my take down. In your email can you be specific when you said "after a while I started to notice changes and now I'm perfect" how long from take down did you started to notice changes and that you're perfect? Can you give me a timeframe? I'm getting depress over this...I felt a whole lot better with the temp ileo. Please advise..
I had a little over a foot of my colon removed in April ... it was the sigmoid or last part of the colon. During the time I had the ostomy I learned that peanut butter, applesauce and bananas were helpful and marshmallows were a life saver. For weeks after the closure of the ostomy and until 6 weeks ago no one had told me this is the part of the colon that de-hydrates the stool so I had a terrible time with diarrhea. I now start the day with peanut butter on an English muffin and take a product similar to Metamucil (Colon cleanse made by Health Plus sold at GNC and it contains pure psyllium husk) in capsule form. The purer the product the fewer capsules you have to take. I take these capsules every time I drink or eat and swallow them with as little water as possible. Think as if the capsules are little sponges. I have found that the key is to absorb the excess liquid in the colon with foods that bulk up and to take the psyllium to absorb the water that I drink with the meal. On occasion I need to take an Imodium to increase the liquids that my colon is absorbing or eat 4 marshmallows to slow down the flow through the system. I increased the number of capsules until my stool became sluggish and then decreased the amount of capsules until it was not enough and then found a happy medium. I also decreased the amount of liquid but started to become de-hydrated so then I started taking one or two capsules with each glass of liquid I would drink between meals. I also found that if I exercise, sit in a hot tub or do anything that makes me sweat it triggers the colon to absorb more liquid and I can drink more.
This is what is working for me and I pray that this is some help to you.
May God Bless,
Post Edited (Defiant) : 7/3/2008 3:26:31 AM (GMT-6)