sub total colectomy

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pamelajayne
New Member


Date Joined Apr 2006
Total Posts : 4
   Posted 4/20/2006 8:56 AM (GMT -6)   
 i am due to have my op on 19my have had a illeostomy now for 4 years has anyone had to go from having a stoma to a sub total colectomy can you tell me what to expect. I have been told that i will have to go into icu that scares me. The surgeons have said that it can take you up to 9 months to be able to eat and have control i am wooried that i will be messing myself that thought does worry me i was paranoid when i first had my bag that people could smell me of course they couldn't. Also deos your bum get sore i have read alot about bum burn any tips.

Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 4/20/2006 10:25 PM (GMT -6)   

Hey There! PamelaJayne

First GOOD LUCK on your May 19, 2006 surgery.  I had a subtotal colostomy.  At first, I was shocked to see that I ended up with an ostomy bag. It took alot of time to get use to it.  I worried about getting an infection.  I did everything my surgeon instructed me to do as well as my ostomy nurse and my home visiting ostomy nurse.  My stoma decreased in size big time after having it for three months.  However, I had skin irriation around the stoma under the flange.  It kept leaking under the flange and just irriated my skin aroung the wound to no end.  All I did was follow the instructions from my surgeon and prayed that I would have this reversed in no time.  It certainly took alot getting used to it.  I had my husband sleep in the spare bedroom because I didn't want him to bump me or kick me during the night please I had weird sleep patterns and I haven't worked since the initial operation in Sept. 2005.  I am always fatigue and running to the bathroom, losing weight, and just stopped losing my hair.  I eat six times a day (small meals) because I do not want to encounter an obstruction.  However, I have been experiencing terrible hemmorhoids off and on. I believe it is from what I eat.  I don't eat red meats just seafood and turkey breast lunch meat.  I do drink weight gain drinks with water because since my reversal I have become lactose intolerant.  I cannot drink soda, beer, or juices that contain acid such as Orange Juice not even butter, peanut butter, mexican or chinese food   When I have a BM, the stool is foamy and burns my bum as well. 

My surgeon told me I would have 7 to 8 times a day BMs but it would simmer down to 2 times a day in about a year or two.  He said I must be patient.  I learned from these forums to log what you eat and mark down the reaction to what you eat.  It will help you in the long run.  I have not returned to work yet because I still have not been able to control my BMs not knowing if it is going to be gas or an actual BM.  Some people return to work in a matter of three months or better.  But everyone's recovery period is quite different.  I could not drive a car for almost three months because I was weak and didn't know when I would have a BM.  Right know I cannot go anywhere for long period of time.  99 percent of the time, I am home either in bed or running to the bathroom.  I am positive about my recovery and hope to live to be 90 years old.  I am glad I had the surgery and I know you will do just fine.  Meanwhile, if you should experience a sore bum, I took warm baths, vaseline, and calmine lotion.  It helped better than the doctor's prescriptions. 

 

 

 

 



Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 4/21/2006 12:36 AM (GMT -6)   
Do you mean that you're converting from a temporary ileostomy to a permanent colostomy?

If so, ask your doctor (or better still, your stoma nurse) if you will be able to irrigate in the future. This could mean you don't have to wear a bag, just give yourself a water enema once every 24 - 48 hours which returns all the stool at once. You should have no output the rest of the time. If your stoma nurse doesn't believe in irrigation (and unfortunately, there are some who don't) find one who does.

Stool from a colostomy will be much firmer than that from an ileostomy because there is large bowel left to absorb some of the water from it.

I'm not sure what you mean by " The surgeons have said that it can take you up to 9 months to be able to eat and have control" You should be able to eat about 4 - 7 days after your op (as soon as there are bowel sounds). Some colostomates can learn to control their output by what they eat but this does take time and even if they don't achieve this control, they can wear a bag full time and it won't really matter anyway.


"Also deos your bum get sore i have read alot about bum burn any tips."
You shouldn't be passing stool via your bum with a colostomy (or ileostomy). Sometimes you may pass mucous but this is normal and you will probably be experiencing this now with your ileostomy anyway.

Angel Baby: "I have not returned to work yet because I still have not been able to control my BMs not knowing if it is going to be gas or an actual BM."
If you wear a bag full time, this really should not matter in the course of the day. I have an ileo and as such, am unable to control when it works. But really, it doesn't matter because it all goes into the bag anyway. Is there something else other than this preventing you from returning to work? Please do not let this prevent you from working or going anywhere. Everyone goes to the loo. We go a bit more frequently (the average for an ileostomate is 4 - 6 times a day) but even so, if it's more, just excuse yourself and go. There's no need to be ashamed of it and people aren't going to think any less of you just because you have to go to the loo. I can understand how the fatigue would prevent you from going out, but please don't let your ostomy control your life in the same way.

Best of luck.

Shaz
I have had an ileostomy for 30 years now due to UC.
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


BARWICKBEARS
New Member


Date Joined Apr 2006
Total Posts : 1
   Posted 4/30/2006 5:25 PM (GMT -6)   

Hello everyone. I've joined this forum today because putting it simply I am frightened. Last week my wife underwent a sub total op for colonic inertia. In the recovery period, I have seen her in agony, despite the morphine for relief, and wouldn't wish what she has been through on my worst enemy. To set the scene, She has passed soft stools in the last 2 days, but today she began vomiting bile. She never vomited bile pre op and tonight she was being aspirated via a tube through her nose into her stomach to help clear the build up. X ray results are awaited as I type. Food intake has been restricted to spoonfuls of soup, though earlier today she had a few bites of ham. Is the bile vomiting a common post op reaction and something that can be cleared with drugs? I understand the x ray was to determine if there is a blockage, or twisting. If so, how would this be treated. Could it mean yet another op? confused

Ashley

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