reversal of ileostomy help/advice needed please

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karl1958
New Member


Date Joined May 2006
Total Posts : 3
   Posted 5/23/2006 4:57 PM (GMT -6)   
 hello everyone, my name is karl i'm 47 and new here. can i have some advise, i had my colon taken out in jan this year due to a gene alteration from my grandfather which meant having a ileostomy. i have now had the reversal in april ( great no more bag) so i thought but i am now getting a lot of trapped wind which is painful and i tend to go to the washroom around 6pm onwards and will not go bed til 12/ 1 am when i feel happy and (empty)can anyone give me tips on reducing the trapped wind and what is the best thing for that sore backside. many many thanks  karl 

Post Edited (karl1958) : 5/24/2006 4:56:35 AM (GMT-6)


Midwest Phil
Regular Member


Date Joined Mar 2006
Total Posts : 43
   Posted 5/24/2006 6:29 AM (GMT -6)   

Karl,  I am about in the same boat as you, so welcome aboard mate.  I had my take down on April 21, 2006.  Yes, I experience excessive wind down there too which isn't necessarily a problem unless you choose to dispatch it.  Then as you know, there's no test firing on this one.  Either it's wind or wet.  Yuck.  Anyway, I have been using some Gas X tablets, and they really calm things down.  Usually I only have to take one a day when I get real gassy.  Also, of course, watch what you eat.  If you are like me though, you probably are about tired of rice, potato's, bread and banana's. 

Did you have a J-pouch?  If so, there is a great J-pouch community that helped me alot with the butt-burn issue.  The biggest key is to get it under control first, then it's easy to do maintenance to avoid another round of it.  I tried alot of cremes down there.  I've used the Calmoseptine which is good.  The only downside is the menthol that is in it.  Sure it feels good after awhile, but if you are raw, YIKES when it first goes on.  The hospital sent me home with Aloe Vesta made by Convatec.  It doesn't do too bad.  Kind of a mellow creme that doesn't really burn, just kind of coats the skin.  Then the J-poucher's recommend the ilex creme.  I ordered some over the internet.  I like it also, except it becomes really sticky, so down in the nether region, you have to coat it with petroleum jelly.  Otherwise when you wipe, you're paper doesn't come back out.  Sorry, but that's the way it is.  I will give it credit though, it hangs in there.  It won't come off until you are in the shower or tub and use soap and alot of water to get it off. 

Hope that helps and keep me updated as to how you are doing. 

 

Phil


karl1958
New Member


Date Joined May 2006
Total Posts : 3
   Posted 5/24/2006 12:19 PM (GMT -6)   
hi thanks for that but you mention GAS X TABLETS what is the proper name for these or is that the name because i WILL try anything for the trapped wind , the behind is not too much trouble i only get a sore BH because i am going loo lots to only have a RABBIT POO as it were, when i have no wind which is not very often it is good and i can go for a good one if you know what i mean,  regards  karl

Midwest Phil
Regular Member


Date Joined Mar 2006
Total Posts : 43
   Posted 5/25/2006 1:16 AM (GMT -6)   
Karl,  The tablets I use are called Gas X and are usually found at the pharmacy along with all the gas and diaretic items.  Also there is one called Beano which is suppose to be very good also.  Most of these apparently work in the stomach, but if you nip it in the stomach before it gets to the small intestine, you are miles ahead.  I also know the feeling about the "Ghost Poo's".  With all the gas you feel like you really have to expel and all's you get is a break of wind.  Good luck to you.  Phil

karl1958
New Member


Date Joined May 2006
Total Posts : 3
   Posted 5/25/2006 1:38 AM (GMT -6)   
thanks a million phil, i will go out this morning and buy buy  buy yeah   will let you know the results. cheers karl

jbpatt
New Member


Date Joined May 2006
Total Posts : 4
   Posted 5/25/2006 1:42 AM (GMT -6)   
Hello everyone,I'm jbpattineedtoknow.I had my colostomy reversed in March 2004.After this reversal I developed fistulas,as of to date I'm still babysitting these fistulas.This is just some information that I felt you might need to know.I didn't want you to think I was just prowling about the chat room tongue ! I have tons of informations about-colostomy-colostomy reversal-pick lines-fistulas-colostomy products-ostomy products and many other topics relating to these areas!I've been in this paradox for 3 years yeah .So I have some experience,and I would be glad to give any information that I have, to you yeah .So post up,or contact me by email? jbpatt
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