You probably won't know the right bag for you until after your op and you have experimented with a few different ones, no one bag suits everyone, that's why there are so many different ones out there. Your stoma nurse will probably help you out with that one so try not to worry too much about it until the time comes. They will also introduce you to the various products available for ostomates. You can ask your stoma nurse for a sample bag so you can put it on and determine the best place for your stoma beforehand if you like.
You don't want your stoma above or on your waist line if you can help it because that can interfere with the wearing of jeans, belts, etc but with the help of a good stoma nurse who will watch you walking, sitting, the types of clothes you wear, etc and then mark the spot accordingly, this shouldn't be a problem.
We were all new to this once and had the same fears as you. Rely heavily on your stoma nurse and come and chat with us frequently and we'll help get you through this as best we can.
Thank you for your reply.I know that it will all turn out at the end,when I have had a chance to look at all of the different bags.I am just a little nervous over the whole thing.I just can't help but think of it.I have told a few friends of mine that I am really close,and they tell me that I will be fine and not to worry.It is easier said then done.Years ago I used to work as a Nurses Aid,and would work every day with people who had a Colostomy.Back then,I remember that they ugly and very noticeable. I know that they have come a long way in the medical field these days.I do know a lady that had one years ago,and she said that she would not reverse it,if she had to.They say that I will have to get used to a different life style.Could you please tell me in what way will my life change,except for the bag?
Once again,thank you for responding to my cry for help.I am glad to be in touch with other people who have had it done.
You are so very helpfull.I am glad that you are the one who responed to my cry for help.Since you had your ileostomy so early in life,I guess you have been through a lot.I hope that you will remain the one that I can always communicate with over internet.
I don't remember if I told you or not,but my surgery is scheduled for this Friday afternoon.It is going to be over at Johns Hopkins Hospital,so I know that I will be in good hands and I have a great doctor.I know that it has been a long time for you,but do remember how long a person is in the hospital for a colostomy these days?The docotor says about three days,the doctors nurse,says about four to five days and the ET nurse says usually about seven days.I would like to get an idea of how long,so that,my husband can go about his business,when I get out.
You sound like very brave person.You sound like a person I can look up to for a lot of advise in the future,even though I have a Stoma Nurse.
I am the kind of person that likes to sleep on my stomch or my sides.Will I have to wait a while before I return to those positions?I have read up on it a little bit on the computer.But I would like your opinion,please.
I am not looking forward to the prep. the day before the surgery.
Thanks for you help once again,
Hello Walking Scared,'
I am so sorry that you are going through all of this. I did not see if you mentioned if you has UC, Crohn's or something else.I was just wondering if your doctor has talked to you about other options besides just an ostomy. For instance the internal pouch where you use a catheter to drain your pouch a few times a day. There is the BCIR or the Kock pouch. I have the BCIR, you can learn more about it at www.bcirostomy.com. I had my surgery July 2005 and it was the best thing I have ever done. I have my life back finally. After years of UC. I intubate 3 times a day. One when I wake up once during the day and then at bed time. I do not need any supplies except the catheter. It saves me time and money. It takes me at most 5 minutes to empty and then I go about my business. I can wear a bikini if I wanted to. I wont, but I can if I wanted to. I do not have to do anything special when I go swimming either. I just put on my bathing suit and go. My 'stoma' is to small you cannot even see it. And it is not raised like the stoma of an ostomy. It is flush to my stomach. My husband says it looks like I have 2 belly buttons. Actually you cant even really see it unless yow know its there. There is another girl on here who had the same surgery as me and has said it is the best thing she ever did as well. It is nice not to have to worry about bathrooms anymore. Unfortunately it is not usually available to Crohn's patients.There is another surgery called the j-pouch. I cannot really say to much about that because I don't have it, but I can tell you that I decided against it for many, many, many reasons. You can learn more about that at j-pouch.org
If you have any questions just ask away. I am just so glad to be happy and healthy again that I want to tell the world. I would if I could.
When I logged onto this web site,never expected to get this much support.I hope that one day I can as helpful to someone else as you have been to me.
I know a little bit more as to what I might have to go through,thanks to all of you,that have responed to my cry for help.
I have been told be many doctors that I had Crohn's disease.I kept going to several different doctors,because I did not want to except it in my mind.I finaly found a doctor that said I don't have Crohn's disease,but maybe another problem.With the doctor knowing that he sent me to specialist of in Baltimore,and that is were I was detected with a fistula.The doctor does want to put me through a series of tests.He said that he will just dig deep when he is in there.
When I went to the the specialist,we really did not talk that much about what he was going to do,because he himself did not really want to say,not knowing what he was going to find once he got in.He did say something about the size of my belly button.I don't know whether he meant that he was going to try and keep it down to that size or what.I guess I will find out when I wake up from my surgery.I hope that my Stoma Nurse is by my side when I wake up,or someone who knows exactly what was done to me,so that they can explain it to me.
I spoke to my Stoma Nurse a little while ago,and she is going to meet me in the pre-op room before I go up,so that she can go over the different kinds of bags that I can choose from.I know that she will be working with the doctor in the O.R. room,so I guess she will know what kind of bags,tubes,and etc.,that I will need.
I am trying to get myself ready for the hospital stay,but I don't know where to start.My stomach is tied in knotts,and my mind is racing faster that I can think.So far I am doing fine on my liquid type light diet for today,then tomorrow I start with the good stuff,if you know what I mean.I know that I will scared until I am put under.If I asked for something to calm me down,do they usualy give it to you,to help settle down you stomach before surgery?
I will try to get back on line to talk to you tomorrow,if I can,in between my bathroom trips.If for some reason I do not get back in touch with you,I will try to get on the internet as soon as I feel comfortabe sitting up and get moving around again.Once again,thank all of you for your help.
Hi Walking Scared,
I am thinking about you and your upcoming days. I know you will do very well. My two sisters, both RNs, told me that the best thing I could do for myself is to walk as much as possible after surgery, as soon as I can. It strengthens your body, gets your bowels on tract much quicker, and keeps your lungs clear. I walked as much as I could! I had a Demerol Push IV. So I would save up a push, and when I got back from a good long walk around the ward, I would give myself a push and rest a little. Then I was up again, walking! The doctors and nurses were amazed at how quickly my bowels returned and how well I was dong. They praised my walking and attitude, saying that is what was making my recovery so quick!
They will give you something to calm your nerves before surgery. You can even ask them for something. Do you have any family who can be there with you? I know that would calm me down! If not, just pretend that I am there, and I will be your family.
Keep me posted as much as possible. I do care about you and your well being. Get well quick!
God bless and stay well,
Well,tomorrow is the big day.Some how I was able to sleep last night,but I know that I will not be able to sleep tonight.I will just lie there and all different kinds of things will flash before me mind.Every other time I have had surgery,that is what always happens.But I know that this time will really be worse.I try to put it out of my mind,but it just will not go away,no matter what I try to do.
It must be nice to have two sisters as a nurse.It is always good to have a doctor or a nurse in the family.
My husband will be taking to the hospital,but I do not know if he will stay back in the pre-op room with me that whole time.He is not a patient man,when it comes to sitting around waiting.I really appreciate your offer of the thoughts that you will be by my side and to be my family.I will take you up on the offer.I know that God is always with me,everywhere I go.I have found myself talking to him,more an more the past couple of days.
I will try and do what you suggested about getting up and walkling around and then coming back and pushing the Demoral button so that I can get some rest.I am sure that everything will turn out fine,because I have all of you rooting for me,and all of you prayers on my side.
I will have to be leaving my house about 8:00am,tomorrow morning,so I don't think that I will be answering anymore e-mails for a week or so.But if you would like to keep them coming,I promise that I will answer you back as soon as I feel like sitting up to the computer.
I really want to thank each and everyone of you that have responed to my cry for help with in the past week.Everyone has been so helpful.I may not personally know you,but I already concider all of you my friends.
So until I am able to return to my computer,thanks for everything.