Do I have Colonic Inertia?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 6/8/2006 11:20 AM (GMT -6)   
Hello Everyone,
 
This is my first post, after doing some reading on here for a little over a week. I'm really glad I found this board. I don't feel so alone now.
 
Anyway, I was wondering if any of you with Colonic Inertia think I might have it.
 
Here's my story:  I have been constipated all my life (I'm 35), except for about 10 years ago when I was diagnosed with IBS b/c of alternating diarrhea for awhile.  But then that stopped and I had constipation only.  Fiber products used to work for me, but then stopped.  So about 5 years ago, I started taking herbal supplements to "move" me because all the advertisements said they were safe and nonaddicting.  Well, over less than a year, even those stopped working for me.  So I tried colonics, and while that helped empty me out of a lot of junk that had been in me for who knows how long, it did nothing for my problem.  So then I tried epsom salts and magnesium, which also worked for awhile then stopped. 
 
Now, nothing seems to work.  What happens is, no matter what I take, it turns everything to liquid in me and sloshes around like a water bottle!!  I have hard feces stuck in my rectal area at the same time.  And LOTS of gas.  The liquid in me makes me feel really fatigued and weak, and sometimes my legs feel numb/weak.  It also makes me have severe anxiety and depression, for which I take medication, which I'm sure isn't helping the situation. As this bowel problems has progressed through the years, all these symptoms have gotten worse.
 
I saw a gastro doctor last year who did a colonoscopy and said I simply had IBS, and gave me Miralax.  But that didn't help. In fact, when I did the preparation for the colonoscopy with the Miralax, I had major trouble getting that out, and had to do a bunch of enemas, which as usual also got stuck in me and came out slowly a ton of times that night, and made my rear hurt so bad and my hemmorhoids really act up.
 
Does this sound like colonic inertia?  And do you believe that laxatives (herbal and synthetic) contribute to colonic inertia, especially if you have a weak/dysfunctional colon to begin with?
 
Do you think thyroid problems can make a person be this severely constipated?  I need to get that checked out.
 
I'm really scared and fear I may have to have surgery to remove my colon. But your posts have made me feel a little less fearful.
 
Thanks so much for reading this.  Any advice/insight would be wonderful.
KP :-)

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 6/8/2006 11:22 AM (GMT -6)   
P.S.  I forgot to mention I also tried Zelnorm but it didn't do anything for me.

Cathy W
Regular Member


Date Joined Aug 2005
Total Posts : 218
   Posted 6/8/2006 12:40 PM (GMT -6)   
Dear KP-
Your story sounds familiar to most everyone's here. Have you done a sitz marker test? It really is the gold key standard for diagnosing colonic inertia. It measures the amount of motility through your intestines over a specific period of time. That's where I would start if you haven't already done it.

Cathy W

Julz2
New Member


Date Joined Jun 2006
Total Posts : 2
   Posted 6/8/2006 12:56 PM (GMT -6)   
Dear KP~
I am as well a nubbie to this forum. I was dx with Colonic Inertia about 2 weeks ago. Had the sitz marker test, they were spread through out the colon, not in one spot. I went as far as an 8 day study, never passed one ring. I was not a happy camper to say the least. I just started taking AMITIZA...it is new and it is working ...I am also on Zelnorm.Mrylax, peri colace....ummm Mag. citrate when needed. I am a long time sufferer of IBS, 45yrs old female....also had a bout of gastroparesis(stomach stopped working) this was 10 years ago, used propulcid then, would love to get my hands on it now. It was taken off the market, can still get it IF you meet the critieria from the manufactuer. Anyway, sound like you got it bad as well. my colon Dr. wants to remove my colon to the rectum(6") above. I say let's try a 2nd opinion and Amitiza. I am getting blood work for thyroid & diabetic.....don't think that is an issue with me at this time. I feel for you, it is not fun at all!
Julz

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 6/28/2006 3:18 PM (GMT -6)   
Julz2, I was wondering if the Amitiza is working for you.
Thanks! :-)

creekgirl
New Member


Date Joined Jul 2006
Total Posts : 7
   Posted 7/6/2006 8:40 AM (GMT -6)   
Hi, it sure sounds like you have colonic inertia but of course that has to be decided by your doctor.  I had a lifetime of simillar problems and all the tests to rule out other things and as a last resort had a colectomy. The surgeon removed about 7/8 of my large intestine and reattached my colon so I don't have a bag. It was the best decision I've ever made. It was done 7 years ago and until 3 months ago when I developed IBS, I haven't had any problems. And you can understand how wonderful it was to be regular (I remember too well how it was before that). I did have an intestinal blockage one time and was in the hospital for three days but thankfully I didn't have to have surgery...it resolved itself with rest and a gastro tube in my nose.  Now if I go more than a day without a BM, I start drinking lots of water and resting. Now with IBS, my stomach has hurt for three months but now that I know what to do, changing my diet is helping a lot. Sure hope you get some relief soon. Take care of yourself and don't be embarrassed to keep asking your doctor (or another one) until you get some help.

KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 7/6/2006 9:39 AM (GMT -6)   
Creekgirl,
Thanks so much for your post. Wow, you've been through a lot, bless your heart.
Sounds like you can relate.  I'm glad you've been doing so much better after your surgery. Let me ask, how can a person develop IBS if they have no colon?  I didn't know IBS could occur in the small intestine?  What have you been doing differently in your diet that is helping? What were you eating previously? 
As for me, I haven't had any tests yet for various reasons, but I will do that as I can. Am trying some other things right now, to see if anything helps.  Having the surgery will be a last resort, as it was for you. But reading about everyone on this board's experience with surgery has been encouraging me a lot. And so have you.
I really hope you continue to improve with your IBS.
Thanks again for your post! :-)
 

creekgirl
New Member


Date Joined Jul 2006
Total Posts : 7
   Posted 7/14/2006 7:20 PM (GMT -6)   

Dear Kap,

You know, I've been wondering lately about that very subject: can I have IBS without a colon? I have an appt with my gastro doc next week and I sure will ask him. I bought a really good book by Heather Von Vorous called "IBS, the first year". I've tried to eliminate all dairy and animal fat and it seems to help a little. I just don't feel like I have the "typical" symptoms of IBS. I'm also going to ask my GYN next month about my problems. My 12 year old grandson seems to have inherited my colonic inertia but he's doing fairly well on Zelnorm. I tried EVERYTHING before my surgery and I'm just so thankful it helped so much. I pray you'll find some help and if you do have a colectomy that it will be a success and you'll heal completely. My surgeon said that I might have a temporary bag but thankfully I didn't. This is such a wonderful site...it reminds us that we're not alone. Take care and don't get discouraged.

Sincerely,  Creekgirl


KAP
Regular Member


Date Joined Jun 2006
Total Posts : 78
   Posted 7/21/2006 1:19 PM (GMT -6)   
Creekgirl,
Thanks SO MUCH for your post. You are very encouraging. Please keep me posted on how you're doing, okay?
Take care,
Kap :-)

creekgirl
New Member


Date Joined Jul 2006
Total Posts : 7
   Posted 7/28/2006 9:12 AM (GMT -6)   

Hi,

Hope things are better for you.  I've tried the Zelnorm but it gives me diarrhea so I really think watching what I eat is going to help more than anything. I did find out from my gastro doc that although most IBS is in the large intestine, it can be in the small intestine also. So I guess that's what I've got. I found out that stress really does make it worse...my mother passed away three days ago.  But when your heart hurts, the stomach pain doesn't seem as important. But I think I don't have IBS as bad as some people; I'm thankful it's never been bad enough to go to the ER. Take care of yourself.

Best wishes,

Creekgirl


peace4lennon
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/27/2008 10:44 AM (GMT -6)   
Hey everyone,

When I saw see these posts, I immediately registered on the site. I could really use some help :(
I'm 13 years old, and I've been dealing with constipation and stomach pain for over a year. I'm also nauseous all the time and don't have an appetite.

I went to the emergency room 5 times last year. I've had a barium swallow, two endoscopies, two colonoscopies, x-rays, MRIs, ultrasounds, CAT scans, allergy tests, etc. I went on a gluten-free diet (failed). I eat more than 150% of the recommended daily value of fiber (for an ADULT); doesn't help. Been using Miralax for months (failed). Taken laxatives in the form of pills and liquids and such (failed). Enemas used to work, but lately they haven't helped much.

I've only been diagnosed with Irritable Bowel Syndrome, but there is so little stress in my life that I don't understand why I've been feeling so horrible (especially within the past 2 weeks). I'd been a happy, healthy vegetarian for over 2 years, and 6 months ago became a vegan. I felt better when I cut out dairy and eggs, and had no pain or constipation for about 6 weeks. But then it came back.

I'm so tired of being in pain. I'm sick of missing school.
I'm hoping, just for the sake of finally being diagnosed with something real, that I have colonic inertia. Does it sound like I do?

Thank you!
-Lauren


I almost forgot to mention, I've taken a couple different prescribed medications for my constipation, but they made me so nauseous I couldn't eat for days.

mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/27/2008 11:49 AM (GMT -6)   
Does your mom know how you feel? I would love for her to read this post to see how badly you are feeling and how much you need to find answers. I would be love to problem solve with you but no advise can be given by me without one of the folks involved.

peace4lennon
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/27/2008 12:10 PM (GMT -6)   
Yes, my mom knows (I read my post to her and told her about the site). Both my parents do. We're doing everything we can, but it's getting too hard for me to handle. I'm going to New York City this coming friday to see my gastroenterologist, are there any questions I should ask her? Maybe suggest a sitz marker test?

mcmom1234
New Member


Date Joined Mar 2008
Total Posts : 16
   Posted 4/27/2008 3:20 PM (GMT -6)   
The number one thing that helped me is to keep a log book on what I felt like daily. Is there any thing that makes it feel worse or better. Have you done anything walking or lifting that makes it better or worse. This makes it easier when the doctors ask you many crazy questions. Also keep track of the doctors you have seen with their names, hospitals and addresses and test that you have had done. Keep track of the test test results so no test is redone unless needed. If you go to other doctors this is a great tool.
You hold in there there is help from the medical field out there. I hope you find some help from your doctor on Friday and let us know how it goes.

peace4lennon
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 4/27/2008 7:49 PM (GMT -6)   
Those are some good ideas, thank you :) I'll be sure to tell you how it goes.

peace4lennon
New Member


Date Joined Apr 2008
Total Posts : 4
   Posted 5/4/2008 1:30 PM (GMT -6)   
I'm getting a sitz marker test this week! :-)

ReneeB777
Regular Member


Date Joined Jun 2010
Total Posts : 24
   Posted 6/15/2010 8:06 PM (GMT -6)   
hey everyone,I'm Renee. I'm new here as well. :) just came across this website and am so grateful,all the info here is really encouraging and it helps so much to know I'm not alone. :) I'm 17 years old and have been sick for going on 3 years now,and after reading all of this info I'm really thinking I might have colonic inertia. I've been to so many doctors and they diagnosed me with IBS,(I.E,they have no idea what's wrong,but I had a colonoscopy and was told everything looks normal)my question is,if it's nerve damage,can they even tell that from a colonoscopy?
I've been taking miralax for a little over a year and a half now,and it has helped me at first,but I'm afraid it's starting to not work anymore.I really am afraid of what will happen if it stops working,because nothing else seems to help,idk what I would do.I was hoping I could ween off of it slowly and switch to benefiber,just because I've been reading about miralax and negative side effects associated with long term use. this really scares me because I really don't think I can stop taking it. does anyone know if miralaz eventually stops working? also,is it harmful longterm? is there anyone here who has been taking it for a long time(years) with no ill side effects? any responses are really appreciated.my doctor seems to think i'm making everything up just because my colonoscopy was "normal." idk what to do anymore,esp. now that my doctr basically is telling me I'm fine.I wish all of you good luck.:) hopefully we can all figure this out.

honestwoman50
Veteran Member


Date Joined May 2009
Total Posts : 833
   Posted 6/16/2010 1:28 PM (GMT -6)   
KP,  Hello and welcome.  You sound a lot like I did before surgery...YEP get the Sitz Marker test...when you take laxatives and such and they don't work , then you can hear all the slouching around in your colon, and the bubbles rolling, cramping , pain, nausia...when the stuff you are taking no longer works, could mean like me that you colon is not working any longer.  No meds or anything over the counter worked for me.  Many made me sicker, and it was costing me a fortune trying all this stuff.  So if you have insurance ask for the test and that will give you a more difinative answer of what is going on with you.  Trust me I feel your pain ...
 
Leslie
Leslie King
 
  1984 Tubligation  1992 Diagnosed with Thyroid tumor    
1993 Gallbladder Removed  1997 Hysterectomy  1998 Carpol Tunnel 
 1999 Spinal Cord Surgery for a Anacroid Syst
2001 Lower Lumbar Fusion L4-5  
2003 Sigmoid Colon Resection
 2006 Right Knee Replacement 2005 Breast Reduction
 2008 RE-did the Lower Lumbar Fusion/ lamanoctomy
2010 DX: colonic Inertia/ Pelvic Floor Disorder
2010 Total Colectomy ABD W/O proctectomy; w/Ileosto
 
  

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 10:29 AM (GMT -6)
There are a total of 2,858,432 posts in 313,641 threads.
View Active Threads


Who's Online
This forum has 155238 registered members. Please welcome our newest member, madmike.
625 Guest(s), 9 Registered Member(s) are currently online.  Details
Hopeful86, Doggiedo, Casa11, Kat1000, VLou*, Ox123, Jim48, Melg, hopelessinmo


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer