Are you having the surgery for UC?
Yes, the Cleveland Clinic is outstanding for colorectal surgery. If you live in Ohio that would be the ideal choice.
I had the surgery for chronic refractory UC 5 years ago. My life is 100% better today and I have not lost a day of work due to illness since then. In fact I am so healthy I have put on 20lbs more than I should be carrying!
Life is great!
KayKay, I had a subtotal colectomy in October of 2005 and had the reversal in February 2006. On April 21 2006 I had the take down so I am 8 or 9 weeks post surgery. At least my experience I fell a whole lot better. I won't say 100%, but definately better than when I had the U/C. I've had a few rough weeks after the surgery but about week 4 it started to come together. I am at the stage now where I am trial and error on food, and for the most part, lettuce and tomatoes are a no no for me. Other than that, I'm relatively flexible. I take immodium as I need it, and my Doc today started me on some probiotics to help out. He won't see me now for another three months after todays appointment and has released me back to full duty at work. I went back to work 4 weeks after the take down and didn't have any problems, as long as there was a bathroom available.
I won't lie and say it was a cake walk because it wasn't, but I get better each day and look forward to each week because I am getting better and stronger. Hang in there. Phil
No, if your rectum is atrophied you will get a j-pouch which is what Midwest Phil and I have. A j-pouch is considered a false rectum and functions as a resevoir for waste. The typical surgery for colonic inertia is just to remove the offending colon and attach the small intestine to the rectum. I think your life will improve dramactically with the surgery!
I, too, suffered over 11 years with chronic constipation known as a slow transit colon until finally someone actually ran several tests and said either you can continue to live with the lifestyle you have been horribly living day in and day out, or the doctor said I can make you 95 percent better in the beginning although you might be having 7 to 8 bowel movements a day without a prescription, over the counter laxative or worst of all, a daily enema. All of the above stopped working over a year ago. I opted for the surgery. Although I had a complicated surgery lasting 9 1/2 hrs, and the second day another 5 1/2 hours for ER surgery for blood clots, then three months with a temporary ileostomy making me depressed believing that I would not have my ileostomy reversed, which I eventually did. It was all worth it. Once your small intestine assumes the responsibilities of the large intestine, plus process of elimination of what you could eat and cannot eat for the time being, and don't forget the burning bumm from diarrhea, it will all work out in the end much better than all those years of constipation which nothing seemed to help you have a pain free bowel movement. I am still recovering and I am trying not to let it control me. I am trying to control it so that I could eventually return back to work without having to run to the bathroom every time I eat something. Just make certain to keep yourself hydrated with plenty of fluids. I cannot drink sodas or certain juices, but I do drink alot of Propel Water with Calcium.
I hope all goes well for you and keep a positive attitude going in for your surgery. It will all work out for you. You have to believe in yourself and trust the doctor performing the surgery. Then everything else will fall into place. Read all the forums. You are not alone!
Good Luck and Keep Us Posted!
I also suffered from cronic constipation for 8 years before they started doing tests and found out that my colon on the left side was non-funcionable. They said I needed to have the partial colectomy. I did in August of 2004 and things were great for almost a year. I was going every day with no pain and then all of a sudden the pain, and bloating came back. I then went in for a coloscopy where my doctor determined that the rest of my colon was no good and I had to have a total colectomy. I had my total colectomy on July 7th of last year and have never felt better. The fact that they had to go in and do the total was very disapointing after all I had already been through and it is very rare aparently but I figured that I would let you know that even after all of that I would do it again in a second if I had to. I feel great most of the time and you adjust to eating certain foods that don't go through you so fast. I go atleast 4-5 times a day and I would much prefer that to the pain and suffering I was dealing with prior. If you have any questions feel free to ask since I have gone through this experiance and it was not all fun but definutly worth every minute.
If you have a bag, you either have a colostomy bag or an ileostomy bag. You have a colostomy bag if you keep your colon. If you don't have your colon, you need an ileostomy bag. I had a colectomy last year and I don't have a bag. With a colectomy, the colon is removed, and the small intestine is attached to the rectum. A colectomy allows you to have a bowel movement on your own, almost like normal. If you can, I would recommend asking your physician about a colectomy, first. I had colonic inertia, a motility disorder, and was constantly constipated.
I have the same diagnosis as you...slow transit, slow motility and chronic constipation...I am having total colectomy Aug 11...can you tell my how your surgery went? how long did it take to feel normal? how was your recovery?
Has anyone out there had a trouble-free colectomy? Just surgery, no complications, no more constipation/gas/bloating/pain? If so, please tell me how your recovery went. I will have only 4 weeks before I have to go back to work. At this point, I'm most concerned about the pain and the frequency and consistency of bowel movements. I'll ask my doctor this question, but does anyone know if they cut through any of the abdominal muscles? My surgery will be done laparoscopically. The surgeon described it as four 1" in. cuts (two on each side) and a cut from my naval to the pelvic area. Has anyone had that experience? Thanks so much for talking to me about this.
Mine was done laparascopically.....I have four inscisions. I have two to the side of my belly and one in my navel and a six inch inscision below my bikini line. I think every surgery has its own little complications. I have been back to work since middle of april and although the firsst couple weeks were hard with fatigue I have done great. I worked long 13 hr days and still was able to do it after a three month leave. I had to take a hike to the bathroom, but it all works out. I have not had any accidents and it has given me my life back. I had complications and still deal with some issues, but it was a life saver for me.
I'm not sure what the 'barium' pill was that you had to swallow. Are you sure it's not a SITZ marker capsule? It's just a capsule with a bunch of little rings in it but no barium.
I had my subtotal back in September. It was done laparoscopically, so there wasn't much pain at all. I had the surgery done on a Monday, was brought back to my room at 6 pm and was up walking the halls by 11 pm. I was discharged that Saturday and was back to work within a month.