Burning in my stoma

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Hoping2BWell
Veteran Member


Date Joined May 2006
Total Posts : 537
   Posted 6/15/2006 10:52 PM (GMT -6)   
Before my colostomy, I had the most horrible burning in my "sit-upon". I had Crohn's Disease in my sigmoid colon and throughout my rectum. Evey BM caused horrendous pain to my "you-know-what". I had my colostomy and now have been pain free in the "A-hem!"
 
Problem is, now, with every BM, I have that same horrible burning in my stoma!
 
I had a colonoscopy last month and my doctor said everything was looking good, biopsies were fine. Could there be Crohn's acting up in the descending colon (that had been disected from the sigmoid colon and moved to the abdomen to be my stoma)? If the colonoscopy came back good, why am I having such awful burning in my stoma.
 
I also have pancreatitis and am taking Protonix to inhibit acid production so that the pancrease capsules I take with each meal will not be broken down by the stomach acids. Do you think that perhaps there is a lot of acid in my stomach that is causing the burning to my stoma? I just don't know what to think! I just don't know how to stop this awful burning.
 
Has this happened to anyne else?
 
Please let me know as this burning is bothering me very much.
 
God bless and stay well,
 
Madelyn


I am in my 50s. Crohn's Disease (since childhood), pancreatitis, diabetes, neuropathy, arthritis, chronic fatigue, fibromyalgia, asthma, Rosecea. I have had 4 surgeries including pancreas/sphincterplasty, duodenum, resection, proctectomy with sigmoid colonectomy. I have a permanent colostomy.___________________                 ____________________
There's nowhere I can hide that God can't find me, nowhere I can go that God can't help me.

Post Edited (Hoping2BWell) : 6/15/2006 10:55:29 PM (GMT-6)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 6/16/2006 7:39 AM (GMT -6)   

I imagine if your scope didn't show disease that the burning is unrelated to the Crohn's and is probably your medication.  You might want to ask your doctor if you could stop taking the medication for a few days to see if it is the culprit? 

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Hoping2BWell
Veteran Member


Date Joined May 2006
Total Posts : 537
   Posted 6/16/2006 8:40 AM (GMT -6)   

Thanks Sue for answering my questions. I am about ready to try almost anything!

What is the difference between J-pouch and colostomy? I was not given an option, I just woke up to a colostomy! I had a colostomy due to proctectomy and removal of the sigmoid colon.

Again, thanks for answering my question. I appreciate it.

God bless and stay well,

Madelyn



I am in my 50s. Crohn's Disease (since childhood), pancreatitis, diabetes, neuropathy, arthritis, chronic fatigue, fibromyalgia, asthma, Rosecea. I have had 4 surgeries including pancreas/sphincterplasty, duodenum, resection, proctectomy with sigmoid colonectomy. I have a permanent colostomy.___________________                 ____________________
There's nowhere I can hide that God can't find me, nowhere I can go that God can't help me.


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 6/16/2006 10:28 AM (GMT -6)   

A j-pouch is a false rectum created out of the small intestine and allows similar bowel function to a healthy colon.  The j-pouch procedure is offered to patients with ulcerative colitis as that disease is limited to the colon and rectum only.  It can also be performed on Crohn's patients if their disease is limited to the colon (Crohn's/colitis). I hope that answers your question!

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Hoping2BWell
Veteran Member


Date Joined May 2006
Total Posts : 537
   Posted 6/16/2006 10:37 AM (GMT -6)   

Hi Sue,

Yes, that helps with my understanding. I was not given a choice (my Chron's was in the sigmoid/rectum area and so maybe I should have had that option!) I only know how the colostomy works rather than the J-pouch works. I imagine waste is captured and held in the "pouch" and then emptied in similar fashion to the colostomy. My colostomy sits just left of my naval and my "bag" is pretty large. My Stoma is 1 1/2" (that is the size of my wafer and bag, anyway.) I can't picture where or how the j-pouch sits, though!

Thanks!

God bless and stay well,

Madelyn



I am in my 50s. Crohn's Disease (since childhood), pancreatitis, diabetes, neuropathy, arthritis, chronic fatigue, fibromyalgia, asthma, Rosecea. I have had 4 surgeries including pancreas/sphincterplasty, duodenum, resection, proctectomy with sigmoid colonectomy. I have a permanent colostomy.___________________                 ____________________
There's nowhere I can hide that God can't find me, nowhere I can go that God can't help me.

Post Edited (Hoping2BWell) : 6/16/2006 10:39:29 AM (GMT-6)


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 6/16/2006 1:05 PM (GMT -6)   

No, a j-pouch does not work like a colostomy/ileostomy.  A j-pouch works like a rectum.  We eliminate waste in the same manner (through the anus) that we did with a colon/rectum.  Because we have no colon, our ability to hold waste is decresed making bathroom trips more frequent.  I am surprised this wasn't given to you as an option?

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Hoping2BWell
Veteran Member


Date Joined May 2006
Total Posts : 537
   Posted 6/16/2006 9:29 PM (GMT -6)   
I don't know why I wasn't given the option! Do you think it was because I had my rectum and sigmoid disected and left inside for several months to try and give it a rest to see if it would heal. I awoke with a colostomy. Instead of healing,  it just got worse, and so we decided to get rid of it. It was too far destroyed and would never heal enough to be usable, and it just hurt so much, so I said, "Will it ever be usable?" Both my GI and my surgeon said it could never be usable again, so I said "Let's get rid of it." My doctors said it was for the best. So I went back to surgery and had them removed. I awoke with the same colostomy.  I will ask why I was not given a choice.
 
God bless and stay well,
 
Madelyn


I am in my 50s. Crohn's Disease (since childhood), pancreatitis, diabetes, neuropathy, arthritis, chronic fatigue, fibromyalgia, asthma, Rosecea. I have had 4 surgeries including pancreas/sphincterplasty, duodenum, resection, proctectomy with sigmoid colonectomy. I have a permanent colostomy.___________________                 ____________________
There's nowhere I can hide that God can't find me, nowhere I can go that God can't help me.

Post Edited (Hoping2BWell) : 6/16/2006 9:32:25 PM (GMT-6)


Cleo
Veteran Member


Date Joined Apr 2004
Total Posts : 992
   Posted 6/17/2006 10:54 AM (GMT -6)   
I just got out of the hospital because of burning in the stoma. Had a colonoscopy while there and I have active disease about 6 inches in. I can actually see ulcers now on the outside of the stoma. GI has me taking a new antibiotic every 10 days. BAck on pred and entecort and methotrexate. Remicade is no longer effective so was fighting to get humira approved. We won the battle and I will be starting that next week.

This so blows. Next option is the chop shop again and a new stoma. grrrrr
Cindy 
 
Life isn't like a bowl of cherries, it's more like a jar of Jalapenos... What you do today, might burn your "butt" tomorrrow!


Hoping2BWell
Veteran Member


Date Joined May 2006
Total Posts : 537
   Posted 6/17/2006 12:56 PM (GMT -6)   

Thanks, Cindy, for your reply and information. I was afraid that this might be Crohn's involvement in the Stoma. My GI says that my colonoscopy last month was looking very good! I can't imagine that within one month there would be involvement in such a degree that my stoma would be burning. :(( I guess I should call my GI and ask him what I should do. Sometimes, I think he thinks I'm making stuff up! Oh well....

God bless and stay well,

Madelyn



I am in my 50s. Crohn's Disease (since childhood), pancreatitis, diabetes, neuropathy, arthritis, chronic fatigue, fibromyalgia, asthma, Rosecea. I have had 4 surgeries including pancreas/sphincterplasty, duodenum, resection, proctectomy with sigmoid colonectomy. I have a permanent colostomy.___________________                 ____________________
There's nowhere I can hide that God can't find me, nowhere I can go that God can't help me.

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