I don't have an answer, I only had my ostomy for 8 weeks, but I really want to encourage you to see a GI and get an evaluation of your stoma. Sixteen years is a long time to go without an evaluation! After that you should meet with an ET nurse. Ileostomy products have changed a lot since you had your surgery and I am sure you would find the newer products, tips, and overall support from an ET nurse to be invaluble. As for the odor, there are drops that are made for ileostomy bags that all but eliminate the odor. You can either find them from your local drugstore that sells ostomy supplies or purchase them online.
I went to an ET nurse this morning, the first time I have had any kind of follow up or check up with my surgery for 16 years! I am glad I went, she showed me several new pouches that I hope I will like better than what I am using now. Anyway, she said it looks to her like I have a hernia but that it wasn't bad enough for surgery. She said losing some weight may help the looks of it some. She told me I could go to my surgeon, but that he most likely would not do anything since it is not causing me any pain or any physical discomfort. My only problem with it is cosmetic, I am so self conscious of it and try not to wear anything tucked in. I am not going to bother going to the surgeon, I feel it would be a waste of his time and mine. She told me to just keep an eye on it and if it started causing me physical problems, to contact her or the surgeon.
Well, that 's about it.
Thanks for responding.
My belly protrudes on the left/stoma side - has ever since my colostomy 6 months ago. Actually it was more swollen and has gone down a bit over time, but still noticeable to me.
I'd love to see an Xray or scan that shows EXactly how the surgeon brought my colon to the surface. Can't help but think that perhaps bringing an excess UP to the stoma causes the bulge. I know the surgeon's objective was to preserve as much of the intestine as possible after removing the rectum and anus... but surely he didn't loop it around or something to give me more digestive time?! Oh well ... it's there ...
When I occasionally get "dressed," underwear with a little spandex and support panty hose make the uneveness passable. Otherwise, elastic waist shorts/slacks and tops worn out work just fine. At 2 months post-op I purchased a maternity swim suit, which I've worn all summer.