I have had my bag lose it's seal and mess me up! I have had it while sleeping and also while up and about. I lamented over this "stinky" situation in the past, and I got a couple of answers. One seemed to work, so here goes:
I was told that I no doubt had too much acid in my tummy, going through the "pipes" and then to the bag. The acid was causing the seal to weaken, and then let go. My doctor prescribed Protonix (a Proton Pump Inhibitor) and I have been taking it ever since. My wafer has not lost it's grip since!
Another scenario has just jumped into my head! Could you have tossed and turned, flipping and jostling the bag while you slept? Could it just have been bumped loose?
I know that once, my bag just kept filling up with liquidy *stuff*. I kept emptying it, and it kept filling up. I was having a bad day. Eventually, it filled up too much and the bag popped off of the wafer. Could the bag have gotten too full while you slept?
I know this all sounds silly, but maybe.....?
God bless and stay well,
I'm Judith am my husband had an iliostomy surgery July 5th due to a tumor in the colon. After a very rough recovery he is doing better. we had MAJOR leaks every night after he came home on the 9th. Hollister makes a great bag with seal and the colostomy nurse showed us how to build up a funnel system using to discs molded together to form a volcano shape to funnel the waste out into the bag. They also told him to use the belt to help support the bag at all times. We also use a sticky wax ring to fill in his bellt crease to make a flat surface for the bags seal otherwise the seal would fold into the crease & weaken the seal. NO MORE LEAKS since we've used this method & its been 5 days & nights with us having done the last change & 4 days & nights when the nurse showed us how to do this. the order number for these are as follows # 3612 First choice drainable pouch with clamp. The clamp looks like a chip clip for snacks BUT works GREAT. # 79520 Convex Barrier Rings 20mm We use 2 to get funnel action. Then eakin cohesive seals for the body putty stuff. Unbeilevable difference . hope it helps !
Does anyone have website to go to get diet info for people with iliostomies ? Ive searched but no luck. the surgeon told us that my husband will not get many nutrients from his food because the tumor was high up in the digestive tract then ran off to another patient & left us flat. We don't see her for another 2 weeks & the nurses said we have to talk to the Dr. ARRRGHHH !!! Cancer is FRUSTRATING !! he has had histio sytoma for 5 & 1/2 years with all kinds of terrible diagnosis from you have 3 months to live , to we will most likely have to amputate your leg from the hip down. None of which happened SO my advice to anyone who has been given a diagnosis HEAR IT, STAY CALM, NO FEAR, PRAY PRAY PRAY & live life like you would want to before the diagnosis as long as it won't hurt your health & educate yourself wisely , go with your intuition. we ignored that, over Dr. advice & one year later they are doing what we asked for 12 months prior. Don't get lost in the system . take your health in your hands. Ok Ive babbled on enough but thanks for this support system it is wonderful. Judith
If you give me your email address I can scan a copy of the diet for ileostomies and email it back to you. If you are not comfortable doing that you can go to www.jpouch.org and there is a whole section on diets for ileostomies, but I'm not sure how detailed it is. In addition to that, your husband's ostomy nurse should be able to give you at least one pamphlet on diet guidelines. If your husband was seeing a nutritionist while he was in the hospital he could aslo contact him/her and get a diet there as well. Good luck and stay positive. I find that at the age of 24 (almost 25) and having experienced kidney stones, my stomach opening after my staples were removed, and a blood clot in my small intestine that damaged my stoma causing chronic blockages for a while, all in a period of 4 months it is my attitude and determination not to let my health get the best of me that has allowed me to make it through everything without having a complete breakdown! "The nearer the dawn, the darker the night; by things going wrong all things must come right." -Longfellow-
Yes, my insurance covers my ostomy supplies 100%. I guess I am lucky!
On my mother in laws advice I ordered a mattress pad thing from Sears over the web. She also has an ostomy and sure enough twice I have had a night time leak but this pad saved my mattress and washes up easily with my sheets. It is vinyl or plastic underneath but on top it is cotton or something with some absorbent layers. Only cost $30 and well worth it. It is a fairly large rectangle and once it is in place under my sheets I was still quite comfortable (not sweaty from the plastic).
Check Sears web site under medical aides, stuff like those bath chairs etc.