One bag gone, one to go!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gbrux
Regular Member


Date Joined Oct 2005
Total Posts : 65
   Posted 7/27/2006 7:43 AM (GMT -6)   
Hey everyone - had my second op on 7 July.  Had hoped it would be the last but it turns out they only created the pouch during that op (first op was 15 Feb in emergency following toxic megacolon after 2 years of UC - and left me with a sigmoidostomy a ileostomy ).
 
In June they removed the sigmoidoscopy and the rest of my colon and now I have the ileostomy while they are waiting for the Jpouch to heal up. I am waiting for the reversal around end September.  I have been very poorly in the last week - feeling extremely faint and tingling with a tight band round my chest under my arms.  Blood test yesterday showed v low potassium and I was told off for not taking immodium to reduce the output of the ileostomy (I completely forgot to take the immodium!).  Luckily I had been drinking gallons of vichy water so was not (quite) dangerously dehydrated - especially as it is in the mid nineties here in Belgium and has been for week.
 
In the last op, the surgeon removed even my rectum as it was still so diseased.  He kept the anus and the muscle around it and expects me to be fully continent after the next op.  I am losing a milky like fluid from my anus.  I am fine during the day when I have a pee or empty my bag but at night I can't control it and have to sleep on a towel.  I am scared that I will be incontinent afterwards and have to go back to the ileostomy for life.  Any words of encouragement?  I do my exercises - sit and squeeze my bum muscles whenever I remember!
 
Thank you!
gillian
 


wmnak
Veteran Member


Date Joined Jul 2006
Total Posts : 1123
   Posted 7/27/2006 11:46 PM (GMT -6)   

It seems, from posts on the UOAA Discussion forum, that the mucous discharge from the rectal stump is quite common.  I'm sure someone with experience will be along shortly to explain.  Since I no longer have a rectum or anus, I can't be of much help.  Good luck with your Jpouch and reconnect!

:-)   Martha
New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, October 21, 2017 11:51 AM (GMT -6)
There are a total of 2,885,198 posts in 316,570 threads.
View Active Threads


Who's Online
This forum has 157689 registered members. Please welcome our newest member, Killjoy123.
370 Guest(s), 10 Registered Member(s) are currently online.  Details
Cigafred, KRSPY, Hoagie, OptimisTick, FlowersGal, gabybee, dbwilco, PA_grandma, Happier!, kodaska


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer