It’s been a while since I’ve been on this forum. On April 28th 2006 I had a colectomy (SI connected to the rectum) and felt amazing about 3 weeks post opt. I continued to feel great for a couple of months then started feeling kind of ill. It ended up that I kept on obstructing and after the 5th time in the hospital I had surgery again to fix it. I was all twisted up and herniated. (This was 3 weeks ago BTW) ever since I have not felt well at all, not one day. I have severe distention & fullness, nausea and vomiting and very weak. I was given antibiotics twice for bacterial overgrowth but it doesn’t seem to be doing the trick. I feel awful.
I ended up in the ER two nights ago. They saw some dilation at the connection point of the SI and rectum but were unable to determine the problem (they actually said “we don’t know what to do with you.”) and sent me home. My GI is out of town and will be until the 6th. I’m so frustrated and feel like things aren’t going to get better. The bloating is so bad, I feel like I’m back at square one b4 my colon was removed. I’m back to wearing my big clothes and have become reclusive again. This is not me, but I feel stuck. Any ideas on what this could be?
I don't know where you are located, but would strongly suggest a consultation, 2nd opinion, from a certified colo-rectal surgeon. Check the internet for their professional organization, which will list those near you.
Anytime you are told they (the professionals!) "don't know what to do" it's time to move on! You should not be having to suffer like this. Something bad wrong here.
I had my surgery by Dr. Robert Beart at USC's Norris Hospital in Los Angeles. He is the top CR surgeon on the west coast.
You and I have very similar symptoms. I too spent my birthday at the hospital; I turned 32 this past June. I was also in the hospital for my first surgery in 2001. As for the bloating, I have had to temporarily quit my job because I have gained 5 pounds that I cannot explain. I am a fitness instructor and I cannot fit into the clothes I wear to teach because my tummy is so distended. I have been running 4 miles a day 4x per week and cycling 15 miles 3x per week. Nothing seems to help. My husband just keeps telling me to be patient but I cannot stand feeling this way. I can truly relate. I have tried gas x, digestive enzymes, beano, more water, less water, adjusting my diet, and meds.. nothing seems to help. I take that back, Reglan helped, but the side effects were awful. I felt like I was on a narcotic and I could not stay away while I was on the meds. My body was full of energy, but my head felt dizzy. I later read that is has neurological effects that can lead to Parkinson's disease so I stopped taking it. But, for those 2 days, my tummy felt better. It did not help with the weight.
If you find anything that works, keep me posted. In the meantime, I will look into getting something to bacteria.
Hang in there...try not to get depressed....and I will do the same.
I have not tried charcoal tablets. I wonder if they are binding. The last thing I need is to get backed-up, LOL. I have tried peppermint oil and it had no effect. These natural remedies probably work best on people who do not have complicated health issues. I have been reading a lot about dehydration and it can cause abdominal bloating and water retention. (The weight gain I have experienced has to be water weight because (1) I gained it during the surgery and (2) I do not eat enough to "gain weight") I am trying to drink more water and I need to get my electrolytes checked. Having surgery can alter your electrolytes which will cause weight gain. When I was in the hospital my Potassium was very low and they were giving me 4 bags a day of the stuff in my IV. Now that I am home, I am not sure if it has become low again. Also, dehydration can be caused by vigorous exercise. I have always been addicted to exercise so this is probably true for me. I drink about 60 oz of water a day but I am going to try to drink more and see if I can flush out my system. Also, I may try juicing all of my foods for a couple days to see if I can detoxify my body.
I am endeavoring to get better. I do have a supportive hubby. Although our love life is on hold and that is hard on him. We have been married for 11 years and I have been ill for 7 of them. I have 2 children whom I homeschool full-time. I used to work real estate in the evenings and on Saturdays but that is on hold for now. I refuse to buy larger clothes - although I did try them on at Target yesterday! I am only 9 weeks out of surgery and I know things are going to get better. I just hate feeling heavy and I feel like the whole world notices the change...but, I am sure they don't. My face is so full and my thighs are tight in my jeans - I hate that tight feeling! I am 5'6 and I was 118 when I went into the hospital and I came home at 122. I lost 2 pounds the first week home and I have gained 4 pounds the following week...I am now 124. I know this is not bad; I just do not like it. Danielle, I am sure you can relate.
I will let you know if there is a change for the better....