Hi mumins and all,
I just read your post from 9/25. I have been recently diagnosed with colonic inertia/dismotility. Your post caught my eye as I have fibromyalgia. What is the acute virus that you possibly got this illness from? Do your legs turn blue in the shower and sometimes taking a shower makes you so weak kneed that you jump out and dive for the bed? Do you have Raynaud's syndrome where your hands go from blue to white to red? Do you feel like your heart is going to jump out of your chest at times because it is beating so fast? Are you easily winded upon exertion? Are you cold the majority of the time, especially cold feet, hands, and nose? These are some of the things I deal with and was wondering if there was any similiarities.
I will be having my surgery in November. They are going to remove my colon and attach my sm intestine to my rectum. The colorectal doc is speculating that I've got nerve damage going on and is not sure how much of my colon is involved. I did the transit test and had 21 out of 24 rings left after 5 days. I know I have chronic pain on my left side which is where most of the congestion takes place. It looks like a lop-sided pregnancy when I bloat out. I have tried everything to keep things moving for the last 5 years and nothing seems to work any more either. Now I'm just doing the dulcolax to keep things pushing through...even though it is very slow. I will be seeing a gastroenterologist to evaluate my upper GI in a couple of weeks. Are you going through alot of pain also? Last night I could have done surgery on myself if it would have relieved the pain
Would like to,