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CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 11/5/2006 10:06 PM (GMT -6)   
hi all. i've heard from people here, and even my colorectal surgeaon, that an ostomy does not prevent you from leading an active, physical life. i am contemplating having a permanent ostomy due to complications with perianal disease caused from CD and colonic inertia (they cant save the rectum due to severe perianal disease). has any one had any problems doing weight lifting or yoga or martial arts? any tips or things to be aware of when working out? my biggest question though is with swimming. growing up in so cal i've been beach person my whole life and an avid surfer. will i still be able to do this no problem? i've heard on here people do swim with their ostomy. any tricks? should i just always use a wetsuit so i dont lose it? or do you use some skin tight clothing, like bike shorts, to keep the bag contained to your person? can i lie on my stomach no problem with an ostomy? did i miss anything?

crazy harry

Smiley Sim
Regular Member


Date Joined Aug 2006
Total Posts : 49
   Posted 11/6/2006 7:50 AM (GMT -6)   
Hi Crazy Harry

I go swimming pretty often. I just wear a tight band (wrap) over my bag to secure it in place. I think your idea of a wet suit is better though. The first time you go swimming is obviously goint to be alittle worrying, I thought my bag would just fall off after it got wet, but although it peeled alittle it didnt drop off or leak. I swim on my front alot, risk drowning if I go on my back, lol!

You don't sound like a person whose going to let this illness get in your way and nor should you. Have fun, live life the way you want. We've just got to get used to the bag thats all, its shouldnt compromise what we want to do.

As for any other strenuous exercise, just give yourself plenty of time to heal fully after any operation and you should be able to take up any form of exercise your like.

Smiles. xx
 


CrazyHarry
Veteran Member


Date Joined Mar 2006
Total Posts : 1034
   Posted 11/6/2006 9:07 PM (GMT -6)   
thanks smiley sim. i had surgery in july 2005 to remove part of the sigmoid colon due to a fistula going into the bladder, so i know all too well about being patient and waiting to recover before doing anything strenuous. i think i gave it 3 months before i started tai chi and 4 months for surfing and weight lifting, but even then i started extremely light and worked out at first without engaging the abs and slowly over a few work outs introduced more weight which would in turn work the abs more as the work out became more exhaustive and physical.

my biggest thing right now is the mental aspect - coming to grips that ostomy surgery is becoming more and more like a reality. the upside sounds phenomenal. i know there is adjustment periods, but shoot, people like us with chronic diseases are always adjusting and adopting new routines. it is getting used to a new inconvenience being permanent and i know with time it wont be an inconvenience anymore. the nurse i talked to the other week about this when i got a remicade infusion had a very positive outlook for me and on having an ostomy in general. the body image thing seems like the hardest, but i seem to feel that once i start heal from the surgery and get off the meds and (hopefully) begin to feel the best ever since all the diseased areas will be out of my system the body image part will just kinda go away for the most part cos i'll be feeling good and be able to reclaim my life and not feel like i am on the sideline anymore and start to check off things on the "to do list".
Crazy Harry

---------------------------------------------
Crohn's since 1993 (age 17)
been on every med available, currently on entocort, colozal, 6-mp, remicade
surgery in July '05 - removal of 2 inches at ileum and 8 inches of sigmoid colon (had fistula into bladder)
Nov '05 developed colonic inertia; has improved somewhat w/ adoption of organic diet (maker's diet)
now contemplating ostomy surgery due to severe perianal disease and colonic inertia


Smiley Sim
Regular Member


Date Joined Aug 2006
Total Posts : 49
   Posted 11/7/2006 5:19 AM (GMT -6)   
Hey harry,
 
Wow, get you....tai chi, weight lifting and surfing!! I've gotta say you sound like a really cool guy cool  
 
It does take a while to get used having a bag. Being a fashion conscious lady I worried about the craziest things...like...will i still be able to wear my favourite jeans? fitted tops etc etc. And to be honest some things I just can't get away with anymore. But its not all bad...now I wear even cooler clothes I wouldn't otherwise have considered.
 
And as for mentally accepting the bag and not being embarrassed by it...well I showed it to everyone straight away so that no-one would be left wondering. It helped, once everyone had seen it they just treated me normally instead of trying to take a sly peek! yeah
 
I've had my ileostomy bag for almost seven months now, and I've completely accepted it. I'm living a good life again and am happier than I was before this operation. It just changed my perspective on life so much, I appreciate every day now.
 
Hope you carry on going from strength to strength. And your right, you don't need to be standing on the sidelines! Take care. xx
 

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