Weight gain/loss post colectomy

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mwabit
New Member


Date Joined Dec 2006
Total Posts : 17
   Posted 12/11/2006 12:23 PM (GMT -6)   
 
I am sure that someone has asked this question before but is there a pat answer as to if the "norm" is to gain or lose weight after a total colectomy?  I know that each person is different.  i am to have a total colectomy in the very near future (no bag)! yeah..  I would appreciate any response

enpointe
Regular Member


Date Joined Nov 2006
Total Posts : 65
   Posted 12/11/2006 7:05 PM (GMT -6)   
Hi AMABIT, I had my cholectomy and have lost over 30 pounds in three weeks and am still losing. I need to lose alot of weight so this is great for me but I need to do it healthy. I had no appetite and  still do not but need to eat healthy and small amounts since I feel I cannot eat much at one sitting. I had my surgery on Nov. 8. At the doctors office alot of people said they lost weight. I think this is usual since after surgery you really cannot eat much. Hope this is helpful.

suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5409
   Posted 12/12/2006 11:12 AM (GMT -6)   
Once you have stablized after surgery and are back to regular activity, you will gain weight. Calorie absorption takes place in the small intestine and will not be affected by the loss of the colon (sadly for me!).

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


Angel Baby
Regular Member


Date Joined Mar 2006
Total Posts : 50
   Posted 12/15/2006 6:24 AM (GMT -6)   
Good Morning! AMABIT
After my Subtotal Colectomy on 09/19/05, I went from 128lbs to 110 lbs. Before I could have my reversal ileostomy, I needed to regain the weight that I lost because I was told that I would lose more weight after my reversal ileostomy. I was put on the TPN System for three months and gained more weight than expected 136lbs; however, it was a good thing, because after my reversal ileostomy on 12/20/05, I dropped weight fast lowest weight since reversal being 108lbs. Next week will be my one year mark since my reversal ileostomy and I started gaining weight (121lbs 5'5) through process of elimination on what my body could tolerate. I thought up til now that the majority of my BMs would continue to be five times a day with loose stools, but now they are starting to form normally and go less frequently. Hope I answered your question and hope you have a wonderful holiday season!

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 12/16/2006 5:12 PM (GMT -6)   
MBABIT - I had my total colectomy on November 9th and have lost about 20 pounds.  At first the appetite isn't too good, not to mention, finding what you tolerate and what you don't.  It's a trial and error thing for sure.  I know for the first few weeks - instant potatoes and pudding was the only thing my body didn't have a problem with.  When I finally decided to reintroduce "food" it was dependant on what it was.  Some things really bothered me and others didn't.  I have stayed away from any red meat, as it doesnt agree with me.
 
ENPOINTE - Since your colectomy, do you suffer with tenderness?  Whew, I'm still dealing with this.  I was readmitted a week after surgery because the pain and tenderness was horrible (I can tolerate pain) but this was more than I could bear.  They checked to make sure that the blood supply was good where they connected the small intestine to the rectum and all came back OK - surgeon advised that sometimes this takes time.
 
I also had my colectomy laporascopic and what was to be a three to four hour sugery tunred into a 7 1/2 hour surgery with 5 1/2 feet of colon removed.  The surgeon was even amazed at the time it took.  I'm thinking that my body is trying to adjust to a big area being removed and that is why I'm having a lot of tenderness (the pain is still there, but I am tolerating it).
 
Thanks for listening and good luck to anyone facing the total colectomy!!!
GOD BLESS!!  ROBIN


angelfire
New Member


Date Joined Jan 2007
Total Posts : 1
   Posted 1/14/2007 10:49 AM (GMT -6)   
Hi, I am nearing 10 years post total colectomy. I have found that the weight gain is a problem for me. I stayed unchanged in weight for 7 years, then began having moderate fluid retention and at this point have gained 25 pounds. It is disheartening and uncomfortable. Diruetics seem to have no affect, and it seems as my body just cannot move fluids. The large intestine functions to reabsorb fluids, perhaps in its absense. Anyone have any comments that could explain this?

kennysgirl
New Member


Date Joined May 2011
Total Posts : 1
   Posted 5/26/2011 9:26 AM (GMT -6)   
I was wondering the same thing.....will i lose weight after a total colectomy?

2b ColonFree
Veteran Member


Date Joined Nov 2008
Total Posts : 2603
   Posted 5/26/2011 12:52 PM (GMT -6)   
ppl usually lose weight after a surgery like that, some more, some less, but most of them, if they don't watch what they eat will go back to their previous weight. i was 112 lbs before my colectomy, after the surgery i had an ileus for 8 days, then back to eating slowly. when i got home from surgery i was 103 lbs. 6 weeks later i was back to 112. my surgery was almost 2 yrs ago. now i fluctuate 106-109, but it's only b/c i watch what i eat so i don't gain. if i don't watch it, i'd gain easily and quickly.
Hodaya
06/05/2007 - STARR procedure
colonic inertia w/pelvic floor dysfunction
08/16/2009 - total colectomy w/ileorectal anastomosis
07/08/2010 - loop ileostomy

frostyboy
Regular Member


Date Joined Mar 2011
Total Posts : 272
   Posted 5/26/2011 7:14 PM (GMT -6)   
Yes, I have been pondering this question, too b/c I am scheduled to have my total colectomy next week, June 2nd.  For me, since I have had sooo many problems the past few years.  A couple years ago too, I developed an ulcer, which didn't help things.  I don't find tooo many people complaining of trapped gas, air, inside them.  It just feels like my colon is literally dead sometimes.  I have actually lost weight from not going to the bathroom, the ulcer, etc. b/c I start to feel very full from not going to bathroom after several days, so I want to just stick to simple things to try and keep my tummy in peace and get through my workday.  Also, I just hate the feeling of not knowing if I am going to be able to pass my gas very well or not.  Sometimes I can, but have to try real hard, or other times I can just feel in it me gurgling around; very painful sometimes.  I have been trying to drink some ensure lately, and eat ice cream at times.  Can't drink milk a lot, too much milk at times bothers me.  Sherbet has been great, too.   It is just very hard since my tummy hurts a lot.  Plus, I can't stand the laxatives anymore not knowing if they will work or work!  They hurt me, too!  Did anymore experience actually wanting to eat better once they recovered for a few months after a total colectomy?  Finding going to the bathroom helping, not feeling so full and not getting indigestion alot.  Happens to me.  I have always been a thin person all my life, but I just get worried about my health!  Before I go into surgery, the surgeon plans to insert a picc line in me. 

Blueheron
Veteran Member


Date Joined Feb 2010
Total Posts : 710
   Posted 5/26/2011 9:41 PM (GMT -6)   
I am 5'8" and went from 130lbs to 105lbs due to a severe UC flare, but managed to get back up to around 120lbs in the month between that flare and surgery. Since then, I have not put any weight back on and seem to be stuck at 120lbs. I am not really trying to gain though. I am eating healthy and feel strong so I figure if that is where my body wants to be right now, so be it. I do notice my appetite is not what it was before surgery though. I used to go back for second helpings of meals and never do anymore. I get full more quickly now. I have no idea why.
-39 years old
-Officially diagnosed with UC in 2006, though had symptoms since 1999.
-Had mild/moderate symptoms continuously until severe flare in autumn 2010 which required 2-week hospital stay
-Took Asacol, Rowasa, Canasa and Prednisone to manage flares but meds stopped working
-Tried 1 dose of Remicade but had excruciating joint pain and discontinued
-Had permanent ileostomy surgery 11/8/2010
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