Need ileostomy help

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crohniekerry
New Member


Date Joined May 2006
Total Posts : 11
   Posted 12/11/2006 5:06 PM (GMT -6)   
Hello everyone.  I hope you are all doing well.
I had surgery on November 16 removing a segment of my colon and leaving me with a temporary ileostomy.  I was released from the hospital on Nov. 28, and since I have been home I have had nothing but trouble with my ostomy bags.  They leak on a daily basis.  My skin is getting very irritated from removing the bags so frequently.  I am also getting some irritation directly surrounding the stoma which I believe is caused by digestive matter getting around the stoma.  I am using the single-piece, cut-to-fit drainable bags (my stoma is oval-shaped).  I do have a WOC nurse that has made a couple home visits, but she doesn't seem to really know what to do.  She gave me some DuoDerm and also told me to use powder to help protect the skin.  These seem to protect my skin a little bit, but I still have the issue of my bags leaking and needing to change them every day.  My skin just isn't getting a break.  I feel that I am following the instructions for the bag exactly, but obviously I am doing something wrong if it's leaking so frequently.  Does anyone have any recommendations regarding either the leakage issue or the skin irritation?  Thank you for your time!
--CrohnieKerry
Diagnosed with Crohn's in 1988 (age 7), inflammation in colon only
Surgery to remove section of colon Nov. 2006, temporary ileostomy


puddnpie
Regular Member


Date Joined Oct 2006
Total Posts : 21
   Posted 12/11/2006 5:35 PM (GMT -6)   
Hey I also have a temporary illiostomy from UC.. I had my surgery done in August. I had problems with leakage too. I have now having I great rate of success by using the Assura Convex wafers along with Eakin Cohesive Seals. The seals help with the leakage. I dont know what I would do without them. The convex wafers have I belt that can be worn to help the wafer stay to the skin better.Good luck to you....
 
 
 
 
 
Each day is a gift from God!!

crohniekerry
New Member


Date Joined May 2006
Total Posts : 11
   Posted 12/11/2006 5:41 PM (GMT -6)   
Thanks so much for the response, Puddnpie.  It helps to know I'm not the only one who has gone through this.  I'll check into the products you suggested. 
When are you supposed to have the reversal?
Diagnosed with Crohn's in 1988 (age 7), inflammation in colon only
Surgery to remove section of colon Nov. 2006, temporary ileostomy


vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 12/11/2006 10:20 PM (GMT -6)   
It's hard to tell what the correct answer to your problem is without seeing your stoma and your body type. I've had an ostomy for 17 years and I have used just about everything on the market.
You might want to try stomahesive paste( there are many brands with different names). Put a bead of paste around the opening of the wafer, between your skin and the appliance. If your skin is irritated it might sting just for a few seconds. Not only will it provide a better seal, but it will protect your irritated skin as well. You'll want to put enough paste on the applinance so that when you press it on some will "ooze" around your stoma. When I first had my ostomy I had a real problem with leakage. It can drive you nuts. This has worked just fine for me and I haven't had a leak in 16 years, and I am VERY active. I also prefer a 2 piece sytem so that I can add a little past around my stoma from time to time. But, that's a matter of preference. I NEVER wear an ostomy belt. Some people like them but I find them cumbersome. Plus, if your active and the belt shifts, it can pull your appliance right off. Good luck.

Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 12/12/2006 3:31 AM (GMT -6)   
As well as the great suggestions from the other posters,you could try using some cavilon no sting barrier spray. It helps protect the skin but best of all in my opinion it helps the flange to adhere to the skin realy well too. You can also get somthing called Hydro frame which you can use as an extention to the flange. I use both all the time and i dont get leaks.

One other thing. Are you cutting the flange hole to the correct size to fit your stoma? The stoma does tend to change insize after the initial swelling etc from your surgery.So if you have the wrong fit then that could be one reason for the leaks. If you havnt measured it for a while it would probably be a good idea to that now. I use Coloplast and there is always a measuring card thingy in every new box of supplies that I recieve.

Let us know how you get on.


crohniekerry
New Member


Date Joined May 2006
Total Posts : 11
   Posted 12/12/2006 12:39 PM (GMT -6)   
Thank you all so much for the great tips! I really appreciate the help. I'm going to try to get some samples of different products to experiment with. Take care all!
Diagnosed with Crohn's in 1988 (age 7), inflammation in colon only
Surgery to remove section of colon Nov. 2006, temporary ileostomy


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 12/20/2006 10:21 AM (GMT -6)   
I've had an ostomy for many years, and sold ostomy supplies for many years. The problem is that with an ileostomy your stool is much more acidic. The best solution is the eakin seals. They hold up better than the paste, which just gets eaten away by the acidic stool. You can get them in 2 different sized, and form them to fit. I've started just getting pre-cut convex wafers larger than my stoma, I fit the eakin around my odd shaped stoma, and put the wafer over that. As for the painful area around the stoma, there are many new skin barriers out there, just make sure you get one with "no sting." My favorite is 3-M. The barriers help if you need to change the appliance frequently by not ripping your skin off each time, and they prevent a build up of adhesive. I have to change my appliance daily because I have such a short bowel and the stool is very acidic, along with a stoma that doesn't protrude at all any more, and I have no irritation at all with the above products. Good luck.
25+years diagnosed with CD.  5 surgeries,permanent colostomy (which I'm glad I have, I can actually leave the house)   have taken every drug available, now on Remicade, seems to be keeping it controlled.
 
MERRY CHRISTMAS


Hunnie
New Member


Date Joined Dec 2006
Total Posts : 1
   Posted 12/21/2006 12:39 AM (GMT -6)   
Hi,
I've had my ileostomy all my life (24yrs). And when I have problems with getting the wafer to stick and getting irritating skin I use "Imodium" to help slow the out flow (so I can actually get a chance to get it to stick) also I use Caldesene Powder, it sooths as well as makes it dry so the wafer will stick and helps heal the rash/irritated skin(dab on and blow away the excess) then the stomahesive paste on the wafer aroung the hole. And the belt helps keep the whole thing in place while it sets. This is just a suggestion... hope things work out for you
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