ileostomy reconnection

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

lionheart
Regular Member


Date Joined Dec 2003
Total Posts : 43
   Posted 12/30/2003 9:07 PM (GMT -6)   
I was wondering if anyone had any advise.....Last october (2002) I had my colon removed with a small piece of my rectum left for later reconnection (after battling Crohn's for 12 years).  I have been pain free ever since but I have alot of skin irritation and discomfort and can't wait until I get reconnected.  My question is my husband and I are thinking of having a baby but I'm not sure if I should have a baby first before my reconnection or get reconnected first.????  I have been thinking about getting reconnected first as I can't imagine having to deal with leaks and changing my pouch with a big pregnant belly, and I don't want to miss any time with my baby while I recover.  But on the other hand since I'm feeling good now would it be better to do it now before the surgery??  Anyone have any experience, thoughts, opinions???

Thanks
Lionheart


sparkn
Regular Member


Date Joined Apr 2003
Total Posts : 273
   Posted 12/31/2003 3:07 PM (GMT -6)   
I have no idea, have you asked your doctor about it? Do you have a gyn/ob familiar with crohns and ostomies? I guess I would recommend finding an ob/gyn familiar with all this and ask them. When I first had my surgery, my gi sent me to a gyn that was familiar with it so that in the future when I do want kids she'll have some background with pregnancy and crohns. She also keeps up to date with my surgeries and in touch with my surgeon. She made sure when the made it permanent that they put something on my uterus to help reduce the risk of scarring. I think pregnancies either way are possible, good luck!
Happiness is a journey not a destination - Souza


lionheart
Regular Member


Date Joined Dec 2003
Total Posts : 43
   Posted 12/31/2003 3:53 PM (GMT -6)   
I've been told by my gi and surgeon that now would be the best time to get pregnant as I'm not on meds and feeling well....but I guess I worry about changing the bag while pregnant and how ackward it would be and then to have my surgery after my baby was born how would the recovery be? Is there a high stats for complications?? Reccurances?? Would it be probable that I would miss time with my baby?? I guess I'm just weighing the pros and cons. In some ways I think I should get my surgery and all the complications over with before surgery....but then what happens if I get sick again and then my baby would be at risk with all the meds???? I guess it's like playing the lottery. But your right I should find an gyn/ob who is familiar with Crohns and ostomies. Maybe they'll have advise.


Meilandra
Regular Member


Date Joined Feb 2004
Total Posts : 30
   Posted 2/10/2004 3:31 PM (GMT -6)   
Hi,

I am a new ostomy patient (1/13/04) after spending most of the past 11 years first with ulcerative colitis, then with ulcerative proctitis.  I am a good candidate for the reversal with a J pouch later this year.

I'm responding to your post because when I was in the hospital and they told me I had to have my colon removed, my mother told me that a friend of the family has had an ileostomy since she was 13 (she's now 50).  I've talked to her at length a number of times now, and she told me she had three healthy, full-term pregnancies with the ostomy, no problems whatsoever.  However, my vote would be that you get the reversal before getting pregnant/having a baby, just because I can't see trying to recuperate from major surgery once you have a baby -- it's enough work just getting through the day feeling like yourself! lol  So, anything you can do to get major stuff like that out of the way beforehand, I'd also suggest doing it to spare yourself the stress and inconvenience later on.

Anita

Kez
Regular Member


Date Joined Jun 2003
Total Posts : 484
   Posted 2/16/2004 2:06 PM (GMT -6)   
I have recently been speaking to my doctor about this very thing.

The advice given to me is wait until you've had your family before the reconnective surgery- for me, this was explained that this is becasue any major pelvic operation runs the risk of causing adhesions which may affect fertility, and also because the body requires recuperation time of about a year following the operation.

In addition, if you're in remission prior to having a baby, you can flare up afterwards, in which case a bag might be a better idea than having to leg it to the loo.

With the configuration of my bowels post-surgery, it would be possible for me to have a natural birth, although I have expressed a preference for an elective caesarian. This was fine, she said, but the colorectal surgeon would have to confer with the obstetrician over the c-section's method.

Kez
 
25, from Hampshire, UK. Crohn's-colitis (diagnosed 2001) and ileostomy (2002).
Currently in remission following my operation.  
 


lionheart
Regular Member


Date Joined Dec 2003
Total Posts : 43
   Posted 2/22/2004 4:18 PM (GMT -6)   
hmmmm!!! I wish I knew what to do. It seems that the smart choice would be to try for kids first and then have surgery. But it just sucks all the same! I'm really tired of the bag and I just want it gone! But I don't want to jeopardize my chances of conceiving or jeopardize my babies health by getting sick! It is also disapointing because when I think of being pregnant I think of having a nice round belly that I can rub and hold and not have a bag of poop hanging off of it. I know it sounds really selfish and it is....but I still feel that way and it just sucks!! As well I don't want to be away from my baby when I have surgery! For once I wish my body would cooperate and react normally to situations other people my age experience!!!
Anyways thanks for your ideas....I'll just have to suck it up I guess!


fin
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 5/13/2009 10:32 PM (GMT -6)   
cry  Hello I am in desperate need of guidance, I had my colon removed in December 2008 and I am having severe skin irratation with every bag ive tried. Has anyone tried the ostomy belts without the adhesive barriers?
 

fin
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 5/13/2009 10:36 PM (GMT -6)   
I had UC for 6 years and had to have emergency surg. in december. I am getting the reversal and I was also wondering what i should expect? will I lose alot of weight? Will I be able to eat fruits and veggies? Ive asked these questions on thi site before but I posted it late and couldnt fin any replies the next day?
 

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 5/13/2009 11:54 PM (GMT -6)   
Fin,
You may want to post your questions as a "NEW TOPIC".  Just click on "new topic" and then create a new post to get more views on your questions.  I am sure that you will get lots of responses if you do this.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


fin
New Member


Date Joined Apr 2009
Total Posts : 6
   Posted 5/17/2009 5:12 PM (GMT -6)   
Peggy how do I know if someone replies to my questions?

ff2489
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/19/2010 11:45 AM (GMT -6)   
Hello from Saudi Arabia....I was diagnosed back on April 22 2009 with stage III Colorectal Cancer. Since then I went through 2 months of chemo/radiation therapy, surgery to remove the rectum and place a temp ilestomy, 4 more months of chemotherapy, and finally the ilestomy takedown....Man, my butt has been burning and I can't stop going - I am afraid to eat - can't sleep, and I am losing weight again. It has been a whole 5 months since the takedown....I don't know if I will ever get any relief because the foods I love to eat I can't and I can't drink coffee or diet pop....Does anyone have any suggestions? Because I am lost except for the fact I did get my job back and that was due in large part to my cancer team. My surgeon is the best - Davinci Surgery - Can see him at trinityqc.com - I know I am not alone
New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, August 01, 2014 11:28 PM (GMT -6)
There are a total of 2,185,272 posts in 243,030 threads.
View Active Threads


Who's Online
This forum has 153871 registered members. Please welcome our newest member, ah9907.
296 Guest(s), 8 Registered Member(s) are currently online.  Details
pictureofhealth, journey2health, mikeb2308, JuanMR, stacestar, Plant eater, Girlie, moon61


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest  Follow HealingWell.com on YouTube
Advertisement
Advertisement

©1996-2014 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer