I need diet help badly

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frassy
New Member


Date Joined Jan 2007
Total Posts : 18
   Posted 1/5/2007 5:40 PM (GMT -6)   
Hi. I am new here and this is my first post. December 11th I had a subtotal colectomy. Eight and a half feet of large colon were removed. I had megacolon and colon inertia very badly. My colon did not move without tons of bisacodyl and it was three times its normal size. After the surgery I came home and began vomiting badly and having terrible, terrible spasms of the small bowel. I ended up back in hospital with an obstruction of the small bowel. The surgeon said my small bowel is twisted and inflamed. He said there is dysmotility in it as well but as soon as food sends me into spasm, I get diarrhea. Now I am having bm's three times an hour all day. They sent me home on a full fluids diet, but I get so hungry. I am eating soft foods and having full fluids, but now I find that everything I eat gives me bad tummy and chest pains and usually diarrhea. I do not know what foods to stay away from or what foods to have. No one gave me a diet to follow other than to say full fluids for a few weeks and then soft foods as tolerated. I am not tolerating anything right now but I am now feeling hungry so it is harder because before I had no appetite or desire to eat. Now I am starving and can't eat without pain, cramps, spasms, and diarrhea. Does anyone have any suggestions as to what diet one should follow post colectomy?? The remainder of my bowel as joined together so I have no bag. The surgeon said there is no cure for my twisted and inflamed bowel and this could be it for life for me. I really need to know how to adjust my diet, ie. what foods to avoid and what I could try. I would appreciate any guidance as I do not see the surgeon until February and am at a loss. I know diet is key for post colectomy but do not know what diet is appropriate for reducing the pain, cramps, spasms, and diarrhea. Like I assume no milk products??? What about fruits and veggies?? I only eat chicken for meat. Anyway, thanks in advance for any suggestions that might ease the gruellling day that involves eating, hurting, and running to the bathroom. It seems like that is my whole day, and goodness knows how I will return to work when I need to be glued to the bathroom.

frassyone

lam
New Member


Date Joined Jan 2007
Total Posts : 19
   Posted 1/5/2007 7:04 PM (GMT -6)   
Frassyone I am so sorry for all the trouble I am having my total colectomy less than a week and I have the same questions about what to eat! Could you tell m what upset you small intestines? That scares the daylight out of me! I am 45 and just got married~two in college and three step children~building a house! Is this going to ruin my life! I think that the cramps do come from what you eat! I'll stay up qith you and maybe we can learn together!! Bless your heart and better days ahead for you !! lam

frassy
New Member


Date Joined Jan 2007
Total Posts : 18
   Posted 1/5/2007 8:11 PM (GMT -6)   
Well I sure wish you the best with your surgery. What upset my stomach is that the small intestine I am left with is twisted, inflamed, and in spasm plus has dysmotility. They didn't know what I would be left with once the large colon came out, and a CT scan revealed that the remaining intestine is not good. Anyway, all solid foods upset my tummy and I had to go to full fluids. The only thing I know for sure is that soft foods and fluids are best in the beginning. I am here for you. I am 42, two grown kids, and a hubby as well as a cat and dog. I think we will have a lot in common. Let me know how it goes for you. I am keenly interested in how you are. I will help you in any way I can. Just let me know.

frassyone
And there came a time when the risk it took
to stay tight inside the bud
was more painful than the risk it took to blossom


enpointe
Regular Member


Date Joined Nov 2006
Total Posts : 65
   Posted 1/6/2007 12:29 PM (GMT -6)   
Hi, I had my total cholectomy 6 weeks ago and my doctor said I could eat whatever I wanted. Well, this is not true for me . I cannot even tolerate cooked broccoli or any gassy foods. I can eat bananas but that is it for fruit. I cannot do any fried but these are the foods I had before surgery so my diet is the same as before.  He told me I had lactose intolerance so I use lactaid milk which tastes just like regular and is also fat free. I eat chicken, pork, all mushy foods, like mashed cauliflower but I am not sure about that either. I go several times per day and it is always diarrhea. I see the doctor in two weeks and will see what he says . I am still losing weight and have lost 35 pounds now in 6 weeks. But I am eating what I know I can have. When I want sweets I started making jello sugar,fat free banana pudding and putting it into a pie shell graham cracker, and put bananas on it sometimes and them fat free sugar free whipped cream at the time of eating it and it is delicious as an alternative to the fat and sugar. I have another 50 or 40 pounds to go and will do it this time now that I can go to the bathroom, I swear most of the weight gain is from not going and like I said my diet is the same as before the surgery. Maybe that may help someone out. Oh, I haven't tried mexican and I love it but right now will wait, do not want pain unneccessarily. Also, I had chicken chow ein and it was fine. Still diarrhea though. Take care everyone. Enpointe cool

neese
New Member


Date Joined Jan 2007
Total Posts : 1
   Posted 1/24/2007 1:25 AM (GMT -6)   
Hi, am new to the site, am 59 years old, went to Vegas in Oct., intestins ruptured on the plane, and wound up in a Vegas hospital for one month, sepsis, kindneys failing, and a clostomy bag. Now I have been back home in Texas for 5 weeks and am still trying to learn about what happened to me. Apparently I had chronic constipation along with diverticulitis. I would just accept the pain and in a week or so I would get better, but not this last time. I went on the web last night and figured out that i have a peristomal hernia, the surgeon in Texas confirmed this today. He does not seen to worried about it and says that when he reverses the surgery in 4 months he will repair the hernia. I worry because when
I stand or sit it feels like a small basketball protruding out of my stomach and I thought my intestins were just swollen. The surgeon has a sense of humor, cause when I asked him if the hernia would get larger, his reply was "why would you want it larger, it is so large now that you can get a basketball in there", that still didn't answer my question, and am wondering if just wearing a belt will help contain the hernia, if anyone knows please advise. The area around the stoma is very iritated and red, i didn't use the bag today beacuse I haven't eaten in a few days thinking that my intestins were only swollen and I wanted to give them a rest from food. So I can predict when I am going to have a BM. Was hoping that the iritation would get better, but it got worse cause I had a small towel over it and them a larger towel and then a tummy support belt.
Anyway I am going to see an ostomy nurse in a couple of days. I an so confused with all this, diet, work, housekeeping, bending, kneeling, lifting, etc. don't know what is acceptable even know 12 weeks p.o.I guess because my gast. dr. says whatever the surgeon says, and the surgeon is so busy
I can hardly get in to see him.. then 12 days ago i got a boil in a very private area, then within 4 days i had 4 others start appearing on bra line, leg and shoulder, I had never in my life had on before, called surgeon and he sent me antibiotics, said my immune system was low due to all the infections, they seemed to work, but today when he saw them, they are getting small, the big one busted and drained but not completely, so he says if they don't go away completely he will have to admit me to cut and drain them completely......worried about that too.....of course he husband blames me for everything, because I was cleaning, moping, lifting and working in the office for 10 to 12 hours a day....but dr. says it happened bacuse the opening around the stoma was too big after the swelling started going away....does anyone have an opinion on this..well i poured my heart out and before i start crying i guess i'll turn it over to you all.. God Bless...any advise is appreciated

Neese


i

enpointe
Regular Member


Date Joined Nov 2006
Total Posts : 65
   Posted 1/24/2007 8:43 AM (GMT -6)   
Hi Neese, welcome to this site it is great and everyone shares and answers quickly. I am so sorry that you had all of these horrific things happening to you.
The questions you asked I cannot respond to due to my surgery being a total cholectomy and I do not have a colostomy bag. I can identify with the pain and the problems with doctors when I lived in FL . S.C. has much better care for me here and that is just my experience not stating a fact about where the good doctors are. I just wanted to welcome you here and alot of people will have the situations that you have had. Take care, enpointe
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