back from surgery-some questions

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awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 1/14/2007 8:55 AM (GMT -6)   
well everyone i am back home now after getting my proctolectomy/permanent ileostomy surgery. 16 days in the hospital, but i seem to be doing OK now. i've lost 25lbs. i'm starting to get used to having a bag, although it's quite cumbersome :( i've had two showers with it and it didn't fall off so i guess i'm over fear #1 lol.

can someone list off other brands of bag manufacturer's and where to buy? what does everyone else use? right now i'm using a hollister new image 12", i'm sure it's the cheapest/biggest 'cause the hospital gave it to me, but i need to find something else that'll work better with my clothing. any input appreciated..

--matt
Since 1991: Indeterminate crohn's/ulserative colitis


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/14/2007 10:43 AM (GMT -6)   

I recommend you have an ET nurse visit you at home.  They are really good at evaluating the stoma and making product recommendations.  They will also supply you with various samples for you to work with.  Congratulations on your return home and successful surgery.  Weight will increase, be patient.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 1/15/2007 8:18 AM (GMT -6)   
yeah i'm all set-up with a home et nurse for the next 3 months...she only pushes hollister products though, perhaps they're the best or the only manufacturer?

--matt
Dec 2006: Proctolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5690
   Posted 1/15/2007 1:25 PM (GMT -6)   

There is one other manufacturer and that's Convatec.  Convatec will send you free samples but you kind of need to know what your stoma is like, is it concave, or does it stick way out, etc.  An ET nurse can describe your situation and you can call Convatec for free samples.  I am VERY surprised that your nurse only uses on brand of product.  It's not about selecting a brand but getting the right appliance to the ostomate.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 1/16/2007 5:56 PM (GMT -6)   
i checked out convatec's website...not a huge selection over there. i'll ask my et nurse about them when she comes again. thanks

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis

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