I had a total proctocolectomy with a j-pouch due to severe ulcerative colitis. My experience was different. I did not have a PICC line nor an NG tube. Also, I did not stay in ICU. My pain was controlled with a morphine pump. You have some great questions that can be answered by your surgeon. If you are getting a j-pouch I encourage you to visit www.j-pouch.org There are over 5000 members on that site who can be there to support you through the surgery and the recovery.
Hi, my total proctocolectomy for severe UC was over a year ago. I had a PICC Line put in for nutrition. (keep an eye on the arm because mine failed at 3 days after the surgery and my upper arm swelled up) The nurses never checked it and I found it myself) My nasogastric tube was inserted after they put me to sleep, so I don't know why you can't request that if you have to have one.(I would suggest you do have one cause if your tummy gets full of gunk, and I do mean gunk, it will really make you vomit, which you don't want to do when your belly is stapled shut) My naso gastric tube also failed me a couple days after surgery. It got pushed sideways in the back of my throat and was very uncomfortable, and I called the nurse in to look at it, and she said she would have to push it back in, and I wasn't having it, so I pulled it out. It was ok for me because my bowels were starting to wake up. As far as pain, I didn't get a pain pump, but it depends on your tolerance for pain. It wasn't as bad as labor pains, and they kept me comfortable. I made sure to move my legs as much as possible in the bed, before I could get up and walk, because I didn't want a clot. I was glad I had earplugs (noisey hospital), and a firm small pillow to hold on my belly if I needed to move or cough. They made me breath into a little plastic thing to make sure I didn't get fluid in my lungs. The worse part for me is that I was promised a home health nurse and she never came and I had a bad leak when I got home. I am 55 and was only in the hospital 3 days before the operation and 5 days after. The hospital was suppose to get a nurse to come, and they wouldn't come because they couldn't find any who would take my health insurance. Pretty pitiful. I have an ET's office by me and I went to see her after my leak. She didn't charge me anything, because she is an angel of mercy for all of us here. I did have to go into a convex flange, or barrier. That helped alot. If they take your rectum and anus, you will need to be careful not to stretch that area by sliding in and out of bed, etc. Don't sit on a donut. Only sit on a flat cushion, made of a 2 inch flat piece of foam. A donut will spread out the cut area. I was sent home with pain pills, but only took them as needed, and not all the time.