problems with bleeding...need answers please

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krissie
Regular Member


Date Joined Jan 2007
Total Posts : 109
   Posted 2/4/2007 7:43 PM (GMT -6)   
Hi,
I have had my bag now for about 2 months or so and I have never noticed this before:  When cleaning around the stoma I have a good amount of bleeding on the underside.  Is this normal, or is it a call to the surgeon????
 
Many thanks with any answers'
Krissie
CD, OCD, PTSD, Depression, anxiety, panic attacks, and post op colostomy.
my meds are lexapro...the doc put me on it again, ativan, klonopin, fentanyl and vicodin ( she increased it to the 7.5's, thank God) and lunesta and asacol, synthroid, ultram and phenergan......I think I am a walking pharmacy...:)


Brannah
Regular Member


Date Joined Oct 2006
Total Posts : 109
   Posted 2/4/2007 8:27 PM (GMT -6)   
Hi Krissie,
 
If you have some bleeding around the stoma when cleaning, it is normal because of the high concentration of blood vessels there. If there is a lot of bleeding then apply pressure with a dry cloth for about 10 minutes. If the bleeding doesn't stop, then head to the ER to have it checked out.

krissie
Regular Member


Date Joined Jan 2007
Total Posts : 109
   Posted 2/4/2007 8:47 PM (GMT -6)   
Thanks for your advice, it is just that even though it has been about a couple of months, I still cannot get used to this thing.  I am actually an R.N. but have been on disability due to this illness, but I specialized in High Risk L& D, so what I remember about stomas is from '87.
 
I have had a tiny bit of bleeding here or there, but tonight was a lot more and a lot redder.  I use the personal flushable wipes to clean the area well and I had to use 3 of them before the bleeding lessened.  I use a skin protectant b/c my skin is so sensitive, and when I went to put the bag back on it hurt for a good 15 minutes.  Normally it doesn't.  How long have you had a bag?  How long did it take you to get used to it and when did the surgical pain of it all stop?  One day I think great...I am doing better, I just as of last week went down to 25mcg of the fentany patch and I have vicodin for breakthrough.   I have had many surgeries on my tummy, but nothing like this.  I really thought I would be off pain meds by now.  I also deal with a lot of anxiety, so I may be making a mountain out of a mole hill.
 
Thanks so very much,
Krissie
CD, OCD, PTSD, Depression, anxiety, panic attacks, and post op colostomy.
my meds are lexapro...the doc put me on it again, ativan, klonopin, fentanyl and vicodin ( she increased it to the 7.5's, thank God) and lunesta and asacol, synthroid, ultram and phenergan......I think I am a walking pharmacy...:)


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 2/6/2007 7:06 PM (GMT -6)   
the blood is normal. if you can find the source of the blood (ie-a cut) put some of the stoma powder on it..the bleeding stops instantly. the way you're describing though i think it's normal...are you cleaning too aggressively perhaps? pushing down too hard, or rubbing too much?? all i do with the stoma is remove the stool from it and that's it, usually only need to use 1/2 a wipe on the stoma itself.

the intestine has no nerves so whatever you were feeling wasn't on the intestine/stoma, the pain is coming from your abdominum <sp> how hard are you pushing down when you stick the flange on? if you put a sticker on a piece of paper and apply some pressure, that's about how much force you need to apply to make the flange stick...any more then that isn't necessary...and if you're not using a floating flange setup, i'd recommend it

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


krissie
Regular Member


Date Joined Jan 2007
Total Posts : 109
   Posted 2/6/2007 7:53 PM (GMT -6)   
Thanks Matt,
 
Good advice.  I am really careful when I clean the area.  It just really scarred me when the bottom of the stoma kept bleeding and then once I put the appliance on it hurt like ****, but then it went away after 10-15 minutes.
 
Hugs to ya,
Krissie
CD, OCD, PTSD, Depression, anxiety, panic attacks, and post op colostomy.
my meds are lexapro...the doc put me on it again, ativan, klonopin, fentanyl and vicodin ( she increased it to the 7.5's, thank God) and lunesta and asacol, synthroid, ultram and phenergan......I think I am a walking pharmacy...:)


kfain
New Member


Date Joined May 2016
Total Posts : 19
   Posted 1/23/2017 10:55 PM (GMT -6)   
My son's GI doctor has never said anything about stoma powder in the 11 years he's had his stoma. He has recently, over the last year, had several bleeding episodes and he has still never said anything about it. Is it safe? Do you need a prescription? Does it really work?


quote="awesomeame"]the blood is normal. if you can find the source of the blood (ie-a cut) put some of the stoma powder on it..the bleeding stops instantly. the way you're describing though i think it's normal...are you cleaning too aggressively perhaps? pushing down too hard, or rubbing too much?? all i do with the stoma is remove the stool from it and that's it, usually only need to use 1/2 a wipe on the stoma itself.

the intestine has no nerves so whatever you were feeling wasn't on the intestine/stoma, the pain is coming from your abdominum <sp> how hard are you pushing down when you stick the flange on? if you put a sticker on a piece of paper and apply some pressure, that's about how much force you need to apply to make the flange stick...any more then that isn't necessary...and if you're not using a floating flange setup, i'd recommend it

--matt

clo2014
Veteran Member


Date Joined Feb 2015
Total Posts : 675
   Posted 1/24/2017 11:52 PM (GMT -6)   
krissie,

My pain lessened by week 6 to tolerable, by week 8 it was better. My friend was week 8 and 10.

My bag hurts if I cut the opening too small. I also feel uncomfortable and itchy the first 5 to 15 minutes after putting a new bag on. It hurts longer and worse if I have red irritated skin and do not use stoma powder on it and an eakin seal. My surgery was on September 9 2016. I feel I am still on a learning curve.

I did have really bad pain on my stoma and around it. My colorectal advised me there aren't any nerves in the stoma ... impossible. I told him it hurt like a son of a gun and I was coming in. I had seperation between the skin and my stoma when my stoma shrunk and 3/4 of it tore away from the stitches. It created a red weepy mot that took 3 months to heal. The only ways to deal with it is to let it heal naturally or surgery. Thankfully mine healed with no issues.

Matt,

Stoma powder is almost magical. If you have raw skin around your stoma you use the crusting method to help that skin heal. The powder abdorbs the liquid.

My colorectal, GI or PCP can call in a script and I order it with the rest of my stoma supplies. The stoma suppliers will send you samples if you call and advise them you have irritated skin around your stoma. One time I tore off a chunk of skin when I removed my appliance. The powder immediately stopped the bleefing and protected the raw wound thru 3 or 4 appliance changes. It is safe. My colorectal surgeon told me not to let it get close to the hole in the stoma as it could clog it if too much was used.

Clo
06/12-07/14 symptoms start, no diagnosis.12/14 diagnosed UC & diverticulitis. 01/15 hosp- fistulas, DX changed to Crohns, 02/15 developed new skin rashes, eye problems and painful joints 06/15 Hosp.2x again.. new specialist.Said was worse case he's seen. 7/16 hosp 5mm Stricture stricturplasty to 15 mm.09/16 colostomy. Meds: Remicade, methtrexate, prednison,folic acid, vit D, calcium, pro biotic,

kfain
New Member


Date Joined May 2016
Total Posts : 19
   Posted 1/25/2017 8:56 AM (GMT -6)   
I will try it. My son's stoma takes spells where it bleeds for several days and then it's fine. He's been to the doctor several times and the ostomy nurse checks it regularly and they never do anything. They just say it's normal and since it isn't affecting his stoma function and he isn't bleeding profusely, they feel no need to do anything. I'll definitely try the powder. Thanks.

kfain
New Member


Date Joined May 2016
Total Posts : 19
   Posted 1/25/2017 5:19 PM (GMT -6)   
The powder didn't work. The last 2 times he bled like this he had a UTI. I've been told it's just coincidence because there's no connection. How much bleeding is too much? His has been bleeding for 3 days. Not profusely but he has to keep it covered and change the covers several times a day. But they are never soaked. So how much is too much?
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