Sex and my bag

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ICU Crohnie
Regular Member


Date Joined Feb 2007
Total Posts : 25
   Posted 2/26/2007 7:42 AM (GMT -6)   
I was diagn w/ crohns and yes i posted this on the other forum also. I had 7 surg last summer. the last one ending up with my colostomy.(perm). my better half is a nurse so she is familiar with that aspect of my life and very supportive. During some devil yeah the other day my bag became dilodge d and well i dont need to go into detail about that. Very embarrassing to say the least. We are very yeah devil a lot and i am looking for some hints, trick or anything that will help with this kind of mishap from happening again. Are there any types of wraps, covers or anything to protect or hide the bag during my 35 seconds of yeah . thanx
Nick : Diag. w/ cd at 18, now 33 with perm colostomy. hx of kidney stones. too many surg to list. been on 5 mg prednisone for 15 yrs.  life goes on.


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 2/26/2007 8:44 PM (GMT -6)   
you could try some different, nontraditional positions. buy a book, there are tons out there, all kinds of super-duper-crazy-cool-fun-awesome ideas where your stoma would have less contact/friction/pressure with your honey. And HEY, this is a good excuse to experiment!!!!!!!!!

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 2/26/2007 8:59 PM (GMT -6)   
i'm going to have to remember this next time i want to do something kinky haha!! the gears are turning over here :-D

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Beezo
New Member


Date Joined Mar 2007
Total Posts : 3
   Posted 3/5/2007 5:57 PM (GMT -6)   
35 seconds? i would DIE for 10 seconds. seems my newest addition
is a huge turn off for my better half cuz hes even taken a seperate bedroom.

EricaM
Regular Member


Date Joined Jan 2007
Total Posts : 184
   Posted 3/6/2007 1:27 AM (GMT -6)   
Hi!
 
I cut four pieces of athletic tape, role my bag up 3 times the tape the sucker down.  The athletic tape really allows for flexibility.

ICU Crohnie
Regular Member


Date Joined Feb 2007
Total Posts : 25
   Posted 3/7/2007 5:44 AM (GMT -6)   
Thanx , i tried the folding the bag on top of itself and using 3" tape over it, and it seemed to work very well.  Now if i could only do something about my 35 sec of fame.  cool

Nick : Diag. w/ cd at 18, now 33 with perm colostomy. hx of kidney stones. too many surg to list. been on 5 mg prednisone for 15 yrs.  life goes on.


Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 3/7/2007 7:41 PM (GMT -6)   
All this talk of yeah is encouraging since I am getting an ileostomy this april 20th. My previous girlfriend was understanding, but I am not so sure about a future lady. The thought of explaining it to a new person at theat romantic mooment is, well, not so romantic. At least I have worked hard to be able to explain what I am going to have done to my "normal" friends. I am glad I found this site, since it seems that people actually post to it, instead of once every few months like most other message boards I have found. Talk to you all soon.

oh, I guess here is where I am supposed to list all my ailments (sorry, just one):

Crohn's disease, limited to the colon rectal/anal area, with too many fistulas to count. Perianal, entero-vesicular (to the bladder) fistulas that will not quit! Within a few weeks I will take my last real BM. They have sucked for the last 15 years (since I was 14) so it's not like I am missing out on anything anyway, right?

As for meds, I was on Humira. It's for Arthritis, but ask your doc about it, it is much more accepted by your immune system than Remicade. With Remicade, you eventually create antibodies for the antibody (Remicade is actually a anti-TNF (Tumor Necrosis Factor) antibody. With Humira, it is 99.8% human antibody, not 50% chimerical (that's mouse antibodies) like Remicade is made from.

The problem is that Humira is about $5000 a month (4 self-injections twice a month). Most insurance plans play 70% and leave you with a 30% copay. which amounts to between $1000 - $1500.

So I had to stop taking it, and hence, the upcoming surgery....

However, don't give up, I applied for and was granted an exception for Abbott's Laboratories Patient Assistance Program and they are sending me a free, that's right FREE! 3 month supply! Yeehah......A good three page letter to the Board of Directors along with your application can still get you something these days!

Talk to all you folks soon!

Nathanael in California

Tom1
Regular Member


Date Joined Mar 2007
Total Posts : 258
   Posted 3/26/2007 1:08 PM (GMT -6)   
Go the website Ostomy Solutions.  They have many items that you may find useful.  One is a lycra belt, about 6" or more wide, that serves as a holding pocket for your pouch.  I find it comfortable while adding a bit more security...not to mention that it is a buffer during those intimate times.  Best fifty dollars that I have spent in a long time.

chip
New Member


Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 8:37 AM (GMT -6)   
glad the tape worked for you and glad you're returning to a normal as poss sex life.
chip girl - no advice on 35 second thing though except maybe to try thinking of something not so nice like emptying the dust bins or something that quells the fires for a while, just so that your other half can enjoy the experience too.
chip girl x
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