I was right in the middle of a post when I got locked out! So I will try to rewrite everything again.
PhyllisB-I know that you're close in age to me...Did you have any hormonal issues after surgery? Do you still have your ovaries? Did you go through the temp changes after surgery of being hot/cold? If so how long did they last? Do you take any kind of hormone replacement? I'm so glad that you're still posting as you have a lot of knowledge for the rest of us. Do you still have twinges of pain or sharp jabs? I know that might be the muscles healing. It is sort of a menstrual cramping feeling.
Bootynoworky-Your time frame is almost the same as mine when I had developed the hematoma (blood clots and fluid). You could also have a seroma (which is just fluid). Both will put a lot of pressure on your sutures and abdomen. You can find info on the plastic surgery sites about this. If it is they can drain it through aspiration. Do any of your incisions look red with purple around it and feel warm? I had to up my pain meds around this time. I hope that you're resting comfortably today and that the pain is going away. Really pamper yourself and get lots of rest over the weekend, okay? Don't get discouraged...it does get better with time.
Lisa61-Welcome! PhyllisB and Stuck42long have given you great info. It is a big surgery and a life changing one. And I would do it all over again even with some of the drawbacks that I have had. I can't believe how good it feels to go after all these years of blockage. And with all the stuff that comes out of me now...I'm beginning to believe I really did have a 'black hole' where everything I ate went into when I wouldn't go for weeks at a time!
GOGENTLY - Thanks for starting PART 14!!! Maybe you and I were posting at the same time this morning and with all my blabbing - I took up all the space. Sorry you had to rewrite everything !!!!
Just knowing I can or I've helped someone else going thru this is a blessing. I'm trying to remember and mention as much as I can possibly think of. I, like you, was at the end of my rope and had no other choice than to have the surgery. I only wish I knew a lot sooner that there was a surgery out there to help me (years ago)! I've also been blessed with all the help and support of so many here!! They've been a God send to say the least!!
Yes, I did indeed have those twinges of pain and the good news is...they do go away. I think it's a sign of healing from the inside out (if that makes sense). I think the tenderness I experienced bothered me more than anything. I had a total hysterectomy four years ago and it was as if these organs just reappeared - aching and throbbing - almost as though I had constant cramps and the same discomfort I had with the endometriosis - weird I know!! It makes one wonder what the inside thinks of all this "emply" space after removing 5 1/2 feet of colon - on top of all the female organs they removed years ago !!!
Your question regarding my fingernails - mine have always grown "wavey" if that's the same as deformed LOL!! I've worn tips for years now so no telling what they would look like now.
BOOTYNOWORKY - I'm glad you're feeling somewhat better today - I just hope it continues for your sake - NO MORE PAIN (or at least tolerable anyway)!!
I will be the first to say that with ALL my previous surgeries for the female problems I've had, I'm a quick "get up and get going" type of person, HOWEVER, three weeks post-op from this surgery, as you are now, I was still laying around and taking it easy. I did get up and about, but I didn't push myself - I let my body dictate to me what it could do. Like I've mentioned several times - I'm now 16 week post-op and I can honestly say I'm just now able to do 100%. Being active is important and it's a part of the process, however, doing too much too soon may be a set back - so listen to your body!!!
Post Edited (STUCK42LONG) : 3/9/2007 5:55:09 PM (GMT-7)
I do believe I'm getting closer to scheduling the colectomy because I'm so miserable. I'm sure everyone on this forum can relate to having absolutely no energy and no desire to much of anything. I am also a full-time student and will get my BS degree in May; I wanted to finish last class before I have the surgery because I have worked so hard for the past 3 years to get my degree. I've been taking 4 Correctol every 2 days for the last few months so that I can go. The different colors when I go also concern me; one day yellow, one day dark green or close to black and so on.
My doctor seems to think my abuse of laxatives since my college years contributed to my colon problems and I know he's probably right. I have been taking laxatives or some form of colon cleanse almost daily since my early 20s. I did have the bowel problems before I was diagnosed with fibromyalgia. Unfortunately most doctors in my area don't believe fibromyalgia exist. They seem to think it's a label doctors put on an illness they cannot identify. This is an entirely different issue, but the pain seems to be getting much worse lately. I'm so happy to hear your fibro symptoms are subsiding. That's very encouraging newss.
Thank you again for responding and I will continue to gain strength and valuable information from everyone in this forum.
Post Edited (surviving surgery) : 3/10/2007 8:02:52 AM (GMT-7)
SURVIVING - I'm so excited to hear you're doing SO much better now!! I'm sure KNOWING the why's of your situation is really a blessing to you!! Isn't the weight loss WONDERFUL!! I topped out at 30lbs and have regained five, give or take - AND not looking pregnant anymore is even better LOL!!
RESA - I'll be thinking and praying for you!! I'm sure you're having rollercoaster emotions about now - I sure did - I'm sure everyone else here did as well. Just know that you will feel like and be a new person in a matter of weeks (maybe several weeks, but weeks)!! Seeing that I suffered with my condition for 43 years - the last 16 weeks have been trying and a blessing all wrapped up in one!!
PHYLLISB - Since my total hysterectomy four years ago - I do take homone replacment via a patch. I couldn't deal with the sudden onset of the hot flashes and severe mood swings. I take medication for severe depression and mood disorders as it is. I know their are risks to hormone replacement, actually there's a risk with any medication, so I opted for hormone replacement knowing I counldn't handle the hot flashes and severe mood swings anymore.
You mentioned being a hollow woman if you do indeed have to have a hysterectomy. I had those same feelings!! I made a statement in a previous post about the weeks of such tenderness post-op and it being some how related to being a "hallow" woman. The tenderness was EXACTLY where my female organs used to be (I had endometriosis so bad for many years and after serveal surgeries and much pain, it continued to come back, leaving me in severe pain in the female organ area all the time). I have noticed one improvement if it will make you feel better - I don't dribble anymore when I sneeze, cough, or laugh real hard anymore. I can only imagine what my remaining organs were thinking after the 5 1/2 feet of colon was removed - it was probably like me walking into a mansion and trying to decided where I wanted to go first LOL!!!
LISA - I'm happy to hear you're seeking a permanent resolution to your situation. If it helps any, many colorectal surgeons (or general surgeons) are so booked in advance for this type of surgery that you will more than likely be able to finish your schooling if you get in now to see a specialist/surgeon.
I too had to take laxatives for many years for my constipation. My situation began when I was 15 months old and by the time I was 19 or so - I HAD NO other choice than to take laxatives. There was absoluetly NOTHING else that worked, and up until two or three years ago, they didn't work anymore. I was actually taking 48 extra strength Exlax over a three day span, drinking that magnesium stuff in the green bottles, Miralax, Lactalose, Zelnorm, Amitiza (all at the same time) and hardly NOTHING was moving.
I did the two day prepping before surgery, Miralax, Ducolax, and a fleet enema the morning of surgery. Upon arriving at the hospital I was given SEVEN of those deep enemas before they cleared me for surgery. The nurse was in awe when she saw how much of the fluid I could take in before having to take off the the bathroom!!
Sorry if I've repeated myself on anything - just like to share and help those facing surgery or those who are in recovery!!
Gogently, my apologies, I have been very busy at work ( went back full time 6 weeks post op). I flew roundtrip to Virginia this past week in a 48 hour period ( 7 weeks post op) and though I was a little sore in my upper abdomen, I did ok. I have increased my diet over the past few weeks but still have difficulty with most dairy products -- the exception is cheese. I am trying to incorporate some new exercises to help strengthen my back and abdomen. I still experience some temperature difficulties, but I attribute those to my surgery induced anemia and menopause ( hysterectomy at 28).
To all of you who just joined, I welcome you and hope that we are able to help.For those of you who are experiencing difficulty my heart felt prayers go out to you. The important thing to remember,, though we all share the same surgery, we heal very differently. Please know that I am here to support each of you in any way possible.
SAVANARED/TRACY - I don't believe I've had the opportunity to talk with you yet - very nice to meet you - you sould like a very sweet person!!
So, you made it back to work six weeks post-op - GOOD for you!! I'm blessed and have been blessed that I haven't worked outside the home since 2000, however, I don't think I could of made it back in six weeks!! Be assured that you WILL be able to handle dairy again. I'm 16 weeks post-op and last week was the first time I handled milk with no problem. I think that I'll still use "caution" and not consume a lot at this point - just be patient OK? (Lord knows we've had to learn to be patient in our healing process)!!
GOGENTLY - So, how was your first outing? I hope you enjoyed every minute of it!! I know that in this stage of the game for me - things still want to move thru quickly (the timing issue is getting better though). If I go out to dinner - I pretty much end up going straight home (no time to go shopping YET - LOL)!! I have NEVER liked public restrooms and try my hardest to avoid them as much as possible.
SURVIVING - How was your weekend - hopefully as pain free as possible!! Please keep us posted on your doctor appointment today OK?
Stuck42long and all-My outing this past weekend was fun. It was my anniversary (32 years!) and my husband wanted to get me out of the house 2 nights. We drove about 2 1/2 hours from home and stayed in a cabin on the coast. I live in Oregon and of course it did what Oregon does best this time of year...Rain! But we had a fireplace, no phone, no frills. It was wonderful to get out of the house since it's been 7 weeks today! I did real well on the drive out there but on the way back we had to stop so I could stretch. I find that if I stay in one place too long every thing seems to seize up and ache. That could be the fibro too.
PhyllisB-I had to smile about your 'energy surges'. It is too bad they can't find a way to tap into the heat we generate. We could probably generate enough electricity to power our house day to day! Have you scheduled the hysterectomy yet? I like Stuck42long response about being a 'hallowed woman'. I'm one of those too now that I've had my ovaries removed. Did you have any other surgeries prior to the TC and the ovary/tube removal? How long did you deal with constipation?
You're not kidding about providing energy for the house and at times I could do the whole block. Anyway, I have had multiple GYN surgeries which culminated in loss of ovary and tube...I am scheduled for preop testing on the 21st and D&C on the 28th....If I need the hysterectomy which I am sure he is going to recommend, my husband and I decided we should go back to the Cleveland Clinic to whom the colorectal surgeon recommended. This way if there is trouble with the colon he will be there...Cleveland Clinic is just wonderful. They saved my husband's life when he was diagnosed with bilateral kidney cancer. They did kidney sparing surgery on him and he is now 5 years out..no chemo or radiation and he is doing fine. Even though we live in NY I would have more confidence to go out there...So it is just a waiting came and trying not to get too stressed out (yeah sure) until the decision is made.
Glad you had a good outing...the first of many enjoyable ones
Had my total colectomy 6-19-06 at Cleveland Clinic and they were wonderful....that is why if I do need hysterectomy I will go back there...
Glad to hear everyone else is doing pretty good....
everything went really good at the doctor. He couldn't find anything wrong with me and said everything was normal if not better than normal. My incisions looked really good, he said I looked really good. Urine-analysis was normal. He looked at the cat scan the other hospital did and he said it was all normal. He said there was a small "kink" that might have made me throw up and cause me all that pain that night, because there is nothing wrong with me. He said the kink would settle and go away. He does not want me to take vicodin anymore, only ibuprofen from now on. He suggested I go to the chiropractor too, I might be confusing skeletal back pain for kidney pain because there is nothing wrong with my kidneys. (they looked at those too) He poked around for a little awhile and I got to go home unscaved. I was scared, there was some freaky looking tools out on the counter with some lube next to them! Eeek!
So, in less words, it was a fluke. I do feel better. I got allergies full blast all the sudden, so that is making me feel pretty crappy, but I do feel better pain wise. I went to the chiropractor today and got an adjustment so hopefully my back pain will feel better. I do have lower back scoliosis I was being adjusted everyweek before the surgery. Tommorow I am going back to the chiropractor for a back massage. They are going to pretend like I am pregnant so I don't have to lie on my tummy.
I made it to the wedding Saturday. It was an hour away, so it was a pretty long day. The food was good. I could eat everything there except for a pasta in cream sauce. I remember what happened last time I did that! They had grilled chicken on a stick thingys, shrimp on stick, salad, bread, and little roast beef sandwiches. (I didn't eat those little sandwiches either, i was too full by then!) I really do eat everything except cream and milk. I even have been eating small amounts of well-chewed salad. That was another thing the doc made sure of, he wanted to make sure I was trying foods. It can be scary, but I just do it. Maybe because I am dumb and foolish I am not scared. In the can fruit section there is this fruit sorbet you put in the freezer, it is really good. I've only tried the mango so far. Good ice cream substitute.
My doc's appt went well. I'm released to do whatever. It will be 8 weeks on Monday. I don't need to see him again until June unless I have problems. He said I can lift again but if it hurts it is too heavy...that is like Booty's doc telling her don't do too much but stay busy He said it will take about a year for the surgery scar to turn white. He said the lumps and bumps along the scar will dissolve and settle down. I was concerned because after surgery it looked like I had a second navel! Then after the hemotoma scar sunk in it looked like I had a third! I thought if I ever wear a two piece again I'll look like I'm an alien with 3 navels But even with 3 navels I'm still glad I did it! How is everyone else doing?
GOGENTLY - Congratulations on your doctor appointment!! Eight weeks out is still "soon" to me - I know at eight weeks out I was still wondering when I'd feel "normal" again (tenderness in lower abdomen and regaining my strength).
about your navel - long story short - after one of my lap operations for the endometriosis - it looked as if I had two !!!!!!!!!!!!! Fortunately or unfortunately for me (however you want to look at it) I ended up having another lap surgery and it fixed it.
I'm willing to bet you'll live with your "alien" navel vs another surgery LOL!!
Like GOGENTLY asked - how is everyone else doing? I hope ALL are doing good!!
Think positively about your three navels....You can get 3 belly button diamonds.....
Glad to hear all is well out in colectomy land