Please HELP Ileostomy soon and scared

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maryviolin
New Member


Date Joined Mar 2007
Total Posts : 15
   Posted 3/22/2007 3:22 PM (GMT -6)   
Hi Everyone you are all so brave...I wish I was..I need an ileostomy for paralyzed bowel... my whole life I have had bad bowels...when I was 7 or so I didn't go for 2 weeks and got septic poisoning ..and then my mom started giving me milk of magnesia...and when I was a teen and 20's I just quit eating..people thought I was anorexic but now I know it just hurt too much to eat...so I have a great Dr. now who is willing to do the ileostomy.....and I am planning it for May o7.... I have alot of other health issues...and am scared...4 years ago I almost died from a very minor surgery so I am really freaked out....I am 43 and have arthritis through my whole body and had to have a bone scan today because I may have cancer in the bones...which spread from my breast...I have also had a hysterectomy 14 years ago....and after the hysterectomy my bowel was just paralyzed from spinal cord problems ..I have a herniated disk compressing my spinal cord at T7-8 so I am not sure if I can survive the ileostomy....it sounds like for even people who are otherwise healthy that it is quite a long time of recovery...please give me any words of comfort you can...also I saw someone on here that had colon inertia... could you please write me .....my email is maryviolin1@yahoo.com.... thanks.....

chip
New Member


Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 8:27 AM (GMT -6)   
good luck with the surgery - all i can say is that having a stoma changed my life for the better. It is for me anyway so much more hygenic than sitting on the loo with diarrheao and its quick and easy to empty (especially with velcro fasteners) it takes some getting used to but being free from pain will make it all worth while
chip girl x

Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 3/27/2007 10:16 AM (GMT -6)   
all the best with your operation maryviolin, im 17 and had my colon removed due to UC onthe 7th march 2007. The stoma isnt the most pleasant thing to look at but youll get used to it :) its changed my life for better, i can actually sit through a 1 1/2 hour class at college without running off to the loo :) it has changed my life for better, i love having my life back and when i get back to playing football itll be like the stoma isnt there. Just keep your head up high and think about the positive things.

Take care
Liam

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 3/27/2007 8:06 PM (GMT -6)   
I am having my surgery for a ilesoty 4-17, and I am really excited! I have a few worries, of course, but other than that I am sure it will help me. And it sounds like you will have a much better life afterwards! I will tell you this, I read probably 200 peoples posts and I talked to people and NOONE said they regretted it, in fact most said they wished they would have done it sooner.
GOod Luck!

maryviolin
New Member


Date Joined Mar 2007
Total Posts : 15
   Posted 3/27/2007 8:44 PM (GMT -6)   
Hey thanks for the replys...yes I am very scared...scared of the recovery...how long does it take to get up or out of the hospital....I almost died from a very minor day surgery a few years ago so I am really scared.....if anyone can remember what the few days right after surgery was like I would like to hear about it....thanks again for the replys and I will keep you all posted...

Firthy
Regular Member


Date Joined Mar 2007
Total Posts : 33
   Posted 3/28/2007 2:55 AM (GMT -6)   
Aww dont be scared just think how your going to be in a few weeks time. I had my operation 3 weeks ago 2day and i feel amazing. I had my op on the 7th march, and the day after i was up out of bed and sat in a chair and gave myself a wash. But that did tire me out. The day after that i did the same but it was alot easier, it did hurt my stomach but i wanted to get out of bed. A week after my op i went home but it took me the best part of 40mins to get to the car lol. Hope this helps.

Liam

maryviolin
New Member


Date Joined Mar 2007
Total Posts : 15
   Posted 4/4/2007 10:08 AM (GMT -6)   
Thanks Liam, I am 43 and not in the best of health ....I have a tumor on my spine plus a herniated disk compressing my spinal cord and a mass in my breast now...and I am just not sure if my body will be strong enough to pull through all the strain on it.....I will go through with it because I have no real choice ...I am dying this way so I have to at least try.....did you have any bad reactions to the anestesia or the pain meds...did you take pain meds....when can to take meds by mouth.....thanks mary
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