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dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 3/23/2007 6:23 PM (GMT -6)   
Hello everyone,
 
This is my first time in this particular forum I am usually in the crohn's forum.  I was admitted into the hospital back on Feb 11 and had an intestine resection and was doing well for a few days but I was not passing enough stool even with enemas.  On Feb 19th the colorectal surgeon went back in drained an abscess as well as removed 1/3 of my large intestine fearing it would burst soon since it was so impacted.  This caused me to have a temporary ileostomy.  I am still getting use to the whole thing also after the 2nd surgery my wound became infected so in addition to the ileostomy I get to carry around a wound vac. 
 
My stool is still very watery most of the time no matter what I eat especially when I wake up in the morning.  I tend to feel awful in the morning and begin to feel better as the day progresses.  I was wondering if anyone else here has had that issue?  Is there anything else I can take or eat to help?  My doctor has me take 2 imodium in the morning and now I am taking 1 metamucil tablet at bedtime as well. 
 
Another question I have is about pouch cover patterns and if anyone knows any good websites that have patterns?
 
Stef
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


Brannah
Regular Member


Date Joined Oct 2006
Total Posts : 109
   Posted 3/23/2007 8:14 PM (GMT -6)   
Hi Stef, I've seen you on the crohn's board too.

I make my own pouch covers. For a pattern, on a piece of light cardboard or something similar I just draw around the top half of the bag and give it an extra half inch to an inch in width. It should come out looking like a bigger version of the bag. On the material I cut the whole out on one side and then sew the two pieces together. T-shirt material works best as it doesn't fray. (in most cases I just fold the material in half and cut both sides at the same time, I use the fold for the top of the cover.

If you would like another board to check out, there are a ton of helpful people at this site.
http://st80.startlogic.com/~ostomate/cgi-bin/yabb2/YaBB.pl

dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 3/24/2007 3:32 AM (GMT -6)   
Thank you for your info I will try thay as well as look at that site :)
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


chip
New Member


Date Joined Mar 2005
Total Posts : 19
   Posted 3/27/2007 8:22 AM (GMT -6)   
hi stef and sorry to hear of your problems. i'm in the same boat with very high watery output and on 16 loperamide a day. the problem is with high output stoma is that meds can come out whole before they have worked properly so my doc put me on the syrup form of loperamide 160ml per day, which helps plus cut down on fluids despite what the advice says for "normal" ostomates if the output is high as you may be losing sodium, getting thirsty and drinking more as a result, a bit like a visious circle. Ask your doc for a sodium electrolite mix to make sure you don't get dehydrated. hugs
chip girl x
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