Hello all I was just wondering how much additional fluid I should be taking in due to the ileostomy. I tend to be filling my brita fridge pitcher 2 to 3 times a day. Also I have been drinking tea, orange juice and lemonade. My stools are finally forming up a bit but I hope that I am still drinking enough. I have noticed that if I have more sodium at night I wake up feeling better than I have before. I wonder if this was due to losing so much fluid overnight. I noticed this occurance the other day on thursday for dinner I wanted burger king so on the way home from the colorectal surgeon's office we stopped in and got dinner. I had 2 burgers, no pickles and a king size french fry. On Friday morning I felt much better than I had I even went so far as making cornbread for breakfast.
Prior to my sodium at night I woke up dizzy, stumbling and felt like vomiting. I also noticed I could barely see my veins (they are hard enough to see when I am hydrated). I would heat some water up in the microwave and while that was heating I would go empty my pouch. When the water was done I would make decaf tea. I also filled up my water bottle took my meds and would lay down even fall asleep until noonish. Then I would still feel awful but after taking in the tea and some water I had enough strength to make ramen or open a can of chef boyardee. Like I said beofre as the day progrerssed I would feel better.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.