Please keep searching for the root of your troubles. Thank goodness you have insurance now!
In addition to a second GI opinion, I would ask you to seriously consider having a full evaluation by a Colorectal specialist. And then perhaps another opinion by a second one. There is a national association, but I don't have that info at hand. Cleveland Clinic, I know, is one of the primary colorectal facilities - wouldn't hurt to call. You'll want this type of qualified specialist anyway, if surgery is necessary.
I have a granddaughter your age and would give her the same suggestions. Gather ALL! the reports from previous doctors, copies of all your lab work, test results, etc, etc, etc - then get to someone who can give you answers, and somebody else to verify them.
Good Luck! Martha
I'm so sorry you've had to go through all of this at such a young age. My heart goes out to you, and I'm glad you found this forum, too.
To answer your question, I do not think your surgeon is nuts. He wants to help you feel better and not be in so much pain. I had Crohn's disease in my rectum and large intestine for 7 years before finally agreeing to have surgery. Looking back, I can't believe I waited so long, because I feel so good now.
Having an ostomy is really not a big deal when you compare it to being sick and in pain all the time. It is completely hidden under your clothes, and nobody would know you have it unless you tell them. My husband is so happy that I'm healthy now, and he doesn't even notice it.
I agree that you should get a second opinion to make sure that surgery is the right path for you. With all of the pain you've been having in your rectum, bypassing it would bring you some much-needed relief. Imagine never having to sit on the toilet again waiting for something to happen! You shouldn't have to go through that anymore.
I bypassed my colon and rectum for 8 months with a temporary ileostomy before deciding to make it permanent and have them removed. By getting the chance to try the ileostomy out before committing to it, I found out that I liked it much better than I thought I would.
Good luck with your decision, and please keep us posted on how you're doing.
I saw your post and maybe, because it is old, you have probably been sorted now. but if not, you havent had an MRI scan, which is the only test which really shows whats going on, as other scans can miss things. hope that helps, but if you are fine, then great. karen