Any Kock ileostomies out there?

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Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/19/2007 9:47 AM (GMT -6)   
Hi everyone! I have been on the ulcerative colitis forum for quite some time now- my disease has progressed to the point where surgery is fast becoming a reality. I just spoke with my GI this AM regarding the different types of surgeries- I have been leery of a j pouch for various reasons, I don't like the idea of wearing a bag forever, but the Kock ileostomy sounds ok. However, I don't know if this type of ileostomy is performed frequently, or if there are problems people experience, etc. If anyone on here has one, could you please share your experience with me? Any info would be helpful- I can only check the boards from the library or work, so I won't be on again 'til probably this Saturday. Thanks a bunch! Hope everyone is doing well! :-)
diagnosed w/proctitis- 2003
progressed to UC- Summer 2006, flaring ever since
current meds-
Asacol- 12 tabs/day
Imuran- 100mgs/day
Omega 3- 2400mgs/day
Probiotics- 1 cap/day
Prednisone AGAIN!- 60mgs/day


suebear
Forum Moderator


Date Joined Feb 2006
Total Posts : 5692
   Posted 4/19/2007 12:55 PM (GMT -6)   
There is a very active Kock pouch discussion forum on the www.j-pouch.org board.

Sue
dx proctitis in 1987
dx UC in 1991, was stable until 1998
1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics
2000 lost all my B-12 stores and became anemic
2001 opted for j-pouch surgery- now living life med-free
 


soccermandy
Regular Member


Date Joined Apr 2005
Total Posts : 78
   Posted 4/20/2007 8:02 PM (GMT -6)   
You don't have to have the bag forever with a J-Pouch surgery. It's just temporary. There's a 1,2, or 3-step surgery that can be performed resulting with no bag in the end. With a 1-step surgery, you don't have to have a bag at all...they take out your colon and connect your small intestine all in one step and that's it! With the 2-step you'll have the bag for 2-3 months then get reconnected, and with the 3-step you'll have the bag for about 5-6 months then get reconnected.
17 year old female diagnosed with UC in May 2004..
Only had two 3-month remissions, and all together lost 1 plus years due to flare-ups.
Medications:
75mg of 6-MP - 12.5 mg of Prednisone - 500mg of Pentasa

*~*Step 1 of a possible 3-step surgery is May 10th*~*


Eva Lou
Veteran Member


Date Joined Sep 2006
Total Posts : 3437
   Posted 4/23/2007 2:18 PM (GMT -6)   

thanks for the info- I'll check out the jpouch website- I didn't see any kock discussions on it before, but I wasn't really looking for them either. I am not interested in getting jpouch surgery done, if it does come to that. But I'm still hoping it doesn't!


diagnosed w/proctitis- 2003
progressed to UC- Summer 2006, flaring ever since
current meds-
Asacol- 12 tabs/day
Imuran- 100mgs/day
Omega 3- 2400mgs/day
Probiotics- 1 cap/day
Prednisone AGAIN!- 60mgs/day


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2007 9:27 PM (GMT -6)   
I looked into that Kock pouch too, but when I found out only about 500 had been done so far, I thought no thank you, lol. They are also only done in a few parts of the country, Mainly in MIssissippi and Lousiania. I asked my surgeon about it before I decided and he said that that particluar surgery still had alot of problems to be worked out. He said he didn't recommend it but that he would glad send me to someone if I wanted to go. The bag really isn't that bad.
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