What do I do ?

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Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 4/24/2007 12:24 PM (GMT -6)   
I thought that I was really lucky finding the Hollister two piece systemright out of the hospital.. It is easy to use comfortable and lasts a long time. I especially like the convenience of the detachable bag----that is until this morning. I decided to sleep in a little but I was awakened by my visiting great grandson (2 years of age). I came awake like a shot and my bag exploded. I usually get quite a bit of air overnight, but this was a little too much plus there was more than air.. Bad Bad Bad. I like the Hollister system, but I have to be confident that it is secure. Any help out there?
Arundinaria confused
When there are no more choices, tha decision is easy!


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/24/2007 4:13 PM (GMT -6)   
they do have a 2 piece system with air vents go onto their website they will gladly send you samples
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 4/24/2007 4:45 PM (GMT -6)   
i'm up once a night to pee anyway, so i empty my bag then. so i get two 4hr blocks of sleep. doesn't seem to bother me any.

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1243
   Posted 4/24/2007 9:23 PM (GMT -6)   
You will probably never find a system that is 100% secure. If your bag is full to bursting point, then no matter what you're using, it has to escape somehow, esp if pressure is put on to it. You can experiment with other bags (maybe try using a bigger bag whilst sleeping) but if it gets that full, no matter what system you're using, there is going to be a point where it just can't hold anymore.

If you like the Hollister system you're using now, as I say maybe see if the bags come in a bigger size so you can change to the bigger bag for nighttime. That way it mightn't get so full by the morning.

Good luck.
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


cooperazi
Regular Member


Date Joined Feb 2007
Total Posts : 47
   Posted 4/25/2007 12:16 AM (GMT -6)   
Hi,  I do not know how long you have been an ostomate, but I am assuming you are fairly new.  That being said, I have been an ostomate since July 2004.  I seem to remember that in the beginning things worked much different than they do now.  It seems our bodies take a while to adjust and such.  In the beginning I too had my bag fill up a lot at night time, and I would wake up in the middle of night to find a bag ready to burst.  I also woke up several times with leaks.  However, three years out, and this rarely happens now, unless I may eat way too much or eat some reallly spicey food (that seems to make my colon work overtime)  I remember going into a store with pretty much an empty pouch and when I was leaving the pouch was full within minutes!  I was so shocked, and for a while paranoid about going out and about too far from home.  That has not happened in such a long time, I can not even remember a recent event.  My colon rarely works much now when I am sleeping.  Howeve, I will admit due to being a diabetic,  I am also trying to control what I eat and when I eat, so I am not eating much in the evening before I go to bed.  I say all this to say............. soon your body will calm down, and you will become accustomed to this, and you will soon be able to more confident, and learn how your body responds to this new way of working.  Take Care, Donna

Arundinaria
Regular Member


Date Joined Apr 2007
Total Posts : 160
   Posted 4/25/2007 8:56 AM (GMT -6)   
Stacie
I am sorry if I have caused you some concern. Actually I am a new ostomate. Just a couple of months now. However if it comes to a trade between living (?) before the operation and after. I elect after. I feel better than I have in years. I kind of think of my self as a baby. I need to be potty trained, and as some of those far more experienced and wiser than I have said, I will find that things get better yet. I pray that you may find happiness and peace even though you will be a bag lady>

Arundinaria yeah
When there are no more choices, tha decision is easy!


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/26/2007 10:13 AM (GMT -6)   
I am also a new ostomate. My ileostomy is temporary since mine was due to emergency surgery (2 actually). I have had Crohn's diesease for 20 years with no prior CD related surgeries until Februalry 2007. I went into the hospital and a CT revealed my ileum was perforated. The following day after having me on IV antibiotics ( I was running a fever of 102-104 F) they did a resection. Within a week I ended up with toxic megacolon and that is why I have this ostomy now.

I had many complications with my surgeries as well, wound infection and 2 abdominal abscesses one of whichI still have a drain in. I have a wound vac on the wound and it is healing great! I was readmitted 2 times after I was discharged the 1st time. That was due to the abscesses.

I have had the ostomy since Feb. 19th and yes at 1st I had lots of gas overnight. I also have had 2 times overnight where my ostomy leaked. The main reason why mine is doing that is because of the wound vac being a little over 1 inch to the left of the stoma. My drain is about 2 inches to the right of my stoma. The visiting nurses come 3 times a week to change my dressing for the wound vac and my flange. The reason they change my ostomy suppies is that it overlaps the dressing for the wound vac. If the wound vac is turrned on and the suction occurs then the flange is placed I tend to have leaking issues. I currently use the flanges with the tape edge once that is on then the vac is turned on and the tape is sucked into every little nook and cranny making a better seal. I am unable to change my own flange at this time as well since when pulling the flange off also pulls the vac dressing off.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 4/27/2007 11:25 AM (GMT -6)   
Wow,I am starting to get a little scared,too. Dr. will be removing my sigmoid colon and "repairing" my prolasped rectum. However I will have the bag.I can handle that. I have been incontinent now for 2 years. I want to get out and around after my surgery,I have been in the house so long! But I sure don't want anything like leaking to happen,especially in our bed. It's bad enough as it is. I never even asked him what this procedure is called. I feel pretty stupid about that. All I could think was that finally I would get relief from the pain and not have to wear diapers anymore. And I don't know what a wound vac is either.
  1.  


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 4/28/2007 3:14 PM (GMT -6)   
There are always going to be scary stories. The best advice about accidents is get a sense of humor. There will be accidents, at least at first while your body is adjusting and you're trying to find the system that's right for you. Someone should start a thread on funny accidents, because while they don't seem funny at the time, you will laugh about it later. Way worth it in my opinion.

Dragonfly had to have emergency surgery, had some complications including an infection so she had to go through a rougher time than most (really rough). Most surgeries are pretty straight forward and hardest thing you'll go through is the pain management in the first few days. After that it's learning how to deal with your ostomy.

Keep your eye on the goal of having a life again. Pain free hopefully, and not chained to the bathroom. I've had mine for 17 years and am very glad I have it. I had no life for too long, now I can do anything I want.

Good luck to all of you facing this surgery.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, currently trying to figure out a new medication protocol.
 
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 4/30/2007 2:31 PM (GMT -6)   

Sorry I took a while to respond back about the wound vac question.  My incision got infected when an overly eager resident let feces get into my incision and just dabbed the superficial feces away with gauze.  I asked her to flush out the incision and she said no it will be okay.  Needless to say after many bad calls on her part I no longer even allowed her to enter my room.  The wound vac helps to suction out the infection and it also helps to speed up healing by up to 60%.  It stinks having to carry around a battery operated vac caister thoough.  If you want more info you can look up KCI wound vacs.

 

Stef


Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


awesomeame
Veteran Member


Date Joined Feb 2006
Total Posts : 625
   Posted 4/30/2007 2:45 PM (GMT -6)   
i've had mine since newyears eve, and you'll learn over time what the bag can and cannot handle. i have yet to have a leak or burst or anything like that. i go to the gym daily, sweat my butt off, shower, and still i'm getting 7days of weartime out of one flange/bag. i was paranoid for a few months about leaving the house and the bag "falling off" or whathaveyou...but it just hasn't happened.

--matt
Dec 2006: Proctocolectomy/permanent ileostomy
Since 1991: Indeterminate crohn's/ulserative colitis


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 4/30/2007 8:47 PM (GMT -6)   
I can't figure out why anyone would want the Jpouch either, Stacie. But I guess that is a personal choice. I am really really new at this, only two weeks so far, lol. But today I went somewhere without worrying where a bathroom was! We got stuck in traffic and I was like, so what, no big deal!
The first week and half I had so much gas it was crazy, every ten minutes it was full of gas, and then I started eating regularly and that calmed down alot. I am sure I will have leaks, but I think it will be much less embarassing to have a leak from a bag, than an accident! I have been sleeping on some waterproof pads at night, that way if it does leak it will be easy to clean up. And I get up like 50 times to pee anyway, so I just empty it then, lol.
Good luck to you guys!
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