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Date Joined Apr 2007
Total Posts : 160
Posted 5/7/2007 2:01 PM (GMT -7)
I had been thinking that my stoma was unusually large. It protrudes at least an inch and is about
2 1/2" by 1 1/4". It is situated so that the bag falls right on my belt line. I really would rather have had one of the small ones located below the belt line. I have a noticeble bulge on my right side even dressed,, and the capacity of the bag is cut about
in half. It makes for more frequent ventings. Unfortunately I still get leaking beneath the wafer. I don't know why, but it seems like every second or third change is caused by a leak.
When there are no more choices, tha decision is easy!
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Date Joined Sep 2006
Total Posts : 2527
Posted 5/7/2007 5:01 PM (GMT -7)
Unfortunately my ostomy sight is also at my waistline. How long ago was our surgery? My stoma started out at 2 1/4" back in February and now my stoma is 1". I have had some wafer issues but I am wearing elastic waist pants all the time or scrub pants. You may want to try a different company for supplies. I also use skin prep and paste which tend to help a lot. If you have not tried hollister supplies you ca go to their website and order samples (just make sure you also order the proper flange and bag since their new image line doesnt coordinate with center point and lock system. You may want to try a flange that has a tape border or maybe one without depending on what type you are using now. I am not sure how frequently you are changing your flange but maybe try 3 to 4 times a week as opposed to 2. If you use a one piece you may want to try one that you can empty rather than having to change the whole bag each time.
Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.
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Date Joined Feb 2003
Total Posts : 1200
Posted 5/8/2007 3:02 AM (GMT -7)
There is no set size for a stoma - there are some tiny ones and there are some huge ones. Obviously, colostomy stomas are usually bigger than ileostomy stomas, simply because in colostomies, the stoma is made from the large intestine whereas in an ileostomy, the stoma is made from the small intestine.
Because your surgery is new, your stoma is probably still swollen quite a bit. The good news is that your stoma will probably continue to shrink a bit over the next few weeks until it reaches it's ultimate size so remember to measure it each time you change so you can be sure you're cutting your wafer to the correct size. In your wafer pack, you will probably see a measuring guide. You'll notice it has many difference sizes on it - simply because stomas come in many different shapes and sizes.
A stoma that protrudes at least an inch is good - you really don't want it any shorter than that. With that length, hopefully, the stool comes out of the stoma and into the bag rather than the stoma pushing the stool out under the wafer.
Most people do tend to have a slight bulge on the side of their stoma for some reason. As long as it's not hurting or a reddish colour (both of which could indicate a hernia), it's perfectly normal.
Regarding the leakages, there are several things you can try. First of all, visit the various manufacturer's websites and ask for as many free samples as you can - there may be one that sticks to your skin better than the one you're currently using. I'll list the websites at the end of this message.
Secondly, maybe invest in an ostomy belt. A lot of people swear by them and love the security it gives them.
Thirdly, seek the advice of your stoma nurse if you have one. He/she will be able to give you some hints and make sure you're doing everything correctly.
Also, if you're using paste, remember, it's not an adhesive as the names suggests. It won't help the wafer stick any better. It's more a caulking agent designed to fill in any gaps between the skin, stoma and wafer.
The main manufacturer's websites are as follows:
There are some others too, just Google them to find them.
Good luck and I hope this helps.
I have had an ileostomy for 31 years now due to UC.
Moderator of the Ostomy Forum
I'm not a complete idiot - some parts of me are missing!
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Date Joined Jan 2009
Total Posts : 2
Posted 1/13/2009 12:37 AM (GMT -7)
i had a emergency ilestomy stoma made on the 17th december 2008 and mine is slightly higher than normal, but what i found is if you are using the one piece stoma bags just cut the hole for your stoma to sit in a bit higher and you'll find that you belt or trousers will avoid rubbing or sitting on it. also i find carrying some water proof dressing tape helps just in case of small leaks till you can find a restroom to change or fix it.
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