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Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/28/2007 10:18 AM (GMT -6)   
I have my stoma and bag now so I am official one of the gang.
Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


Shaz032
Forum Moderator


Date Joined Feb 2003
Total Posts : 1246
   Posted 5/29/2007 8:05 AM (GMT -6)   
Welcome to the Baggie's club :)
I have had an ileostomy for 31 years now due to UC.
 
Moderator of the Ostomy Forum
_______________________________________________
 
I'm not a complete idiot - some parts of me are missing!


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 5/29/2007 9:05 AM (GMT -6)   
Crohned, welcome to the club, I hope your life is much easier and fuller now.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/29/2007 9:46 AM (GMT -6)   
I have a few questions about the bags. They set me up with the Hollister "new image" bag that I don't particularly care for. It seems too big for my body-it hangs down into my crotch making it very uncomfortable. I tried folding it in my underwear but then it just bunches horribly and is also uncomfortable. I also don't care for the clear/see through plastic. We don't need to seeing the contents of the bag all the time.

So, I'm thinking I need a smaller set-up. Any suggestions?

My ostomy nurse will be meeting with me sometime today so I will ask her all my questions but I wanted to know what the people who actually wear these think are the best brands.
Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 5/29/2007 9:58 AM (GMT -6)   
Go to the Hollister web site, you can look at the products and order samples. I would also check out Convatec and Coloplast. They are the top 3 companies.

I'm not familiar with that exact product, but I believe they make different sized bags.

I'm pretty short waisted, and I have to fold mine in my panties, the smaller bags don't just hold enough.

Yes, you can get bags that aren't clear, lol. The last time I was in the hospital for an obstruction the nurses were put out because they couldn't see my stool, lol. Sorry, won't use clear bags, if they want to see it, they need to supply the nasty bags or look in the loo when I'm done.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade, now on antibiotics and prednisone, currently awaiting liver biopsy to see where we go from here.
 
 


summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 5/29/2007 4:24 PM (GMT -6)   
There is a mini pouch for the kind you wear. I wear the same kind. I did try the minipouch but I had to change it too much in the morning.

Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/29/2007 4:48 PM (GMT -6)   
Great Replies, I'm going to go surf the web and see how much free crap I can accumulate.
Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 5/30/2007 10:03 AM (GMT -6)   
Hello Crohned and welcome to the baggie club :-)

You could see if you can get some samples of Coloplast bags to try. I have used Coloplast Assura one piece drainable midi size since day one and I am very happy with it. It doesnt hang too far down and I find it very comfortable.


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 5/31/2007 2:16 PM (GMT -6)   
Hello can i join the 'baggie club'please
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 5/31/2007 5:35 PM (GMT -6)   
And I'm guessing that you are probably a nurse due to your "handle-name". I also am a nurse and find that sometimes there is conflict of interest, if you will, between being the pt and being the nurse. Knowing too much, knowing not enough.

I once thought that the "powers that be" would never give me too much for me to handle. I do not believe this anymore, and have asked people kindly to stop saying such nonsense, as it deminishes the horrors that I have endured. In your case, I do feel that you have been given too much, and the end of a marriage must be devastating during this hard time of health deterioration. Hold on to your friends and family, cherish every minute of the good times. When someones asks what they can do to help, find something, anything for them to do. Have them buy you a lucky bamboo plant or something low maintanence that you can help grow. I have found that these simple little things have helped me out on my dark days.

Welcome to the baggie club. It's unofficial, but I feel a part of it, whatever it is.
Take care of you.
Crohn's/Colitis 2003.  Remicaid, Pred, Dipentum, FishOil, 6MP, Vitamins  
 


nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 2:25 AM (GMT -6)   
Thankyou for your reply,I do feel that i have had too much to handle health wise..It just seemed that as soon as i had moved on from one illness another one popped up,most of it is related,mainly because the ileostomy had to be performed because of the bowel that was taken out to be inserted into my bladder(which was relatively small)resulting in this procedure..
But the sadness i have felt due to my husband finding the ileostomy too hard to cope with,has made me feel like someone who doen't deserve love..but it took a lot of pain and suffering to get to where i am to-day,and without the operation i was told i would have been dead,so at least i survived that..
I do plan to move on with my life,but i just wondered how other people cope with this..
many thanks..nursy2
I have recently had a ileostomy,and in the past i have had my left kidney removed due to reflux from my urator,although it was re-implanted numerous times,it lead to continual infection.
I have also had a cystoplasty(using bowel)and at the moment this is causing problems due to the mucus..I am having treatment for bladder washouts
As much as i am finding it difficult to cope with,i have just been told that my husband wants to end our marriage..
Thankyou for reading..nursy2


Suzy2
Regular Member


Date Joined Aug 2003
Total Posts : 335
   Posted 6/1/2007 3:43 AM (GMT -6)   
Nursy2, First of all here is a hug.(((((nursy2))))) and a welcome to the board and the baggie club. Although you are in a difficult situation I sense from your post that you are determined to be posative and get on with your life. Hold onto that.

How long have you had the Ileostomy for? I had mine done in Jan 2003 after 25 years of UC. I think I had it easier than many people because I was sick for so long that it was a great relief to wake up and not have the UC anymore. For me that feeling carried me through and helped me deal better with any negative thoughts that I might have had about the Ileostomy if I had only been sick for a short while. I think that also helped my Husband to accept it a little easier too. For a few years we both knew that the Ileostomy could very well be the end result of my illness so in a way he had time to adjust to it too.



nursy2
Regular Member


Date Joined May 2007
Total Posts : 33
   Posted 6/1/2007 3:57 AM (GMT -6)   
I had it done in April this year,it was performed as an emergency,i had had alot of pains previous to this,and i had gone some tests,but i went to the doctor in the morning because of pains,and the next minute i was rushed into hospital and operated on straight away,it as it had twisted and i was told that part of the bowel had turned gangrene,which really shocked me,as i thought that it was only legs or outside parts could be go gangrene,but there you go..
Even though i am a nurse..i treat people with depression and deeply hurt patients,so i am not much use to myself with the medical side tongue ..
I am tried to put all my knowledge into helping myself with the sadness of losing my husband,but its not working too well at the moment..
But i will get there in the end..
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