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justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 6/19/2007 1:56 PM (GMT -6)   
I've had CD for over 15 years. I've had a temp. ostomy for 6 and a permanent ileostomy for a year and a half. Sometimes I think I may be stating to flair (joint pain) but I've not had an other symptoms since the permanent. Did any of you have different symptoms of active disease once your colons were removed? I don't want to overreact but I don't want to wait until it's undeniable either. Thanks.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 6/24/2007 1:06 PM (GMT -6)   
Much different. The biggest difference is that diarrhea is a non-issue for me with my ostomy, I may still have it, but I'm not confined to my home. A flare doesn't have to limit my quality of life except for the pain issues, and I didn't have much pain until the last couple months.

Of course another issue is I don't have any more is perianal, rectovaginal, and pelvic floor fistulas. I have had a couple abdominal fistulas this time around, but they are MUCH easier to deal with and also don't interfere with my life as much.

I'm so glad I had it done. My new surgeon asked me if I ever thought about being reattached and I almost had a panic attack thinking about it, lol. I wouldn't go back now unless they could grow me an entirely new, "whole" set of intestines.

Joint pain issues aren't always a precursor to abdominal issues either.  On the whole, I've found that every flare I've had has been a little different than the others, so there's no "sure fire way" unless and until you get the pain, nausea,.... you know the same old stuff. 
 
If you know for sure that you SED rate or ANA's are elevated during a flare, you could check those I guess, but for me, I consider myself in remission until or unless I have pain. 
--------------------------------------------------------------------------------


Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade still on Prednisone (my worst enemy), Surgery scheduled for early July. 
 
 

Post Edited (JudyK89) : 6/24/2007 1:14:15 PM (GMT-6)


ivy6
Elite Member


Date Joined Sep 2005
Total Posts : 10404
   Posted 6/24/2007 10:14 PM (GMT -6)   
Judy, you're a constant source of reassurance and inspiration. Really. Thanks.
Co-Moderator Crohn's Forum.

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