In 1981 I had a J-Pouch and 17 months later..... FISTULA! What a horrible thing! At first the doctor thought it was a female problem but alas, when it was opened to drain the smell about knocked us all over! I had numerous surgeries for a repair which never worked. Including being the first person in the world to have a muscle transplant from my inner thigh into my rectum, to no avail!!! I went through hell for years and my doctors never gave up on me. How lucky I was. All the pain and discomfort is gone now as I have a permanent illeostomy. It is the third time for me so I had no misconceptions what it was about. I can tell you that not once since my last surgery have I ever regretted taking that final permanent step! I have been written up in the New England Journal of Medicine three times. My family has been part of a genetic study at Hopkins since the 60's. I have FAP. But I am now living a normal life and to make a few of you depressed folk smile (and I had my share of depression) at least my ass don't stink!!!
Post Edited (flchurchlady) : 7/23/2007 7:35:46 PM (GMT-6)