Thanks for your reply. I did go to the ET nurse after having the skin irritation problem for a couple of weeks. She did seem to think that it was a big deal because she had seen people with much worse and damaged skin. She gave me a sample ofconvatec moldable convex skin barrier to try. It was working great at first because the ring "snug" around the stoma. It is supposed to "memorize" the stoma size. However, two days ago I experienced some irritation around the area, it was then I realized that my stoma had shank and my skin was exposed to the output. I don't know how to correct the situation. I was told that it was normal that the stoma shinks sometimes and I shouldn't worry about it as long as it sticks out again. In the mean time, I have this skin problem that I don't want to let it get out of hand. Also. I notice that when I sleep, the output tends to "cake" around the stoma and the acid "eats away" the barrier ring. I wish I could sleep standing up! I hope anyone out there who had been through all these can give me some pointers.
Thanks again for writing back.
Post Edited (JudyK89) : 7/1/2007 4:39:05 AM (GMT-6)
Thanks again for all your help.
Well, my "Crohn's" was diagonised 13 years ago after repeated hospitalization and a J-pouch which quit working last year. Before that, the G.I. doctor just told me that I had colitis. He didn't do anything when I was having bloody diarrhea and in terrible pains. Not until I dropped 14 lbs. and my blood pressure went down to almost nothing in one week that he put me in the hospital. Anyway, he is supposed to be the most senior G.I. doctor there. So I switched to antoher G.I. doctor who is stationed further away from my house (and the hospital I checked into). I did info the ER doctor that I had Crohn's and obstruction problems (I was already hospitalized twice right before then) but he didn't seem to have a clue. So he checked with the same G.I. doctor whom I switched away from. And that's how I ended up with a busted intestine and spent some time in intensive care. Anyway, it is a good idea that I should try to get my own G.I. doctor involved ASAP when it happens again. (The problem is, she seems submissive to the more senior G.I. doctor who turned me away). That's why sometimes I feel so hopeless with my situation. I am so afarid of having to go to the E.R. again and I know that with my pre-existing condition, I won't be able to switch to another insurance coverage.
What do you think of Immuno suppressent drug? My G.I. doctor wants me to take it. I took it for a while but I got a nasty cold last winter and it lasted for over a month. So I stopped taking it and have been off since. I have taken Prednisone before but it didn't do anything for me.
Whatever your surgery will be, I hope all will go well and that you will have a good recovery. Thanks again for your help to all of us here. Life is not easy but you have helped make it a little easier for people like me.
I don't have any new questions. I just want to let you know that you have done a lot for many of us here and I (we) cannot thank you enough. You have been a great inspiration for me and that people like yourself have really helped me in gaining the confidence to keep on living. Sometimes I just cannot believe some of the things that I (and many other crohnnies and colitis patients) have to go through. I am sorry that you are having another resection (and I thought that an ileosomy will greatly reduced the need for it!). I hope all will go well and that you won't have to spend too much time in the hospital. I have been thinking of you, that's why I am writing so late at night (it's after midnight in California).
Please take good care of yourself. I am waiting for you to come back and write to us.