One Peice, two piece, red piece, blue piece

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badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/2/2007 9:55 AM (GMT -6)   
Hi, I am new here. I have had my ostomy surgery for two months now. After reading several of the posts I feel at home. Constant crying, clothes don't fit the same, feel butvhered and depressed. One of my questions is: I am very small: 80 pounds and under five feet. This bag is HUGE and enters a room long before I do. I wrap it up with an ace bandage and that works ok, but I have sensitive skin and it breaks out in hot weather. And I have a real reaction to the adhesive. I try No-Sting, which helps a bit and I have a nasty rash. It is a 2 piece by Hollister. Also is a one piece system as bulging as a two piece system? I do like the option of 'burping' it because of the gas. What in your opinions are the lowest profile out there???? I do see my ET nurse soon, but need to order soon. Just depressed about the whole thing. I had rectal cancer and they cut a lot on my backside, but my skin was terribly fried from radiation that the stictches didn't hold. My surgeon (Who I will call Ms. Coldfish) said I would have to wait for it to heal from the inside out, which could take up to 6 months! Gosh, I'd like a sex live before then! (I'd also like to find some pretty belts and undies to fit, but all of them are run way to big for my size. I am on Ativan, but think I need to see a therapist.

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 7/2/2007 12:08 PM (GMT -6)   
Get on the internet and look at the different companies that make supplies: Convatec, Hollister, Coloplast are the major ones. They usually have a place on line where you can order samples. Try it all. One word of advice; try a new product when you know you'll be home for the day in case it doesn't work out.

I think the one piece systems are more low profile but like you said are harder to burp. There are smaller pouches out there too, but depending on your output they may or may not work for you.

If the adhesive to a product is bothering you, it's time to change to another product. You can look on their web site and/or call Hollister and find out what adhesive they're using on your product, then ask for a sample of a product with a different adhesive. If Hollister doesn't have anything different, try Convatec and/or Coloplast.

Finding the perfect supplies for your life style and stoma is a never ending process, I'm signed up for news letters from Convatec to keep up with the latest products and I check the other companies on line frequently.

Good luck.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade still on Prednisone (my worst enemy), Surgery scheduled for early July. 
 
 


Crohned
Regular Member


Date Joined Jan 2007
Total Posts : 86
   Posted 7/2/2007 6:12 PM (GMT -6)   
I empathize with your plight completely! Love your subject title. I received a catalog from a company called Edgepark which has all the companies products that you can browse through....they even have prices, ooooh bonus. I was overwhelmed by the options we have to choose from so I just started calling 1-800 #'s and asking for free products--they are more than happy to give them out on the chance that you will choose their company for life.

Today, I am personally sampling the Hollister one piece system. I like it's low profile, but the top stickie rubs on my waist band and is curling up, pretty soon, I'm going to have to change it before contents start spilling out.

If you find a perfect fit, please do post again.
Crohn's/Colitis 2003.  Remicaid worked for 1 year remission,  Dipentum, FishOil, 6-MP, Vitamins, weaning prednisone!!,
Subtotal Colectomy w/ Ileostomy May 16 2007  
 


dragonfly137927
Veteran Member


Date Joined Sep 2006
Total Posts : 2527
   Posted 7/3/2007 10:13 AM (GMT -6)   
holister has mini bags as well. The lock and roll mini bag is the smallest I had found.  I also like that the new image line has a cloth cover which u can get transparent (cloth only on the back) or beige (completely covered in the cloth)


Dx with Crohn's 1987, symptoms as early as 1984.
Temporary iliostomy February 19 2007
Ovarian cysts dx 1994, migraines dx 1996, allergies (including food allergies) , oral allergy syndrome (sligtly different than true food allergies), Astham dx 1984, Gall Bladder removed 1999, Inguenal hernia Sx 1987
 
Protonix 40 mg, Nuerontin, oxycontin, dilauded, Folic acid 1 mg, Vitamin b12 1000 mcg, vitamin b6 100mg, Diflucan 100mg, vitamin A, Multivitamin, Elavil 100 mg, Zanaflex 4 mg, asmanex, singulair, foltix, probiotics
As needed: Albuterol inhaler, relpax, nebulizer (albuterol ), have an Epi-pen but hope I never have to use one.


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/3/2007 5:24 PM (GMT -6)   
I did see the ET nurse today. She told me that companies will indeed amail you free samples. Edgepark is where I have been ordering my supplies so far so I called them and they are sending me free samples of 3 different systems, so that's nice. ETs.... if you have a good one WHAT would you do without them?

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 7/3/2007 6:32 PM (GMT -6)   
hey newcomer.....badbaggirl......

are you bad, or is it that bag? haha....i just had my surgery on 4/20 too, so i am still adjusting also.....

yeah, what a bummer this can be....hang out though and you will find it quite rewarding to come here every so often....

i myself hate having to worry about my bag showing.....but the best thing to do is be as open as you can with those around you and you will realize that most of the time, it is a bigger deal to you then it is to them....just hard to believe that until you try someone.....

good luck with your health.....and keep your head up...at least this way, when you go swimming, you already have a personal flotation device attached!

also check out this page i just found.....

everyone should check it out....

http://irritatedbeingsingle.com/

a dating site for people with Crohn's and IBD......pretty cool....

in case anyone is wondering.....i am Gladbag on that site too!
"I like rice....rice is great if you are hungry and want 2000 of something...."

"I like blackjack....but i/m not addicted to gambling....I'm addicted to sitting in a semicircle"

"I don't have a girlfriend....but i know a lady who would be upset if she heard me say that"

Videochat with me on camfrog.com: camfrog id: natglad1


Scrappyjrt
Regular Member


Date Joined Jul 2006
Total Posts : 212
   Posted 7/4/2007 8:20 AM (GMT -6)   
They also make pouches and wafers for children,they are smaller.
  1.  


jacksns4
New Member


Date Joined Jul 2007
Total Posts : 18
   Posted 7/8/2007 1:24 PM (GMT -6)   
Badgaggirl....Find an Ostomy group in your area! They help a lot also with questions. The first time I went, I saw many OLD grey haired people...(my grey is covered up) and it helped anyway...younger ones came to the next meeting. Many companies like Hollister and Convatec have reps speak and ask questions that helps.
Also found the first 6 months the worst. In my depression over all this and being in a starved underweight mode from sickness, I ate my way up to 160 from 89 pounds (sick weight)! So don't eat over your sadness. I felt big with the bag and now I am big. When I had the before operation briefing, I laughed at the nurse because those bags were so big! Now I use a bigger one at night so I can sleep all night. I just put it side to side, not hanging down. I also cut up some old t shirts with hole for bag to fold over at night. This is added protection if it leaks at night... I use shorter ones daytime and fold them under..I'm only 4'10" and hanging down is weird. Had to go to briefs for coverage. Good luck on the transition...not the most sexy condition for sure! LBJ


badbaggirl said...
Hi, I am new here. I have had my ostomy surgery for two months now. After reading several of the posts I feel at home. Constant crying, clothes don't fit the same, feel butvhered and depressed. One of my questions is: I am very small: 80 pounds and under five feet. This bag is HUGE and enters a room long before I do. I am on Ativan, but think I need to see a therapist.

Steviegirl
New Member


Date Joined Jul 2007
Total Posts : 7
   Posted 7/9/2007 3:29 PM (GMT -6)   
Badbaggirl
I have run the gammet of trials and errors and I am also not a big girl. Sex, OH YEA! that is not a problem, I have found many ways around that. Another poster suggested the Hollister line with the cloth covers and I will vouch for them. I use Hollister 14602 wafer and Hollister 18122 pouch. Call information for an 800 # or ask your ET for it for Byram Healthcare. They will provide a catalog for you with products from all companies and including everything from pouches to odor drops. they will also bill your insurance and ship to your door in a timely fashion.
When I had my first ostomy in the mid 80's I did not want to join a group but I did want to talk to another patient my own age for those private questions. The ostomy association gave me the number of someone and on my own time I phoned her. That was the best thing I did. I got a lot of good advice.
I will tell you that finding underwear that works is not the easiest thing. I buy lots and end up disgarding them. But rather than using an ace bandage (as my re-tired doctor uncle does) I fold the bottom of my pouch and place it in my underwear. Then I don't have that "pulling" feeling and I feel secure and free of the possibility of my pouch coming off.
SEX???? Try a tube top! You can fold it under your pouch holding it in place! I'd be happy to answer any personal questions you might have! Keep your chin up! Better days are ahead!

badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 7/9/2007 5:05 PM (GMT -6)   
thanks everyone for all the info! Right now I am using the Holister wafer and bag. I like the cloth. Tried using the mini bag too. Good for under swim suits when ever I get the guts. Strike that. Courage. . Anyway one of the systems I asked for a sample is the following. Anyone heard of this? It's one piece and new.
Stomocur Mini Pch Fltr 3/8" - 1 5/8", Skin

Stomocur ileo mini open pouch for children, adults with a slim build and alternative use with special requirements very inconspicuous with hydrocolloid skin protection and gore-tex protected filter cut-to-fit 3/8" - 1 5/8" skin colored sold by the box of 20.

Looks like it's got a roll up closure.

Anyway, sex. Oh yes. I remember it ... barely. They took my anus and rectum and did a little work on the va-jay jay but as I said my skin was so torked from the radiation, eveything spilt wide open SO no playing around till THAT heals up , besides I feel about as sexy is a fencepost. I am thankful my partner has patience because it's been a loooooooooooong time.

I end up waking up weeping! Soooo. My doctor reccomended a therapist. Lord, I never saw one before. least it's a gal.

BadBagGirl
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