Pregnancy after Colectomy

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BigMomma
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Date Joined Sep 2006
Total Posts : 40
   Posted 7/25/2007 2:58 PM (GMT -6)   
Been a while since I have been here, but hello all!
 
Have any of you women (or men with partners who have had a colectomy) gotten pregnant after having your colectomy?
 
What were the complications? Dangers? Experiences? Advice?
 
If you haven't, what have you heard about it, because information on the subject is almost nonexistant... I would appreciate any and all advice... I am 25 and I have 2 children, but that is never where  I wanted to stop....
 
Thanks!
VandGsMom

justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 7/25/2007 3:10 PM (GMT -6)   
My stoma changed during pregnancy. It was a pain sometimes b/c it was like starting over and trying to find the right bag to fit. After my stoma was larger than it was pre-pregnancy but not grossly big or anything. However, I had no complications anything bad come of it. Good luck!!!

summerstorm
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Date Joined Aug 2006
Total Posts : 6571
   Posted 7/25/2007 4:36 PM (GMT -6)   
i haven't been pregnant, and i am not planning on it, but my surgeon told me some stuff anyway. He said that actually being pregnant isn't usually a problem, but sometimes it's hard to get pregnant, and that most of the time you have to have a c-section. I guess it's something to do with the muscles not being strong enough. I also got a paper, and it said what justjenjen said that the main problem is that your stoma changes and it's hard to keep a bag on correctly.
good luck!

BigMomma
Regular Member


Date Joined Sep 2006
Total Posts : 40
   Posted 7/26/2007 9:16 AM (GMT -6)   
I had mine reversed right after my colectomy, so technically i don't have one anymore.

I am concerned that some kind of complication from the pregnancy might induce me to need one again. I don't exactly have alot of extra small intestine, ya know? lol

Does anyone know of any resources that I can look at on this? I know my google works as well as yours, but I can't find ANYTHING?

Any help? Pretty please?

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 7/26/2007 6:26 PM (GMT -6)   
i should have said that I haven't been pregnant since I had the ostomy, lol. pregnancy can put alot of strain on your body, the only I can think is that some women have alot of trouble with hemmroids and tearing when they give birth.

BigMomma
Regular Member


Date Joined Sep 2006
Total Posts : 40
   Posted 7/30/2007 4:05 PM (GMT -6)   
thanks cattieos.

I just am so worried over it.

I also heard that having had colon surgery increases your chances of infertility by like 30%. I also have PCOS (Poly Cystic Ovarian Syndrome) that makes me 58% more unlikely to have children, and I have lost one ovary during my surgeries.

I mean good gosh. I just want to have another baby. So my chances are like negative 10 now, right?

az04
New Member


Date Joined May 2009
Total Posts : 1
   Posted 5/25/2009 8:55 PM (GMT -6)   
I am almost 9 months pregnant and had a total colectomy about 9 years ago. Due to the first two surgeries (I had an ostomy bag while the "pouch" healed and then a take down surgery two months later), my surgeon said it is mandatory that I get a c-section. Honestly, once I heard the reasoning behind it, I supported him and my ob 100%. They said that the pressure from the baby on her way out could wreck the work from the first surgery to the point that it could never be fixed and I would need an ostomy bag for the rest of my life.
My husband and I were concerned about getting pregnant because of the decreased chances that I'd read about with post-colectomy surgery patients, but it didn't seem to be a problem for us at all. I know that it helps that I'm not too old yet (26) and I have had to have a "high-risk" ob throughout my pregnancy.
I have my c-section a week from today and all that bothers me (besides being awake during it and only using local anesthetics-which is standard) is that the incision will be made along the same scar as my colectomy surgery. I know there has been some concern about scar tissue, so there will be a general surgeon in the delivery room as well. I hope all goes well and my success story will be an encouragement to others going through the same thing!

RobinByrd
Veteran Member


Date Joined Dec 2008
Total Posts : 511
   Posted 5/25/2009 10:18 PM (GMT -6)   

I haven't had the experience of being pregnant with the ileo as of yet, but my decision for the permanent ileo was heavily weighed by the fact that future pregnancies are safer with this route than with a j-pouch.  My surgeon explained that process of the permanent ileo surgery and the j-pouch surgery, and then the pros and cons of each.  In the end we decided that it is definitely safer for ourselves, my body, our future pregnancies (we would like at least one more biological baby, we'll adopt later in life), and our spirits if we just nixed any future complications. 

My GI, surgeon and OB/GYN said the pregnancy with the ileo would be a normal pregnancy with no other risks as a 'normal' pregnancy.  SOLD!!!  I had a high risk pregnancy with my son, as I had active UC throughout and on all kinds of meds...so not fun.  So, even though the fertility rate has lowered, I don't care.  We'll start trying around this time next year and I can't wait!  We talk about baby names all the time, and even though our toddler is running us ragged the idea of another baby is very exciting!!!

I am very eager to learn more about your pregnancy and experiences with the ileo!!!  I'm sure it may be a little more difficult to conceal...but oh well!!!  I'm almost to the point where I really could care less about people seeing my accessory.  : )

smurf  


: )  Robin
 
28 year old Mommy of an amazing 1 year old and Wife for 2 years!
Dx-May 2007 Moderate/Severe Pancolitis - failed all medications
 
Proctocolectomy w/ permanent ileostomy on 02/06/09!!!
 
"Your mind is like a parachute, it only works when it is open."  -Unknown


Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 5/27/2009 12:18 AM (GMT -6)   
I got pregnant with my son after my ileo. It was a pretty good pregnancy. Sometimes my stoma would get a little distended and would hurt. Also I had more frequent leaks but besides that everything was great. Az04 was right also, c-section is mandatory. It was okay though. I mean after 1 c-section before and the ileo surgery I was up and walking the very next night. And it's not hard to conceal the bag with those nice poofy maternity shirts.

I wish you lots of luck. Don't worry, you'll do great. cool

rpb09
New Member


Date Joined May 2009
Total Posts : 3
   Posted 5/31/2009 11:02 PM (GMT -6)   
AZ04 or anyone else who might know...I had pretty much the exact same surgery about 5 years ago (ileostomy for 2 months which was then reattached) and now am trying to get pregnant for the first time. In the last 5 days, I've taken about 5 pregnancy tests that all show an extremely faint "positive" blue line. I'm wondering if maybe because of the lack of a colon, the urine is more diluted and I'm not going to get as strong of a positive as a normal person or if I'm just not pregnant. Any ideas?

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 6/2/2009 11:17 PM (GMT -6)   
I've spoken to many women who've had vaginal births (both with j-pouch= j-pouch.org and with ileo= UOAA.org)

I've been told that a c-section is NOT mandatory-by my surgeon.
From my research, it seems to be almost 50-50 that a women in our situation would need a c-section.

The decrease in fertility after multiple surgeries is due to scar tissue/adhesions. Everyones body heals differently and we've all had different #'s of surgeries, so it's hard to say who will have problems or not. But there have been studies on post j-pouch fertility, and it is decreased significantly (according to the Mayo Clinic studies the Dr.'s showed me when I went). But those studies were based on open procedures, and to my knowledge, there haven't been any finished studies on fertility after laproscopic procedures.

Like JJJ said, most women report their stoma changed in size. Occasionally they might experience a obstruction-I spoke with one woman who got an obstruction and had to have an ileostomy placed WHILE she was pregnant-SCARY, but most of the time, the obstruction will resolve on its own. Just push the baby out of the way.

I plan on TTC this fall. I'm very nervous about the experience, but looking forward to a better post-pregnancy experience (with NO meds). And I'd like to have my j-pouch done after that. Then, maybe try for another. That's my plan.......we'll see.

Good Luck to you BigMomma! Let us know how things go if and when you get preggers.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


headphones
Regular Member


Date Joined Jan 2006
Total Posts : 242
   Posted 6/3/2009 1:26 AM (GMT -6)   
we're currently trying right now. i got my colon taken out during the 2nd trimester of my first pregnancy. my docs say that i shouldn't have trouble conceiving again, i hope not...
i had issues with leaks with my growing belly etc, but that's about it. didn't seem to have any more trouble than usual concealing my pouch either. it was all new to me then so hopefully this time around will be less traumatic.
after another child, i'm going to do the j-pouch. my docs told me to wait til i was done having children because it can cause issues with the j-pouch, i'm not sure. just thought i might as well wait.
good luck to you and keep us posted.
headphones
30 yr. old female
diagnosed with pancolitis uc 7/05
emergency ileostomy 11/07 while 5 months pregnant
gave birth 3/08 to a healthy baby boy!


Xianghua17
Regular Member


Date Joined Jun 2003
Total Posts : 79
   Posted 6/5/2009 6:14 PM (GMT -6)   
Chasblah said...

I've been told that a c-section is NOT mandatory-by my surgeon.
From my research, it seems to be almost 50-50 that a women in our situation would need a c-section.



Oops sorry. Maybe they said mandatory for me and I misunderstood. Sorry about that, but good luck to anyone trying to get pregnant with an ostomy. It's really not that bad.

pickermj
New Member


Date Joined Aug 2009
Total Posts : 1
   Posted 8/7/2009 11:58 AM (GMT -6)   
I had my entire colon taken out about 8 years ago after one really bad battle with Crohns/UC (they were unable to officially diagnose it before it ruptured).  I had the pull through surgery after a few TERRIBLE months with an illeostomy, the pull through was never a question for me.  I have the J pouch and have had mild pouchitis most of the time, nothing antibiotics (not allowed during pregnancy but yogurt every day and cutting out caffeinne has worked miracles!) occasionally can't keep under control. 
 
I am pregnant now, 21 weeks in, and the only problem I have experienced is partial previa.  I'm only 22 so this isn't too common unless you have had prior surgeries, usually dealing with your uterus and prior pregnancies.  This being my first pregnancy, I am assuming it is becuase of all of the emergency and reconstructive surgeries I went through.  My healthy (fingers crossed!) baby girl was an accident so obviously getting pregnant isn't a problem!  My OB knows my medical history and is still hoping for a normal vaginal birth so long as my placenta grows out of the way in time.  The only downer to being pregnant with the huge scar down your belly is that bc of all of the scar tissue my belly is pretty numb so I only feel the kicking on my sides for now. 

hockeymom97
New Member


Date Joined Sep 2009
Total Posts : 1
   Posted 9/28/2009 9:36 AM (GMT -6)   
I am now 40. Ten years ago I had a total colectomy. At that point I had already had an 8 month old. I was diagnosed with FAP. I went down to NY City to have the surgery.

I wanted more children so I talked to my local gastro doctor, my ob/gyn, and my surgeon. they all said that I could succesfully have more children. I had normal pregnancies and I felt great. There was no difference between my first and the other two. I had both of the last two babies derlivered scheduled c-section. Not because of my colectomy however due to my first delivery. I had a large infection and needed an emergency c-section. I was planning on a v-back but the Dr. said no way. My deliveries went smooth and as planned and I have 2 very beautiful children now.

Good luck to all.

smarty
Regular Member


Date Joined Jul 2009
Total Posts : 96
   Posted 9/29/2009 4:16 PM (GMT -6)   
hockeymom97 said...
I am now 40. Ten years ago I had a total colectomy. At that point I had already had an 8 month old. I was diagnosed with FAP. I went down to NY City to have the surgery.

I wanted more children so I talked to my local gastro doctor, my ob/gyn, and my surgeon. they all said that I could succesfully have more children. I had normal pregnancies and I felt great. There was no difference between my first and the other two. I had both of the last two babies derlivered scheduled c-section. Not because of my colectomy however due to my first delivery. I had a large infection and needed an emergency c-section. I was planning on a v-back but the Dr. said no way. My deliveries went smooth and as planned and I have 2 very beautiful children now.

Good luck to all.



Hi Hovkrymom97

I am a chinese woman living in calgary with my son, I have severe constipation, 5 months only have a few times, and it was very little. I coundn't stand, I am thinking remove the entire colon, but I heard someone diaherra 30 times/day and want suicide. Can you tell me how many times diraherra you have after surgery, now have how many times per day. also please tell me lifes after colon removal.

Your feedback is highly appreciated

best regards
smarty

rpb09
New Member


Date Joined May 2009
Total Posts : 3
   Posted 10/16/2009 10:17 AM (GMT -6)   
I had a total colectomy with J-pouch about 5 years ago and am now pregnant. Right now, I am just seeing a regular OB and he doesn't seem to think there's any reason to take any special precautions. But I don't know how knowledgable he really is about my surgery and any complications I might have with a pregnancy because of it. Do you all recommend seeing a high-risk OB right away or only if complications arise?

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 10/19/2009 9:29 PM (GMT -6)   
Congrats rpb09!
I've not experienced pregnancy with either ostomy or j-pouch. You could j-pouch.org and they could probably give you better advice.
But please keep us posted.
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
coumadin, prenatal vit.
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


photomoe
New Member


Date Joined Oct 2009
Total Posts : 3
   Posted 10/27/2009 11:09 AM (GMT -6)   
I noticed many of you discussing the chances of getting pregnant post colectomy and post j-pouch. Did any of you need to see a fertility specialist in order to conceive? I have been told different things by my doctors (from my surgeon telling me I will not be affected to my GI saying after 6 months of trying go to a fertility specialist to my high risk OB/GYN telling me to wait the normal 12 months). I had an emergency total colectomy in 2004 followed by j-pouch construction later that year and a reattachment in 2005. My husband and I have been trying to conceive for about 5 months now and nothing...although allowing my body to get back into the swing of things after discontinuing the pill 10 months ago has been a challenge.
Any advice/suggestions?

believe16
New Member


Date Joined Jan 2010
Total Posts : 1
   Posted 1/14/2010 5:07 PM (GMT -6)   
Hey guys! I am a 31 year old & 7 weeks pregnant. I had a total colectomy in' 93 & reversal of my ileostomy in ' 95. I have had multiple bouts with pouchitis. I was wondering if you had any advise for someone with my history. I was told I would only get pregnant through invitro , which proved to be incorrect. To my surprise, despite my GI history & polycystic ovaries, I have gotten pregnant. I was wondering what kind of nutrition advise anyone can offer. I am concerned bc without a large intestine one's hydration / nutrition absorption is compromised. I am so happy to be able to speak to others who share in this life experience.

Chasblah
Veteran Member


Date Joined Feb 2007
Total Posts : 788
   Posted 1/14/2010 10:56 PM (GMT -6)   
That's awesome believe! Congrats to you!
I can't wait until we get to try. i hope your pregnancy goes well! and i hope you'll keep us posted (p.s.-this is an old thread, maybe you should start a new one......)
Chassity
28 yrs. old. married with one beautiful daughter (born 11/20/07)
-diagnosed with severe pancolitis u/c 2002 had total colectomy 12/19/08; emergency surgery due to abscess-had to redo ileostomy and switch to left side 12/25/08; 2/15/09 found blood clot in superior mesenteric vein (prob. from inf. and surgery inflammation)
i only take vitamins now, when I WANT to. :)
(temporary ileostomy....maybe)

"Things turn out the best for those who make the best of the way things turn out."


Dericz wifey
New Member


Date Joined Feb 2010
Total Posts : 1
   Posted 2/22/2010 11:41 AM (GMT -6)   
Hi I'm pregnant after a colectomy and an ileostomy take down. I was wondering if there were any bad things that could happen I should know about. Please write back thanks:)

Goose325
New Member


Date Joined Aug 2010
Total Posts : 2
   Posted 8/31/2010 8:36 PM (GMT -6)   
  Hey everyone! First time here. I'm 27 yrs old and had my total colectomy when I was 15 after battling with Ulcerative Colitis for 10 years. I had the partial surgery in August of my freshmen year in high school and the total that December. I've recently been thinking about having children and began getting really scared that because of both my surgeries I would have trouble being having to have children if at all. I have lost touch with my surgeon, because I've been feeling great ever since the surgery (except for an occasional bout of pouchitis). Just wondering if anyone had any advice/wisdom to share. Thanks!

babygirl10150
Veteran Member


Date Joined Jul 2006
Total Posts : 636
   Posted 9/3/2010 8:18 PM (GMT -6)   
Hey guys! I had my second son in May of 2006 and had my colostomy in June of 2006. I got pregnant with my daughter and she was born in May 2009. I didn't have any complications. The only thing that changed was the size of the stoma due to stretching and it was a bit difficult to change the wafer, it was hard to see. Nothing a low mirror can't fix. Oh and I got the wafers that you cut to size. It was actually less noticeable because of the elastic of the maternity pants. If you have any concerns, talk to your gynecologist.
Michelle

~Nissen redo 05/10/10~
~Nissen 12/14/09~

anna1984
New Member


Date Joined Sep 2010
Total Posts : 1
   Posted 9/4/2010 4:11 AM (GMT -6)   
Hi everyone.
I had a  total colectomy in 2007 and then 6 months later suffered an ectopic pregnancy and had my left tube removed. I am now terrified of becoming pregnant again due to the fact I only have one tube but do want to have children. Also cannot use contraceptive pill due to low absorbtion and am unsure of risks with contraceptive methods such as depo injection ect. Has anyone had similar experince? x
Anna
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