Frustrated with leaks today....please help !!!

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msfee
New Member


Date Joined Aug 2007
Total Posts : 6
   Posted 8/11/2007 7:27 PM (GMT -6)   
Hello Everyone,
 
I just found this forum and am enjoying it very much.  Everyone has so much valuable info. On 8/2/2007, I  got a temp (lap) ileostomy. I was doing fine until I had to change the bag today alone for the first time. The first time it was on in the wrong direction and my efforts have been downhill since then. I have changed 4 times now with a wafer leak everytime. I don't know what I am doing wrong. It seems to be near the bottom. Maybe I am applying something incorrectly or maybe I have too many wrinkles in the wafer. At first, I thought maybe I wasn't applying enough paste and I tried to be sure my skin was dry when I attached the wafer. I have the tried the 2 piece and 1 piece with the same issue. My skin is now getting irritated. What do I use for that? If I change again, it will be my 5th time. I am so frustrated now that I don't know what to do. confused I am going to use all my supplies at this rate. What is wrong? I thought that I was doing good but guess I was wrong. Please help. Any suggestions would be wonderful. Thank you so much.
 
felecia

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/11/2007 7:56 PM (GMT -6)   
Felecia,
Welcome to Healing Well. I'm glad you found us, but am sorry you're having such trouble with your first wafer change. sad Try not to get too frustrated. This is normal and happened to me the first time, too. Just take a couple of deep breaths and try again.

I recommend standing up when you apply the wafer and arch your back a little so your stomach is flat. Use just a little bit of paste around the hole that you cut in the wafer. Apply the wafer from the bottom and work your way up. Use your fingers to smooth out any wrinkles. Then, clip the bag on and hold your hands over the wafer for a minute or so. The heat from your hands will help seal it to your skin.

Hope this helps. Good luck!
Dx'd w/ Crohn's in '99 at age 28. Proctocolectomy and ileostomy in '06.

Pain-free, med-free, and happy to be healthy again :)


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/11/2007 8:04 PM (GMT -6)   
One more thing, even though it's called "paste", it does not act as a glue to hold the wafer onto your skin. It only protects your skin from getting stuff on it. The sticky, adhesive part of the wafer is what holds it onto your skin. If you put too much paste on, it will spread out and cause the wafer not to stick, and you will end up with a leak.

msfee
New Member


Date Joined Aug 2007
Total Posts : 6
   Posted 8/11/2007 8:36 PM (GMT -6)   

Thank you so much for the words of encouragement. I am going to try changing more time tonight and try your suggestions.  Will let you know how it works this time. Thank you so much.  :-)   

 felecia

 


msfee
New Member


Date Joined Aug 2007
Total Posts : 6
   Posted 8/12/2007 5:01 PM (GMT -6)   

Thank you Stacie. Sounds like the convex type is what I need. No matter what I do, I can't get the wafer completely flat on the bottom. I will contact the nurse today and I have my first post-op doctor vist this Wed. I have changed 7 times in less than 48 hours. Everthing was fine until yesterday and then downhill. I have lost most of my confidence now, but I know things will get better soon.

What are those Eakon seals? I saw some at the pharmacy in the medical supply section. I think that I received some Convatec seals in my starter kit but I am not sure how they are used. Thank you.

  felecia


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 8/12/2007 7:50 PM (GMT -6)   
I was doing some research and I came across some else's opinion about ostomy belts and such..

"The hospital hooked me up with Byram Healthcare and they are great. Also, if you call the companies direct they send you tons of samples. Byrams phone number is 1 877 902 9726, you may want to call them in advance. Also my duaghter uses an ostomy belt made by Phoenix. She likes it very much. I defintely recommend the Phoenix Ostomy Belt."

summerstorm
Veteran Member


Date Joined Aug 2006
Total Posts : 6571
   Posted 8/12/2007 8:51 PM (GMT -6)   
i had a hard time right at first, some user error on my part, the bag they sent me home with had a clip and while i was in the hospital the nurses were doing it for me, they have to measure the stuff and all, so the first couple of times i tried to clip it i screwed it all up! and the first time i actually changed the whole thing, wafer and all, i cut the hole wrong and my skin got all red and icky, and the the second time i did it alone, idid the same thing! I think it is normal to mess up some at first, you will get the hang of it!

JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 8/15/2007 9:30 AM (GMT -6)   
I can't believe they send anyone home from the hospital without having an Ostomy Nurse come to the house to help you with questions and/or problems. If you can, have a nurse come to you, they have more knowledge about stomas than most doctors.

Eakin seals are the best invention for ostomies. You just mold it around your stoma, put on your flange or one piece pouch (which doesn't have to fit exactly or be cut exactly anymore). No more paste which doesn't hold up well for acidic ileostomies or urostomies.

And tied for first place is M9 deoderizer drops. Couldn't leave the house without them, and really, would probably be divorced if I didn't have them at home.

The second best invention is definitely the 3M No-Sting barrier wipes/spray. Saved my skin on more occasions than I can count.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade still on Prednisone (my worst enemy), Finally had another surgery hoping for a long remission. 
 
 

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