general dysmotility and total colectomy

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 8/13/2007 6:37 PM (GMT -6)   
I was wondering if anyone has any advice as to what I should do.  I have gastroparesis and colonic inertia.  I have been diagnosed with general dysmotility from top to bottom.  I have suffered from colonic inertia for 8 years now.  For 8 years I have been living off enemas and can only find relief after 4 or 5.  I have not made a bowel movement on my own in I can't remember.  Now that I have gastroparesis, it is harder for me to eat and I am now down to 91 lbs. 
 
I have a rectocele and an enterocele.  Has anyone had a total colectomy done with these conditions? Does the gastroparesis get better or worse?  I am worried about having a colostomy bag, but the surgeon doesn't think I will need one. 
 
During my last decography I could not push the barium out completely nor could I expel the balloon on my last anorectal manometry.  What does this say for my future with a total colectomy...I am concerned but I feel this is my only choice for relief.
 
HOpe to here from someone.
 
Lindsay

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 8/13/2007 6:55 PM (GMT -6)   
Lindsay,

I have gastroparesis also. I have not used the bathroom on my own since I was 18 years old and now I am 33. My symptoms have only gotten worse. I had a total colectomy but it did not help me because I cannot move stools through my rectum. I had a defocography a year ago and I could not evacuate the barium. I am going to have another defocography test tomorrow. If I have cannot expel the barium again, then I will probably need a bag.

I encourage you to please read as much of this forum as possible. I have posted many questions recently about having a bag and I think you will find a lot of peace in read other's comments.

Good luck to you. Best Regards.
Amey

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 8/13/2007 7:42 PM (GMT -6)   
Do you think I will have to have a bag if I go through the surgery?  How much of the barium was left, you couldn't evacuate any?  HOw severe is your gastroparesis?  Are you taking any medicine for it?

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 8/13/2007 7:57 PM (GMT -6)   
ARe small bowel obstructions common in patients who have had total colectomies?

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 8/13/2007 8:55 PM (GMT -6)   
I could not evacuate any of the barium. I tried....hard! My dysmotility is tough. I am not sure how bad it is because I do not have anything to compare it to. I take Motilium for the dysmotility. It used to be FDA approved, but now it has to be purchased outside of the U.S. My doctor told me the website to order it from. It helps with the bloating feeling in my stomach.

I cannot tell you how "common" obstructions are in relation to colectomies because eveyone is different. I had my first colectomy 7 years ago and I have had 3 obstructions because I cannot pass solid stools. If you cannot move stool through your rectum, then a colectomy may not be helpful to you. In order for me to have a BM my stools have to be liquid so I can only eat liquids. Then I take Sorbitol 4xper day and I drink an entire bottle of Citrate of Magnesium every night. For a while I was drinking Epson salt 2x at night. Epson salt works great but it is very depleting and I ended up in the hospital. Remember, I do not eat solids so I have to take all of these agents just to move the liquid Jello and chicken broth.

This might explain why I am typing this from my hospital bed. I do not have enough nutritian to sustain myself.

Mom2sophia
Regular Member


Date Joined Aug 2007
Total Posts : 262
   Posted 8/14/2007 5:45 AM (GMT -6)   

I could evacuate most of the barium.  I think the reason I couldn't the rest is because of my large rectocele.  I honestly think if they fixed that, I could evacuate all of it.  It really sounds like you need to be put on TPN for nutrition....have they discussed that with you.  I think you may have to get a bag...if your rectum isn't functioning...then there really is no other choice.  Your taking all the laxative can't be helping your general dysmotility either.  BEfore you had a total colectomy done, did they do a Sitz Marker study on you?

I hope you get some relief soon!! 

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 22, 2017 1:35 AM (GMT -6)
There are a total of 2,858,270 posts in 313,625 threads.
View Active Threads


Who's Online
This forum has 155221 registered members. Please welcome our newest member, gwegbfdj02.
265 Guest(s), 1 Registered Member(s) are currently online.  Details
theHTreturns...


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer