Post Edited (Stuck42Long) : 8/14/2007 4:44:43 PM (GMT-6)
Glad to hear you are out of the hospital....Did they remove all or only part of your colon? Have you tried apple juice or prune juice? Don't let it go on for too long without contacting the surgeon.....
Wow, you certainly sound like you're in MUCH better spirits than you were. It sounds like having someone explain things to you and show you the various bags, etc., helped ease your mind. I'll definitely be thinking of you tomorrow as your under go your surgery. Please be sure to come and post and let us know how you're doing when you're up to it. The most important thing is to walk, walk, and walk some more after your surgery. (((hugs)))
Normal BM's can be anywhere from three times a day to three times a week. You just had a major operation and the intestines are always the last thing to wake up. Hopefully yours are just taking a nap after being so active the last few days. As others have mentioned, I'd also suggest mentioning it to your surgeon to see what he/she says. Are you taking any pain meds? Any of the opiod pain relievers can cause constipation.
Post Edited (flchurchlady) : 8/16/2007 4:38:06 AM (GMT-6)
Hi Everyone, It's Saturday and I finally get to go home. I have been here 15 days I am ready to get out of this hospital and feel somewhat normal again. I had my ileostomy sugery on Wednesday and I guess I am doing well. I have not eaten since my surgery - I am not hungry and everything tastes blah!
I am grateful for this forum because I felt prepared for some of the surprises I have encountered over the past couple days. The stoma nurse came in and met with me. She was helpful, but now it's my turn to appply what I have learned.
A Few Questions:
How do you get the small out of your bag? I feel like I smell like poop. Someone had mentioned peroxide. How much should I use and how often do I put it in my bag?
Does anyone use pediatric bags or mini bags? Do you have a favorite brand or type (one peice or two piece)?
What about swimming? Doesn't the wafer get wet and need be changed after swimming? Does this mean I can only swim once a week? My kids and I swim daily.
How do you clean your bag after you empty it? Mine is a two piece but I cannot take it apart because it hurts too bad to put it back together (still sore from surgery). My bag cannot reach from my stoma to the sink. How can I get water in there to clean it?
I asked the stoma nurse these questions but she could not answer them. She said I should cap my stoma when swimming and then discard the cap, but that is going to get expensive.
Thank you for your help.
It's so good to hear from you. I've been wondering how you're doing. I can't answer any of your questions, but I'm sure somebody will soon come along that can. Happy healing!
Hi Amey - Like Irish, I'm so happy to hear from you and have also been wondering how things are going for you!!
I'm sorry that I also cannot answer any of your questions, but it's a given that someone (Cecilia) will have the answers for you!! I'm just thrilled you're going home to your kids and that you have the amazing outlook that you do!! Big HUGS your way!!!!
P.S. The docs believe whatever caused me to have the total colectomy has also caused all this mess.
If you have any imput on what I need to do please tell me!
Happy Moments, Praise God.Difficult Moments, Seek God.Quiet Moments, Worship God.Painful Moments, Trust God.Every Moment, Thank God.
I am so sorry to hear that things are not going well at the moment.
Concerning the insurance, I don't think it could possibly be legal to authorize surgery and then after the fact take it back. What I would do is contact the state insurance board. I hope you kept the approval paper or at least the statement that the insurance paid. Also, perrhaps there is a legal aid group that can help you fight this. A lot of times they take cases at no charge. I know a case where my friend had spine surgery which was not too successful and the insurance company started to give him crap about "medical necessity" for pain pump and follow up care and surgeries...well he took them to court and now the court appointed lawyer deals with the insurance company and they have to do what the court says....
It seems to me that insurance companies wait until your at your weakest, spring something on you knowing you don't have the strength both emotionally and physically to fight them.
As to your situation, I don't know what to tell you...Is there a major university hospital near you that you can go for consultation?
Just know that, and I speak for everyone on this forum, that we care what happens to you and you will be in our thoughts and prayers
I had a total colectomy with ileorectal anastomosis done laparascopically. My surgery was for colon inertia. I am 14 months out now. I go 12-15 X in a 24 hour period but feel blessed each time I go. However, there are people on this forum who report going 2-3 X a day. I don't think any one can predict how often you will go. There is bran and imodium which can help if you go to often....My quality of life has improved so much since that toxic colon was removed.
Good luck to you and keep posting....
RICK - Hello and WELCOME!! First let me point out that the majority of people on this thread that have had a TC is due to Colonic Inertia (a paralyzed colon) which it totally different than UC.
First thing I would recommend is that you go back several "PARTS" of this TC thread. There you will find a wealth of information pertaining to the surgery itself and some idea of what to expect post-op. The main thing I would like to state is that we are all different in the healing process. You will note that no two of us are alike even though the reason we had the surgery was because we had something in common - if that makes any sense.
For me personally, I'm nine and a half months post-op, recently my bowel habits changed from several times a day down to one or two a day or even once every other day. After several post-op testing to make sure something serious wasn't causing the problem, I was advised that my issue is due to a lazy small intestine. Also, prior to surgery the surgeon advised that once the small intestine gets accustomed to doing the part of the colon, bowel habits can slow down considerably. I consider my TC a success and I'm thankful for any bm's I do have. I suffered with chronic constipation for 43 years and NEVER knew what it was like to have a normal bm - NEVER!!
Now on to the healing part of the surgery, like I stated above, everyone has a different experience. I consider my recovery long (considering I've had many surgeries for female issues and always bounced back rather quickly). It was a good 12 weeks before I even began to feel "normal" and a good 16 weeks before I wasn't having pain and a lot of discomfort and tenderness. Others here were back to work in no time with little pain and discomfort all the way to moderate like myself.
I think honesty is the best policy and I will tell you that this is a HUGE surgery and for me personally and others as well, I felt like I had been ran over by a truck. There is NOTHING easy about this surgery - NOTHING!! However, the outcome was worth every moment of discomfort and pain I experienced to be where I am today!!
Please, please go back and read as many past "PARTS" of this thread as you possibly can. Educating yourself is the best thing you can do for yourself - I spent weeks upon weeks and hours upon hours and that was the biggest gift I could have given myself.
I do suggest something regarding your rectum. Has the doctor considered having an anal manomatry test done on you? I would ask to have this performed. It will tell the surgeon exactly how good the muscles and nerves in the recum is performing. I personally don't think "just looking good" is good enough, especially since the small intestine will be attached to the rectum and this will be your way of transit. This is really something I would take very serious and ask for the anal manomatry test.
I hope this helps and I wish you all the best and hope to see more of your posts.
Post Edited (Stuck42Long) : 8/19/2007 7:54:17 AM (GMT-6)