Total colectomy Part 16

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Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 8/14/2007 12:30 PM (GMT -6)   
Hi Everyone,
 
It seems we are locked out of 15 so on to part 16
 
Hope everyone who had surgery this week are doing well.  Post as soon as you can

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/14/2007 4:42 PM (GMT -6)   
:-)  Phyllis - Thanks for starting "PART 16"!!  You're such a doll!!
 
Amey - I do hope things are going "your" way today!  I look forward to hearing what happened during the scope and defogram.
 
I don't have a motility issue, other than having a somewhat lazy small intestine, which was discovered after my TC.  Before the TC, during the defogram, I could not get the barium balloon out either.  What the test revealed was a rectocele and I guess that's the reason for not passing the balloon. 
 
I did suffer my entire life (43 years prior to the TC) with constipation.  I know that I was scared to death that I would have to have a bag and I put off seeing someone for all those years for that specific reason.  I know the TC is a medical breakthrough of recent years and if I would have pursued help years ago - the bag would have more than likely been my only option. 
 
Seeing they recently (two months ago) discovered the "lazy small intestine" and I'm using MiraLAX again daily in order to keep things moving (up to two times a day now), I also fear a bag in my future.  The surgeon did indicate that if things don't improve he would then, and only then, remove the very little piece of colon he left in during the TC.  I honestly do not know what that means for me - if it means a bag or what.
 
I do wish you the best and I look forward to hearing from you and what your options are if any.
 
Oh, I have been dealing with nausea almost on a daily basis for about two months now (about the time the "lazy" small intestine was found).  I'm not sure if I should make an appointment with my GI who referred me to the colorectal surgeon or if I should discuss this with the surgeon.  I also take Protonex daily for preventative measures of an ulcer.
 
If anyone else has had this happen or has advise, I'd love to hear from you!!
 
 
 
 


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 

Post Edited (Stuck42Long) : 8/14/2007 4:44:43 PM (GMT-6)


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 8/14/2007 8:29 PM (GMT -6)   
Today I had my defocography and sig flex exam. I just got back into my room and read through all of these wonderful posts...they made my day! I am so thank full that so many of you have taken the time to make me feel better.

I feel a lot more optimistic! I am done having a pitty party for myself. I have been given a great opprotunity to heal and I should not dismiss this chance for reasons like vanity. The main reason I do not want a stoma and bag is because I like my body and I am afraid to add a yucky bag to my stomach....basically, I am being prideful.

But, I need to get over myself and accept this gift the Lord has given me ---the gift of healing.

So, today I failed my defocography again. My doctor feels that an ileostomy is the best solution and he has put me on the surgery calendar for tomorrow night.

By this time tomorrow, I will have a stoma, wafer, bag, and I am Ok with that! I feel more confident now that I understand some of this ileostomy jargin. The ostomy nurse came up today and marked my stop and showed me some samples. I liked the very thin one-peice that is used under sports clothing. I also liked the pediatric bags. However, I am not sure which is best..a one piece or a two peice. I guess that will take time to figure out through trial-and-error.

I am going to attempt to get some sleep. My head is spinning from the medication I was given for the flex sig.

Thank you again for your support. ALL of you have been a great asset to me during this difficult time. I keep thinking of your words and they bring me lots of encouragement.

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/15/2007 5:38 AM (GMT -6)   
Amey,
I am so proud of you for being strong and optimistic about all of this, and I'm glad that you see this as a gift that is going to improve your life.

Is your family going to able to be there today? I hope so. I'm still coming up to Tampa on Friday and will be there until Sunday. My email address listed under my profile, if you want to keep in touch that way.

You are in my thoughts and prayers,
Cecilia - Philip. 4:13

rose3027
New Member


Date Joined Jun 2007
Total Posts : 16
   Posted 8/15/2007 2:49 PM (GMT -6)   
hi everyone! i am finally home from the surgery, i was in the hospital for 11 days, but everything went really well. i was having about 3 to 5 bm's a day for a few days, and now for the last 3 days i'm totally constipated! i cant go at all. did this happen to anyone else? i dont understand it but i'm definitely frustrated. i am not running to the bathroom at all like i thought i would be. does this get better? did anyone have the same situation?
 
how is everyone else feeling? it's a relief to be out of the hospital! hope all is well and to hear back from you all soon. thanks :)

Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 8/15/2007 3:44 PM (GMT -6)   

Hi Rose,

Glad to hear you are out of the hospital....Did they remove all or only part of your colon?  Have you tried apple juice or prune juice?  Don't let it go on for too long without contacting the surgeon.....


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/15/2007 6:44 PM (GMT -6)   
Cecilia - First I want to thank you for all your contribution and support on this thread!!  You are a true blessing and I appreciate your optimism.
 
Amey - I wish you all the best!!  Like Cecilia said, your optimism, strength, and the ability to see this as gift to an "improved life" is so touching!!  I look forward to hearing that your surgery was a success!!
 
Rose - Welcome home and to the road to recovery!  I'm also wondering the same thing as Phyllis, did they remove part or all of your colon?  I can't remember.  Also, I wouldn't let this go on for too long.  In fact, I'd be on the phone with the surgeon ASAP.  This could indicate something isn't right.
 
I have found that apple and grape juice help, along with stool softeners.  Another thing that helps move things along - sugar free candy.
 
I do recall seeing your post regarding a normal to slow small intestine transit.  I was recently told that I have a "lazy" small intestine and I now take MiraLAX "again" daily.  My surgery was 11-09-06 and things were all good up until about three months ago.  I started having fewer and fewer bm's and that feeling of being bloated again not to mention the feeling of the bm's "not being as good as they should be" - if that makes sense.  Fortunately my surgeon ran a couple of CAT scans and a colonocopy (with what little bowel I have left) to rule out anything more serious.  The outcome - a "lazy small intestine".
 
I encourage you to contact your surgeon ASAP!!  Please let us know what's going on OK? 
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


rose3027
New Member


Date Joined Jun 2007
Total Posts : 16
   Posted 8/15/2007 6:44 PM (GMT -6)   
hi phyllis, they removed my entire large intestine and reconnected my small intestine to my rectum. i talked to the surgeon and i am not obstructed, just really slow but i dont know why. i am taking gentle laxatives now and they are working finally, but i dont want to be on laxatives for the rest of my life! i just didnt know if its a temporary slow down and my bowels will speed back up?

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/15/2007 6:55 PM (GMT -6)   
:-)  Rose - It looks like we were posting at the same time.  Just to let you know, they may have left in a very small amount of your colon.  My surgeon also connected my small intestine directly to the rectum.
 
I will say that even though I've slowed down considerable I feel the TC was a total success!!  If going with the help of MiraLAX, even if it's once a day or every other day, it's a lot better than not going AT ALL.  I can deal with adding the MiraLAX to my coffee each day, along with a few stool softeners.  Also MiraLAX is now OTC.
 
I hope this helps!!!
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/15/2007 8:44 PM (GMT -6)   

Amey

Wow, you certainly sound like you're in MUCH better spirits than you were. It sounds like having someone explain things to you and show you the various bags, etc., helped ease your mind. I'll definitely be thinking of you tomorrow as your under go your surgery. Please be sure to come and post and let us know how you're doing when you're up to it. The most important thing is to walk, walk, and walk some more after your surgery. (((hugs)))

Rose

Normal BM's can be anywhere from three times a day to three times a week. You just had a major operation and the intestines are always the last thing to wake up. Hopefully yours are just taking a nap after being so active the last few days. As others have mentioned, I'd also suggest mentioning it to your surgeon to see what he/she says. Are you taking any pain meds? Any of the opiod pain relievers can cause constipation.


Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/16/2007 4:32 AM (GMT -6)   
Thank you, Robin. You are so positive and helpful and a true blessing to all of us! I'm sorry that your small intestine is lazy, but am glad that you can wake it up every morning with some coffee and Miralax. The best part of waking up is Miralax in your cup!

Rose, I'm glad that your surgery went well. I hope your doctor can explain why you're suddenly constipated. It's true that pain meds can cause that to happen.

Amey, I pray that your surgery went well and that your were able to get some sleep last night.

Hope you all have a good day,
Cecilia
"Courage is fear that has said its prayers." -Anonymous

Post Edited (flchurchlady) : 8/16/2007 4:38:06 AM (GMT-6)


resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 8/16/2007 7:28 AM (GMT -6)   
Hello Everyone,

So many posts since I last checked. I haven't been able to for a few days because I had toe surgery.

Amey - I'm sorry to hear that your decography didn't come out normal or your sig, but I'm so glad that you are able to accept the bag so you can heal and get on with your life. Healthy and happy.

Rose - I'm happy to hear your surgery went well. Some meds do make you constipated. Before I had my TC my doctor had me do a small intestine mobility test. Mine went fine. I am six months post op and doing fine. Some days I go a lot and others maybe five times a day. I have noticed that certain foods make me go more and can make the consistency different. In the past six months I have had about four leaks. All at home thankfully.

Since my surgery I have lost a total of 40 lbs. Thirty of those were directly after the surgery. Even though I go a lot loosing weight is a struggle. It did not become easier.

When I was having my toe surgery I was a bit nevous that I would leak because I would be sedated. I asked the anesthesiologist if that might happen and he said not to worry. Nothing happened even though I was very sedated. Not out but very sleepy.

The pre-op doctor asked me how many BM's i have a day now and I told her anywhere from 5 to 20. She was shocked to hear that and asked if that wasn't too many. My answer was NO it is not too many. I'm enjoying it.

Anyway, I'm glad every one is doing fine and on their way to recovery.

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/16/2007 2:47 PM (GMT -6)   
:-)  Cecilia - Thank you for the wonderful compliment.  Ditto to you my dear!!  It is a real blessing for me if I can help ease someones fears or just a bring them a little smile!!
 
I loved your "Coffe 'N MiraLAX" statement.  Maybe I should make a cup for myself with that very statement and add a smiley face in the shape of a heart - LOL!!!
 
:-)  Irish - I also want to thank you for all the support, knowledge, and encouragement you share with so many on this thread!! 
 
:-)  Resa - I'm with you - I'll take as many bm's that my body is willing to give (even though it's not as many as before)!!! 
 
:-)  Amy - My thoughts are with you and I wish you a speedy recovery with few problems.  You're an absolute inspiration to me and I'm sure the same holds true for many others here!!!
 
:-)  Rose - Please keep us updated on your situation.  I hope you're finding some relief and things are and will begin to pick back up!!
 
I'm looking forward to hearing from those who just had surgery within the last two weeks. 
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


april417
Regular Member


Date Joined Jul 2007
Total Posts : 204
   Posted 8/16/2007 4:39 PM (GMT -6)   
Amey
 
I know by the time you read this your surgery wil be over, and you will be recovering
with some nice, nice drugs. I hope you slept through the night.  Let me know how
you are doing and remember walk asap.  You don't want to end up with a NG tube.
The sooner you get up the sooner you will be home.  My prayers are with you and
your family. I'll keep checking in to see how things are coming along.
 
Thinking of you
Apri

rose3027
New Member


Date Joined Jun 2007
Total Posts : 16
   Posted 8/17/2007 6:58 PM (GMT -6)   
HI EVERYONE

So I went to the bathroom from the milk of mag, but slow again now that i am not taking that. I am trying to eat more cooked veggies, and i had prune juice today. it's helping a little but not much at all. What food makes everyone go more? Any recommendations? Thanks for all of the support :)

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/17/2007 7:18 PM (GMT -6)   
ROSE - Seeing you and I have this in common - here are a few ideas for you to try:
 
Mott's Apple Juice
Welsch's Grape Juice
Magnesium capsules
Stool softeners
Sugar free chocolate (Dove's dark is best) OR York Pepperment Patties work well too
SunSweet prunes (they have a Cherry Essence flavor that's really good)
 
Try mixing and matching things - for example, I will drink a glass of Mott's in the morning with a magnesium capsule and two stool softeners and later in the afternoon I will eat a few sugar free chocolates.
 
You can safely take the magnesium caps and stool softeners everyday.
 
I also use MiraLAX in my coffee now that you can get it OTC.
 
I hope this helps!!!!
Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 8/18/2007 10:20 AM (GMT -6)   

Hi Everyone, It's Saturday and I finally get to go home.  I have been here 15 days I am ready to get out of this hospital and feel somewhat normal again.  I had my ileostomy sugery on Wednesday and I guess I am doing well.  I have not eaten since my surgery - I am not hungry and everything tastes blah!

I am grateful for this forum because I felt prepared for some of the surprises I have encountered over the past couple days.  The stoma nurse came in and met with me.  She was helpful, but now it's my turn to appply what I have learned.

A Few Questions:

How do you get the small out of your bag?  I feel like I smell like poop. Someone had mentioned peroxide.  How much should I use and how often do I put it in my bag?

Does anyone use pediatric bags or mini bags?  Do you have a favorite brand or type (one peice or two piece)?

What about swimming?  Doesn't the wafer get wet and need be changed after swimming?  Does this mean I can only swim once a week?  My kids and I swim daily.

How do you clean your bag after you empty it?  Mine is a two piece but I cannot take it apart because it hurts too bad to put it back together (still sore from surgery).  My bag cannot reach from my stoma to the sink.  How can I get water in there to clean it?

I asked the stoma nurse these questions but she could not answer them. She said I should cap my stoma when swimming and then discard the cap, but that is going to get expensive.

Thank you for your help.

 


Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/18/2007 11:11 AM (GMT -6)   

Amey

It's so good to hear from you. I've been wondering how you're doing. I can't answer any of your questions, but I'm sure somebody will soon come along that can. Happy healing!


Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/18/2007 6:07 PM (GMT -6)   

Hi Amey - Like Irish, I'm so happy to hear from you and have also been wondering how things are going for you!!

I'm sorry that I also cannot answer any of your questions, but it's a given that someone (Cecilia) will have the answers for you!!  I'm just thrilled you're going home to your kids and that you have the amazing outlook that you do!!  Big HUGS your way!!!! 


Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 


shellypoo
Veteran Member


Date Joined Dec 2005
Total Posts : 896
   Posted 8/18/2007 7:32 PM (GMT -6)   
Hi All,
I'm sorry I have been so recluse the last few weeks but I have been dealing with a lot of hard stuff.
 I was in UMC from Wed.-Fri. of this week.  Not a good
experience! 
I don't know where to start. I am so depressed right now and don't really
want to come out of this dark hole to face the real world.  My life consists
of daily TPN going in thru a picc line for 20 hours a day, usually it comes
off around 4 or 5 PM and then I am free from carrying the heavy bad the TPN
is in until it's time to reconnect it around 8 or 9 PM.  I have to rely on
my hubby to do that because I get to frazzled trying to draw up the vitamins
etc that have to be put in the bad and then getting the air out etc...
before it can be connected to me. I am still nauseous much of the time and
have little energy. I have to have iv phenergan for that and dilaudid for
the severe pain.  DH administers those most of the time and does it
frequently, he gets tired of it, too. I push myself so that my family's life
seems some what normal for them, believe me, it's not normal for me.  My DH
is overwhelmed with all this, he has had to take of many days when I've been
in the hospital and you know this is not the life he sighed up for.  Who
wants a wife who cannot function like she used to?  Who can't eat or drink
anything without it causing her to have extreme pain and dry heaving and
dehydration rapidly?  Who spends time in hospitals that don't know what they
are doing and comes home more confused then when she went in?
 
The doctors still do not know what this is, my GI doc is pushing for a
gastric electric stimulation device to stimulate my small intestines to
contract the food thru, but my insurance doesn't cover it so I am supposed
to contact legislators to get them to intervene on my behalf and who knows
how to do that and what to do????  These people do not know me!!!  And what
if they approve it and it doesn't help?  Where do I go next?  My neurologist
told me yest.(he saw me while I was in the hospital) that he doesn't think I
have MS, he thinks this is a rare neuro muscular or autoimmune disorder that
acts like MS but with more problems.  When will I have an answer as to what
this is that's killing me?  I cannot keep staying on TPN without serious
complications, infection, liver damage etc...  I've already had my liver
enzymes go very high because of the lipids in the TPN, so they had to change
those to 2x a week. 
 
 
I have a very low white count and red count and my bone marrow biopsy shows
some kind of focal fibrosis of unknown cause and asks whether I have been
looked at for an enlarged spleen or evaluated for the anemia due to chronic
illness.
 
So today I cry, I cannot stop the tears, I don't know what is next, all I
know is I want out! I want answers!
 
Then on the flip side, I had an Interstim implanted in march to help my
bladder to function like normal and my doctor assured me it would be covered
(I always ask if it needs to be approved) and the insurance paid for it in
full and then in June we received a statement form our insurance saying they
decided it wasn't medically necessary and they withdrew all the money they
had paid, leaving us owing over $60,000.  How does someone handle that?  I'm
trying to get someone involved to clear it up.  My doctor wrote a letter of
medical necessity but it didn't make any difference.  The device needs to be
moved because I have lost weight and there isn't any fat over it so it
sticks out and hurts.  The insur. will not cover any thing that needs to be
done to it. So I have this in me that cannot be fixed if it goes haywire or
if it causes any problems.  I would love to know how you would handle all
this, I am besides myself, too tired and worn out to know what to do next.
 
I'm sorry I'm so gloomy but that is today for me.  Maybe tomorrow will be a
better day.  I don't want this to be the rest of my life.  I don't see how I
can function much longer.  I need doctors that have a plan and will share it
with me.  I need someone that can get this all straightened out.  Who/where
is that person?  I try to maintain my faith but I am struggling with that
right now.  Please continue your prayers.

 

P.S. The docs believe whatever caused me to have the total colectomy has also caused all this mess. 

If you have any imput on what I need to do please tell me!


 
Thanks.  
Michelle

Michelle ><>
 
 

Happy Moments, Praise God.
Difficult Moments, Seek God.
Quiet Moments, Worship God.
Painful Moments, Trust God.
Every Moment, Thank God.


Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 8/18/2007 8:43 PM (GMT -6)   

Hi Michelle,

 

I am so sorry to hear that things are not going well at the moment. 

Concerning the insurance, I don't think it could possibly be legal to authorize surgery and then after the fact take it back.  What I would do is contact the state insurance board.  I hope you kept the approval paper or at least the statement that the insurance paid.  Also, perrhaps there is a legal aid group that can help you fight this.  A lot of times they take cases at no charge.  I know a case where my friend had spine surgery which was not too successful and the insurance company started to give him crap about "medical necessity" for pain pump and follow up care and surgeries...well he took them to court and now the court appointed lawyer deals with the insurance company and they have to do what the court says....

It seems to me that insurance companies wait until your at your weakest, spring something on you knowing you don't have the strength both emotionally and physically to fight them.

As to your situation, I don't know what to tell you...Is there a major university hospital near you that you can go for consultation?

Just know that, and I speak for everyone on this forum, that we care what happens to you and you will be in our thoughts and prayers

 

Phyllis


ucRick
Regular Member


Date Joined Jun 2007
Total Posts : 75
   Posted 8/18/2007 10:12 PM (GMT -6)   
Hello all,
I hope I'm in the right place to post about my upcoming surgery.

I'm sceduled for a total abdominal colectomy with ileorectal anastomosis on September 5, 2007.

My surgery is because one biopsy from my colonoscopy on May 23 showed high-grade dysplasia. The reason the surgeon is letting me keep the rectum instead of doing a proctocolectomy is because according to my colonoscopy report and biopsy report the sigmoid colon and rectum looked normal.
The ascending colon is where the dysplastic activity showed up and there was evidence of UC there as well as in the transverse and descending colon.
I'm really curious as to what my quality of life wil be like after the surgery? My surgeon told me that this surgery would give me the closest to normal bowel function of the 3 surgical options. The other 2 options were proctocolectomy with end ileostomy and proctocolectomy with ileal pouch anal anastomosis(j-pouch). My UC symptoms have been mostly controlled through medications for the last 28 years, so my life has been relatively normal for the last few years with few flare-ups. The surgeon told me that I would probably have about 3 bm's a day after this surgery but I'm just curious; is that true from the start or is that after several weeks of recovery? I've been told I'll probably be the hospital for 5-6 days but I wonder how long I'll need to recover at home before going back to work? The surgery will be open and the surgeon is supposed to be really good; he operates at Colorado University Hopital in Denver.
He told me with the j-pouch I would probably go 6-8 times a day after recovery and adjustment period of a few months.
I've been j-pouch.org and there is lots of information and support there about that surgery but I've decided not to go that route yet.

I know that by leaving the rectum, I'm still at risk for inflammation, dysplasia, or cancer, but plan to get scoped at least once a year after the surgery and if dysplasia shows up there later I'll probably have the j-pouch surgery then.

I'm going in for my pre-op visit on 8/23 and hope to get some questions answered then, too, but I just wanted to get a better feel for what I'm in for before then.

Thanks for listening,
53 yr old male, UC since 1978
800mg Asacol x 3 daily
Multivitamin
Forteo(for osteoporosis)
600mg calcium + 200 iu Vit. D x 3 daily
Advicor(for cholesterol)


Phyllis B
Regular Member


Date Joined Feb 2006
Total Posts : 196
   Posted 8/18/2007 10:35 PM (GMT -6)   

Hi Rick,

I had a total colectomy with ileorectal anastomosis done laparascopically.  My surgery was for colon inertia.  I am 14 months out now.  I go 12-15 X in a 24 hour period but feel blessed each time I go.  However, there are people on this forum who report going 2-3 X a day.  I don't think any one can predict how often you will go.  There is bran and imodium which can help if you go to often....My quality of life has improved so much since that toxic colon was removed.

Good luck to you and keep posting....

 


resa
Regular Member


Date Joined Apr 2006
Total Posts : 141
   Posted 8/19/2007 6:33 AM (GMT -6)   
Hi Everyone,

I hope everyone is doing well.

Michelle - I am so sorry you are going through so much. Like Phyllis said, I also do not think it is legal for an insurance company to approve a procedure and then withdraw their approval after the fact. Each state has an insurance regulator. I hope you still have the authorization of approval the insurance gave you. Write a letter to the insurance regulator and put a copy of the insurance approval letter in with it. Again, I am so sorry and my prayers are with you.

Amey - Good to hear you are getting out of the hospital and going home. My prayers are with you.

Rick - Welcome. I also had a TC due to colonic inertia. I am six months post op. I have a BM 5 to 20 times a day (24-hour) period. Some people have less. Everyone is different. Since my TC I feel so much better.

Stuck42Long
Regular Member


Date Joined Sep 2006
Total Posts : 250
   Posted 8/19/2007 7:45 AM (GMT -6)   

RICK - Hello and WELCOME!!  First let me point out that the majority of people on this thread that have had a TC is due to Colonic Inertia (a paralyzed colon) which it totally different than UC. 

First thing I would recommend is that you go back several "PARTS" of this TC thread.  There you will find a wealth of information pertaining to the surgery itself and some idea of what to expect post-op.  The main thing I would like to state is that we are all different in the healing process.  You will note that no two of us are alike even though the reason we had the surgery was because we had something in common - if that makes any sense.

For me personally, I'm nine and a half months post-op, recently my bowel habits changed from several times a day down to one or two a day or even once every other day.  After several post-op testing to make sure something serious wasn't causing the problem, I was advised that my issue is due to a lazy small intestine.  Also, prior to surgery the surgeon advised that once the small intestine gets accustomed to doing the part of the colon, bowel habits can slow down considerably.  I consider my TC a success and I'm thankful for any bm's I do have.  I suffered with chronic constipation for 43 years and NEVER knew what it was like to have a normal bm - NEVER!!

Now on to the healing part of the surgery, like I stated above, everyone has a different experience.  I consider my recovery long (considering I've had many surgeries for female issues and always bounced back rather quickly).  It was a good 12 weeks before I even began to feel "normal" and a good 16 weeks before I wasn't having pain and a lot of discomfort and tenderness.  Others here were back to work in no time with little pain and discomfort all the way to moderate like myself.

I think honesty is the best policy and I will tell you that this is a HUGE surgery and for me personally and others as well, I felt like I had been ran over by a truck.  There is NOTHING easy about this surgery - NOTHING!!  However, the outcome was worth every moment of discomfort and pain I experienced to be where I am today!!

Please, please go back and read as many past "PARTS" of this thread as you possibly can.  Educating yourself is the best thing you can do for yourself - I spent weeks upon weeks and hours upon hours and that was the biggest gift I could have given myself.

I do suggest something regarding your rectum.  Has the doctor considered having an anal manomatry test done on you?  I would ask to have this performed.  It will tell the surgeon exactly how good the muscles and nerves in the recum is performing.  I personally don't think "just looking good" is good enough, especially since the small intestine will be attached to the rectum and this will be your way of transit.  This is really something I would take very serious and ask for the anal manomatry test.

I hope this helps and I wish you all the best and hope to see more of your posts.



Robin
 
God is SO good - His blessings are endless! 
Trust in Him with all your heart!
Know He's in control over every situation you face!!
 
 

Post Edited (Stuck42Long) : 8/19/2007 7:54:17 AM (GMT-6)

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