New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sandybeaches
Regular Member


Date Joined Aug 2007
Total Posts : 22
   Posted 8/17/2007 9:39 AM (GMT -6)   
I had my first ileostomy 2-05.  It was bungled and my colon was left in along with my retum.  Also, a loop ileostomy that was left open to my colon, caused it to fill up and became a toxic megacolon.  Then my liver got involved.  9 mos. later I had a new surgeon, got a new stoma, had my impacted dead colon and rectum taken out 5/06. 
 
I'm doing very well now with my 2nd ileostomy.  Unfortunately, I now have some autoimmune concerns, including Chronic Epstein Virus, and I'm still being tested for others.
 
I just wanted to say hi.  I don't know yet how all the bells and whistles work.  When I do, I'll post my picture.  I am on another website for ostomies under my same user name.
 
I hope to be able to learn more and offer my experiences to the forum.  Thanx.

Irish_Mom
Regular Member


Date Joined Apr 2007
Total Posts : 385
   Posted 8/17/2007 7:48 PM (GMT -6)   
Welcome to the forum!

Breast Cancer at 36. Diagnosed in 2000. Bilateral mastectomy with reconstruction.
Status post colon resection, but now heading towards a total colectomy in September.
Son diagnosed with Crohn's at 17 (now 20). Taking Asacol and 6MP with Prednisone and Rowasa added during flareups.


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/20/2007 7:29 AM (GMT -6)   
Welcome to Healing Well, and thanks for sharing your story. I'm glad you're doing better with your second ileostomy.

I had my colon and rectum removed in Sept '06 after being sick with Crohn's for 7 years. I don't mind having an ileostomy, because it has helped me be healthy again.

I live in SW Florida. Do you live in the Sunshine State, too?
"Courage is fear that has said its prayers." -Anonymous


sandybeaches
Regular Member


Date Joined Aug 2007
Total Posts : 22
   Posted 8/20/2007 11:16 AM (GMT -6)   
Thank you both for the welcome.  Yes, I live in Seminole (St. Pete), Fl.  Where are you located?

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 8/20/2007 2:26 PM (GMT -6)   
I live in Fort Myers, but my sister lives closer to St. Pete in Palm Harbor. :-) I was up there last weekend for her daughter's birthday. We were going to go to Busch Gardens, but it was too hot. We decided to go in December instead when it's nice and cool.

Is chronic Epstein virus the same as mononucleosis, where you feel tired all the time? I hope not. sad

sandybeaches
Regular Member


Date Joined Aug 2007
Total Posts : 22
   Posted 8/21/2007 8:02 AM (GMT -6)   

CEBV is gotten from mono antibodies (after having mono years and years ago) after your autoimmune system has a setback (my accident 11 yrs ago) and you are older.  I've got fibromialgia also.  So the EB virus rears its ugly head and starts attacking your body, including the liver which is not doing so well now.  You see, my ostomy is the best thing I got going (besides my blue eyes!).

Let me know when you're visiting your sister again.

Sandy B

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, October 23, 2017 7:42 AM (GMT -6)
There are a total of 2,885,945 posts in 316,660 threads.
View Active Threads


Who's Online
This forum has 157762 registered members. Please welcome our newest member, Lupwarrior.
401 Guest(s), 13 Registered Member(s) are currently online.  Details
Erichardson234, JayMot, Dahlias, Jayhawk85, Serenity Now, gabybee, ks1905, testuser1234, DebbieMH, three 5's and a jack, jdiane, straydog, JkorourkeRN for husband


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer