Ostomy nurse visit

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Slice
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Date Joined May 2004
Total Posts : 277
   Posted 9/4/2007 4:18 PM (GMT -6)   
Yes, finally got to see my ostomy nurse, who could barely remember me since i hadn't seen her for almost a year.
So i show her the area and her first words are " oh my, you poor dear".  Then she says " you must be in pain". Well  duh, probably wouldn't be here if i wasn't.  She hooks me up with some meds. But as she was checking out the area she says that i smell good. Like i've said before i'll pretty much shower in body spray all day just to keep my mind at ease about the smell. She asks if i use any sort of deodorant for the bag. I said no but i said i've heard the hydro peroxide can work well. He next words were " nooooooooo".  hah hah  She said it can damage your stoma. And before i said anything else she says " Peroxide, mouthwash, you don't want that coming in contact with your stoma too often"
   Just telling ya what she said.  I'm not sure either way. I tried the peroxide and it didn't seem to do anything, but who knows.
  I'll stick to smelling like morning dew. I'd rather over do it on the spray than smell like poo thats been in a bag all day.
 
Crohn's for what seems like forever
Bagged in August 2006


Amey
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Date Joined Jul 2006
Total Posts : 942
   Posted 9/4/2007 4:30 PM (GMT -6)   
LOL, Slice...Can you refresh my memory...why are you in such pain? Do you have skin problems?

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/4/2007 4:46 PM (GMT -6)   

Slice,

Ostofresh ---  check out this website and ask for a sample.  It works great for me.  Been using it for years.  Not cheap, but made for ostomies. 

 
My DME supplier ordered it in for me, and insurance will cover it.  Check around your local area.  Or, order it direct - insurance won't cover if you order direct, at least not for me.  Had to get it from a DME provider.
 
Also curious about why you are in pain...
 
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 9/4/2007 4:53 PM (GMT -6)   
The skin around my stoma had become.....ahhh......BAD! Basically, the skin is gone. All red and kinda wet. It's been like this for about a month now. Nurse said i might be having some reaction to the tape part of the wafer. But she also thinks i have some skin infection in that area. So on the antibiotics i go. Which isn't making any sense lately since i've been on that stuff for a LONG time. Most likely making it useless.
Peggy, thanks for the link. I probably will try it out.
Amey, memory refreshed.
Me, still can't chat. Computer 1 Slice 0
 
Crohn's for what seems like forever
Bagged in August 2006


badbaggirl
Regular Member


Date Joined Jul 2007
Total Posts : 275
   Posted 9/4/2007 5:03 PM (GMT -6)   
Yeah, my ET told me that peroxide might break down properties of the bag it's self, but I use it anyway, when I am out of other stuff. I agree, I would love to do the all over the body spray but my parnter is very sensitive (like, gets very sick) to perfumes and stuff. Makes it kinda hard sometimes!

Slice - hope you can get some relief for your poor skin!
BadBagGirl
Crohn's Disease, Colostomy due to cancer and I make darned good dill pickles.


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/4/2007 5:03 PM (GMT -6)   

Slice - what products are you using?  Ever use stomahesive paste, or stomahesive powder?  The powder helps to stop the seeping sores before you apply the wafer (Convatec products)  I haven't had to use it in years, but it worked when I needed it.  MY stoma shrunk and I didn't realize it, and of course, didn't make the opening of the flange on the wafer small enough - hence, sore skin.  The powder really helped clear it up.

 


Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 9/4/2007 5:42 PM (GMT -6)   
Yeah, always use the powder and ALWAYS use the paste. It's mostly the area just outside of where the ring is. ( i use a 2 piece) The skin right next to the stoma is fine, and the area that the paste comes in contact with is ok. It's the area where the tape on the wafer is that seems to be infected.
  I've never really had leaks ( except for the explosion i had last friday, wearing a different appliance though) so i can't really say the skin is infected from that.
 
Crohn's for what seems like forever
Bagged in August 2006


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/4/2007 6:55 PM (GMT -6)   
Once in a great while I get a little irritation on that area from the skin stretching under the tape part of the wafer -- next time I change, I cut that part of the tape off and let the skin breathe. Heals right away. I know that would be hard to do with the whole area affected. It kinda does sound like an allergy to the tape.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/4/2007 6:58 PM (GMT -6)   
Do they make wafers for people with sensitive skin and latex allergies?

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/4/2007 7:02 PM (GMT -6)   
Slice,

Did your nurse say anything about a yeast infection? The skin all around my white tape (outside of my wafer) and my skin under the white tape was REALLY red and rash looking. I thought it might be from the heat and may be a yeast infection. I have been using Adapt Stoma powder by Holister so the skin under my wafer looks great. I had my Dr call me in a script for Nystantin powder for yeast and I also stopped using Convetec 2pc and I switched to Holitster 2pc. I put the Nystatin powder and Adapt powder all over my skin and then used the No Sting Spray on top to cover the powder. Then I applied the new Holister wafer and bag. I did this 3 days ago. My skin looks SOOO much better. Before my skin BURNED and ITCHED like ants were all around my wafer but now it looks nearly perfect. I am not sure if my skin looks better because of the Nystatin or because I am not using Covetec but either way, it is not burning anymore!

Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 9/5/2007 7:17 AM (GMT -6)   
Yeah, that was one of the things she mentioned. But she didn't think that was it. I'm going to clean it all up again today. I'm home today so i'll be airing it out!! Oh yay
 
Crohn's for what seems like forever
Bagged in August 2006


JudyK89
Veteran Member


Date Joined Dec 2006
Total Posts : 1986
   Posted 9/5/2007 1:34 PM (GMT -6)   
if you have an open wound (meaning open skin with weeping) under where your tape goes, they have wound care products that you can cut a hole in, put your wafer on top of, and hopefully not change very often that can help heal the wound. I know Convatec has them, lots of the wound care companies carry them, can't remember the names, but look like a square of durahesive material but made especially for wounds.

Good luck, hope you're at least using a good skin barrier to try and protect your skin. It must be an allergy unless you've had a lot of leakage under there.
Judy
25+years diagnosed with CD. 
Numerous surgeries, permanent ostomy, adverse reactions to Remicade finally off of Prednisone, hoping for a long remission from this last surgery. 
 
 


Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/5/2007 1:50 PM (GMT -6)   
Slice,

It sounds like you are going to be living dangerously today! If you want some freedom from your bag, marshmellows and peanut butter are good ways to stop your stoma for a short time.

I hope your day goes well...

Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 9/5/2007 6:17 PM (GMT -6)   
WHAT!?!? Marshmellows and peanut butter??? hah hah Sounds kinda........funky.

My day. It went........it just went.
 
Crohn's for what seems like forever
Bagged in August 2006


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/5/2007 6:31 PM (GMT -6)   
It's true! If you EAT marshmallows, it will slow your stoma down. Did you think she meant to slather your stoma with peanut butter and then top it off with a marshmallow?!
That might work, too!! tongue

Amey
Veteran Member


Date Joined Jul 2006
Total Posts : 942
   Posted 9/5/2007 8:11 PM (GMT -6)   
LOL....Don't forget the cherries! Yum Yum!

flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/5/2007 8:17 PM (GMT -6)   
Good one, Amey! tongue

Slice
Regular Member


Date Joined May 2004
Total Posts : 277
   Posted 9/5/2007 8:30 PM (GMT -6)   

Awwww now see how much more fun that would have been if we were in some chat room.  You could be raggin' on me in real time.......sorta

I had Amey building a wall of marshmellow in a circle. Spreading the peanut butter inbetween the marshmellows. Than makign another level.   HUGE wall around the stoma. NOTHING WILL GET OUT

 


 
Crohn's for what seems like forever
Bagged in August 2006


peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/6/2007 5:20 PM (GMT -6)   
OMG - I'm away for a day and I missed out on all of the fun!!! Marshmallow and peanut butter WALL!!!! Now, that is a real site to imagine.. think about it.
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/6/2007 5:47 PM (GMT -6)   
Add a little whipped cream and you've got yourself a Stoma Sundae! yeah

peggy113
Veteran Member


Date Joined Aug 2007
Total Posts : 1998
   Posted 9/6/2007 5:54 PM (GMT -6)   
Hey - do ya think Dairy Queen would like to hear our ideas for a new product?!
 
Peggy
      
Diagnosed with CD in 1979, many resections and meds
Perm Ileostomy July 1984 at Cleveland Clinic
Disease free since surgery 
 


justjenjen
Veteran Member


Date Joined Nov 2003
Total Posts : 518
   Posted 9/7/2007 1:58 PM (GMT -6)   
Every time I'm not on here you funny people get on!!! I love your posts!

Glad Bag
Veteran Member


Date Joined Mar 2007
Total Posts : 699
   Posted 9/7/2007 2:19 PM (GMT -6)   
Everyone loves ice cream right? but i don't know about a stoma sunday.......that puts a whole new spin on things if i ever tell someone "Eat me!"

looks like this topic just got weird....

i had no idea that marshmallows will actually do that.....i am going home and buying a bag tonight.....that would be much better for swimming, and other times, like intimate moments....i could use one of those stoma caps they have, which is basically a mini-mini pouch....

i have tried them before, but they usually fill up too fast since you can't drain them. Has anyone seen a cap for a two-piece system that uses a click tight seal instead of an adhesive? that might be better since the caps i have seen are all one piece
"All we need is love....love is all we need"


flchurchlady
Veteran Member


Date Joined Jul 2007
Total Posts : 2765
   Posted 9/7/2007 6:45 PM (GMT -6)   
Oh yeah, we're way off topic. Remember that great scene in Animal House with John Belushi and the cake float that said "Eat me"? Or when he imitated a zit in the cafeteria?

vette guy
Veteran Member


Date Joined Nov 2006
Total Posts : 650
   Posted 9/8/2007 1:41 AM (GMT -6)   
Just an FYI, I've seen about 6 ET nurses over the years. Some were good. Some were not. And not a single one ever had an ostomy!!!! I've been using  mouthwash now for about 6 months with no change to my stoma. In this case, be your own judge. If you want to try peroxide go for it. Shaz swears by it. Jusy keep an eye on your stoma(of course I'm speaking figuratively) for any changes.
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